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Cure HHT Announcements

Singapore General Hospital Certified as HHT International Treatment Center

March 8, 2023

Increasing access to specialized care is an important part of Cure HHT’s mission. We’ve made significant progress in the last 30+ years, but work remains to realize a future where every patient has access to expert care. This gap in care is particularly present for many in our international community, which is why we’re unveiling a new “International Treatment Center” program aimed at increasing the number of knowledgeable physicians and care teams around the globe…

PATH Clinical Trial – Now Recruiting!

February 28, 2023

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at several research centers across the United States. Find centers and check your eligibility…

KISS HHT goodbye this February!

February 14, 2023

February is Rare Disease Month and once again, you can honor someone special to you who is affected by HHT, by participating in our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day^®)!

For each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their battle to the disease, by collecting hearts and KISSES…

Thank You for an Amazing Year

December 30, 2022

We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.

If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.

NEW! Text to Give

December 21, 2022

You can now support Cure HHT this holiday season via text! As an added bonus, when you make a donation through your mobile device, you can choose to receive future HHT news and updates directly to your phone. Message & data rates may apply. Donate today to have your gift DOUBLED by a generous group of donors. To give, text “donate” to (410) 237-0199.

Giving Tuesday 2022

November 22, 2022

Giving Tuesday is the largest global day of generosity – where people around the world unite, encourage good, and support organizations that are near and dear to their hearts. It’s a meaningful day for us here at Cure HHT, as we couldn’t continue to push for progress without the generosity of our mighty and incredible community. You are the fuel that keeps us on the cutting edge of research and medicine! This #GivingTuesday, which is Tuesday, Nov. 29, we’ll be highlighting some of our standout young HHT scholars!

Blog: What the HHT?

Cure HHT Welcomes Cassi Friday, PhD

By Riley Blevins | January 5, 2023

Help Keep Us On the Cutting Edge

By Ashley Watkins | December 21, 2022

New Therapeutic Development Arm Takes Shape

By Ashley Watkins | December 12, 2022

Owning Our Future: Introducing Our New Therapeutic Development Arm

By Ashley Watkins | November 10, 2022

Development of HHT Centers of Excellence

By Ashley Watkins | August 25, 2022

Spreading Awareness 1 Mile at a Time

By Ashley Watkins | June 23, 2022

HHT in the News

Donegal News: Letterkenny man shares story to mark Rare Disease Day

March 5, 2023

Donegal News (Ireland). Letterkenny man shares story to mark Rare Disease Day – “Letterkenny man Michael MacGinty, who suffers with a rare blood disease, has shared his story to mark Rare Disease Day. He highlighted the importance of having a conversation about rare diseases, which he says are not as rare as rare sounds.”