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Cure HHT Announcements

Final days to register! Seattle National Conference

May 13, 2023

HHT Patient & Physician Conference
Seattle, Washington | June 3-4, 2023

Register today to join us for our National Patient & Physician Conference on June 3-4, in Bellevue, Washington just outside of Seattle. Medical professionals can now receive CME credits for participation. This is an in-person conference. Registration is now open.

E-News: Insider Connection

April 10, 2023

Check out our latest E-News! Delivered monthly, straight to your inbox – stay up to date on all things HHT including research, clinical trials, webinars, awareness, educational opportunities and more!…

Final Days to Register! Denver Regional Conference

March 20, 2023

HHT Patient & Physician Conference
Denver, Colorado | March 25, 2023

Don’t miss your chance to connect with the local HHT community just outside Denver, Colorado in Aurora, on March 25, 2023, for a day of networking and learning for both patients and physicians. Medical professionals can now receive CME credits for participation. This is an in-person conference. Registration is now open.

Singapore General Hospital Certified as HHT International Treatment Center

March 8, 2023

Increasing access to specialized care is an important part of Cure HHT’s mission. We’ve made significant progress in the last 30+ years, but work remains to realize a future where every patient has access to expert care. This gap in care is particularly present for many in our international community, which is why we’re unveiling a new “International Treatment Center” program aimed at increasing the number of knowledgeable physicians and care teams around the globe…

PATH Clinical Trial – Now Recruiting!

February 28, 2023

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at several research centers across the United States. Find centers and check your eligibility…

KISS HHT goodbye this February!

February 14, 2023

February is Rare Disease Month and once again, you can honor someone special to you who is affected by HHT, by participating in our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day^®)!

For each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their battle to the disease, by collecting hearts and KISSES…

Blog: What the HHT?

One in a Million

By Ashley Watkins | May 5, 2023

Cure HHT Welcomes Cassi Friday, PhD

By Riley Blevins | January 5, 2023

Help Keep Us On the Cutting Edge

By Ashley Watkins | December 21, 2022

New Therapeutic Development Arm Takes Shape

By Ashley Watkins | December 12, 2022

Owning Our Future: Introducing Our New Therapeutic Development Arm

By Ashley Watkins | November 10, 2022

Development of HHT Centers of Excellence

By Ashley Watkins | August 25, 2022

HHT in the News

BBC News: Jersey woman calls for more awareness of rare condition

April 13, 2023

BBC Jersey (UK) Jersey woman calls for more awareness of rare condition – “A Jersey woman who has a rare genetic condition that affects her blood vessels is calling for greater awareness of the disorder…Chelsea Ford, 27, is the only diagnosed case in Jersey but it is believed to affect about one person in every 5,000. “The fact it goes so undiagnosed, there could be people who do have it and don’t know what is wrong,” she said.

Donegal News: Letterkenny man shares story to mark Rare Disease Day

March 5, 2023

Donegal News (Ireland). Letterkenny man shares story to mark Rare Disease Day – “Letterkenny man Michael MacGinty, who suffers with a rare blood disease, has shared his story to mark Rare Disease Day. He highlighted the importance of having a conversation about rare diseases, which he says are not as rare as rare sounds.”