Filter Test Search Search Resources Resouce Type All TypesArticleBrochureEspañolFact SheetFundraisingGovernmentGuidelinesNewsletterOrganizationPatient ToolPolicy StatementProvider ToolScientific LiteratureVideoWebinar Patient Topics All TopicsAnemia/ Iron DeficiencyBrainCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceLiverLungsMental HealthNewly DiagnosedNosebleedsPregnancy & Women’s IssuesSkinUseful Links to Outside Organizations Provider Topics All TopicsAnemia/ Iron DeficiencyBrainHHT Continuing EducationClinicians First Time Seeing a Patient with HHTCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceInternational Guidelines for Screening and TreatmentLiverLungsNosebleeds or EpistaxisPregnancy & Women's IssuesScientific NewsletterSkinUseful Links to Outside Organizations Title Year Type Description Topic(s) International HHT Guidelines: Epistaxis/Nosebleed Management (Recorded) 2021 Webinar Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr.… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis Las Guías Internacionales de HHT: Epistaxis en HHT (Grabado) 2021 Español, Webinar La Dra. Yesica Lijdens, Otorrinolaringóloga de la Unidad HHT Hospital Italiano d… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis International HHT Guidelines: Liver Vascular Malformations (Recorded) 2021 Webinar Dr. Kevin Whitehead, Co-Director, University of Utah HHT Center of Excellence an… Patient Topics: Liver Provider Topics: Liver International HHT Guidelines: Pulmonary AVMs (Recorded) 2021 Webinar Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center… Patient Topics: Lungs Provider Topics: International Guidelines for Screening and Treatment, Lungs HHT Medical Emergency Wallet Card 2021 Patient Tool, Provider Tool In the event of an emergency, this printable compact medical card is wallet-size… Patient Topics: Newly Diagnosed Provider Topics: Clinicians First Time Seeing a Patient with HHT International HHT Guidelines: Pregnancy and Women’s Issues (Recorded) 2021 Webinar Dr. Andrea Lausman, Maternal Fetal Medicine Specialist, and Dr. Filomena Meffe,… Patient Topics: Pregnancy & Women’s Issues Provider Topics: Pregnancy & Women's Issues Nuts and Bolts of A Clinical Trial – the PATH-HHT Study (Recorded) 2021 Webinar Research is the key to the future health and quality of life for HHT patients. “… Patient Topics: Drug Therapy Provider Topics: Drug Therapy International HHT Guidelines: Pediatrics (Recorded) 2021 Webinar Dr. Andrew White, Co-Director, Washington University / St. Louis Children’s Hosp… Patient Topics: HHT in children Provider Topics: HHT in children Meta | Science Discovery Platform 2021 Organization, Scientific Literature Meta is a free research discovery tool from the Chan Zuckerberg Initiative, prov… Patient Topics: Useful Links to Outside Organizations Provider Topics: Useful Links to Outside Organizations Las Guías Internacionales de HHT: Anemia (Recorded) 2021 Español, Webinar El Dr. Marcelo Serra, Internista y Director de la Unidad de HHT, Hospital Italia… Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency, International Guidelines for Screening and Treatment Cure HHT Actualizaciones Oficiales de Salud: Coronavirus Disease (CV) 2021 Español Página de Actualizaciones de salud oficiales de Cure HHT relacionada con COVID-1… Patient Topics: COVID-19 Provider Topics: COVID-19 Mi Checklist Sobre Cuidados de HHT: Nasales 2021 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Nosebleeds Mi CHECKLIST Sobre Cuidados de HHT: Anemia 2021 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Anemia/ Iron Deficiency International HHT Guidelines: GI Bleeding Management 2021 Webinar Dr. Murali Chakinala, Co-Director, Washington University HHT Center of Excellenc… Patient Topics: Gastrointestinal Provider Topics: Gastrointestinal, International Guidelines for Screening and Treatment International HHT Guidelines: Anemia (Recorded) 2021 Webinar Dr. Raj Kasthuri, Director, UNC Chapel Hill HHT Center of Excellence and Dr. Han… Patient Topics: Anemia/ Iron Deficiency International HHT Guidelines – Overview (Recorded) 2021 Webinar Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provi… Patient Topics: Anemia/ Iron Deficiency, Brain, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Insurance, Liver, Lungs, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Drug Therapy, Gastrointestinal, Genetics, HHT in children, International Guidelines for Screening and Treatment, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues, Skin NIH & Genetic Alliance – Coronavirus Vaccines (Recorded) 2021 Webinar “Francis Collins, Director of the National Institutes of Health, shares with us… Patient Topics: COVID-19 Provider Topics: COVID-19 COVID Vaccine Infographic 2021 Fact Sheet Review information related to COVID Vaccines for People with HHT including vacci… Patient Topics: COVID-19 Provider Topics: COVID-19 COVID-19 Official Updates Page 2021 Patient Tool, Provider Tool Cure HHT Official Health Updates page related to COVID-19, including official up… Patient Topics: COVID-19 Provider Topics: COVID-19 HHT and COVID-19: Basics and What We Know in HHT 2021 Patient Tool Dr. Justin McWilliams’ presentation slides related to HHT and COVID-19 from the… Patient Topics: COVID-19 Provider Topics: COVID-19 HHT and COVID-19: Vaccines 2021 Patient Tool Dr. Marie Faughnan’s presentation slides related to HHT and COVID-19 vaccination… Patient Topics: COVID-19 Provider Topics: COVID-19 WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded) 2021 Español, Webinar Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr.… Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Lungs, Newly Diagnosed, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Gastrointestinal, Lungs, Nosebleeds or Epistaxis HHT and COVID-19: Clotting and Anemia 2021 Patient Tool Dr. Raj Kasthuri’s presentation slides related to HHT, COVID-19 and clotting and… Patient Topics: Anemia/ Iron Deficiency, COVID-19 Provider Topics: COVID-19 Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded) 2021 Webinar A rare opportunity to receive factual information surrounding COVID-19 and HHT f… Patient Topics: Anemia/ Iron Deficiency, COVID-19, Lungs, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, COVID-19, Lungs, Nosebleeds or Epistaxis Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence 2020 Scientific Literature Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky,… Provider Topics: Brain, Lungs Cerebrovascular Malformations in a Pediatric Hereditary Hemorrhagic Telangiectasia Cohort 2020 Scientific Literature Pediatric Neurology. Authors: Lauren A. Beslow, MD, MSCE; Jake Breimann, BA, Dan… Patient Topics: Brain, HHT in children Provider Topics: Brain, HHT in children Lung (Pulmonary) Arteriovenous Malformations & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Lungs Women’s Health, Pregnancy & HHT 2020 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Pregnancy & Women’s Issues Patient Symptom & Care Checklists 2020 Provider Tool Download and distribute “My HHT Care Checklists” to patients to complete and ret… Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Gastrointestinal, Genetics, HHT in children, International Guidelines for Screening and Treatment, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues, Skin Liver Vascular Malformations & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Liver Previous Next
