Upcoming LIVE Webinars

WEBINAR: The 50 State Challenge – An Introduction

When: March 28, 2018 from 7:00-7:30pm EST
Presented by: Allyson Clancy, Cure HHT Community Engagement Manager

Join Allyson Clancy for a 30-minute webinar as she walks us through the 50 State Challenge, why it is important for HHT patients and families and how to join the Challenge. A cure is on the horizon, we just need your engagement to change the face of this disease! There will be a live Q&A session following Allyson’s presentation!



WEBINAR: HHT Overview and Screening Guidelines

When: April 19, 2018 from 7:00-8:00pm EST
Presented by: Dr. Mollie Meek, Director at University of Arkansas Medical Sciences HHT Center of Excellence

Join Dr. Mollie Meek  for an introduction to the basic clinical features of HHT including the Curacao diagnostic criteria. This session will also discuss the clinical features of HHT for adults and children, general screening protocols at an HHT Center and an overview of medical terminology used when treating HHT. The presentation will be followed by a live Q&A session.



“What a wonderful webinar tonight about HHT, and how it affects the liver and the heart. Awesome!”


Brookville, PA

“I am a Nurse Practitioner and I learn so much from these webinars about my husband’s HHT. My two daughters have it as well.”


Kirksville, MO

"It is good to continually learn about HHT. I really appreciate these webinars. This is the second one and each has given new insight and information."


Ottawa, Canada

"I appreciate knowing that many people are working to improve life for families affected by HHT."


Wooster, Ohio

Past Webinars

Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)

February 12, 2018
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HHT Scientific Conference Summaries (recorded)

January 10, 2018
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Tangled Web of HHT (recorded)

December 11, 2017
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#OnMyOwn (recorded)

October 24, 2017
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HHT: Caring for the Younger Generation (recorded)

September 26, 2017
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Ask the Doctor

May 16, 2017
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What’s the Skinny on HHT? (recorded)

January 24, 2017
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In the Know – HHT and Kids (recorded)

June 14, 2016
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ABC’s of AVMs (recorded)

May 18, 2016
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Pumping Iron in HHT (recorded)

April 27, 2016
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AVM Progression and Regression – Findings from a Notch-Mediated Mouse Model of Brain AVM (recorded)

March 9, 2016
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Pulmonary Hypertension and HHT (recorded)

February 24, 2016
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Let’s Get Personal – HHT in Women (recorded)

February 4, 2016
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HHT Research Breakthroughs: What it Means For You (recorded)

November 11, 2015
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Nosebleed Management in HHT (recorded)

October 19, 2015
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What Does This All Mean to Me and My Family? (recorded)

June 3, 2015
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Pathophysiology of HHT and Advances in HHT Research (recorded)

April 28, 2015
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Cardiac and Liver Manifestations (recorded)

February 26, 2015
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Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)

February 11, 2015
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What are the Odds? The Importance of Genetic Testing in Families with HHT (recorded)

November 25, 2014
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