Latest News Announcements, Blog Posts, News Articles Home » News & Resources » Latest News Cure HHT Announcements HHT in the News: “Canada Girl’s Rare Disease Inspires Her to Co-Author Book” SURVEY: COVID-19 and Rare Disease Research Cure HHT Virtual Walk! Register Now! Managing Stress and Emotional Hurdles in HHT (recorded) Virtual Meet-Up: New Cure HHT Resource Library (recorded) Cure HHT Spring 2020 Newsletter: Now Available! Cure HHT Official Health Updates: Coronavirus Disease (COVID-19) Virtual Meet-Up: COVID-19 “Mind Over Matter” (recorded) Blog: What the HHT? Courage By Cathleen Kinnear | March 5, 2020 It’s Hard being Rare! By Cathleen Kinnear | February 27, 2020 Just Breathe – Battling HHT By Janice Jones | February 11, 2020 “How the Healthcare Industry Failed my Daughter” By Cathleen Kinnear | November 6, 2019 Everyone Should Use Backpack Health! By Cassi Friday | September 4, 2019 How a Stroke Changed My Life By Cathleen Kinnear | June 26, 2019 HHT in the News HHT in the News: “Canada Girl’s Rare Disease Inspires Her to Co-Author Book” June 1, 2020 Stanford News Center: Patient Spotlight – Jennifer Cook and Nina Murphy-Cook March 11, 2020 HHT in the News: “World Rare Diseases Day: Three people on how their unusual conditions affect their lives” (Article 3) February 28, 2020 HHT in the News: “I have the same rare disease that killed my brother” February 25, 2020 Global Genes – Cure HHT’s Marianne Clancy Named “Rare Leader” February 13, 2020 HHT is Rare As One! February 4, 2020 Cleveland – “Woman Undergoes Brain Surgery to Remove Deadly AVM, Caused by Rare Genetic Condition” December 9, 2019 HHT in the News – Wisconsin November 18, 2019
