Upcoming LIVE Webinars & Meet-Ups
The live webinars are presented through Zoom. The webinar is typically viewed on your computer but you can also download the Zoom App to your smartphone or ipad. Additionally, please note that Virtual Meet-Ups are live-stream only, unlike the recorded Webinars, and are not available for later viewing unless otherwise indicated.
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Schedule
Bedside to Bench: How the HHT Community Drives Research Initiatives
Wed., November 10th 7:00 p.m. (ET)
Earlier this year, over 1,200 HHT patients, caregivers, clinicians and researchers alike all responded to surveys about their thoughts on all things HHT. Your voices were heard! Join Cassi Friday, Caregiver and Dr. Anthony Anzell as they present the survey findings and explain how the the HHT patient community drives research initiatives through the Cure HHT Research Network (CHRN). Learn how Cure HHT will use these survey findings to determine research priorities and build an HHT Research Roadmap.
Cassi Friday is a caregiver who’s husband and two of three children have HHT. She is currently completing her PhD from the University of Kentucky where she studies Alzheimer’s disease in the College of Medicine’s Physiology Department. Cassi is a passionate advocate for HHT patients and families and loves to help communicate science in fun, easy-to-understand ways.
Dr. Anzell is currently doing his post-doctorate research at the University of Pittsburgh conducting research under Dr. Beth Roman, and working to understand the genetic and molecular mechanisms that give rise to arteriovenous malformations in HHT. His goal: to develop clinically viable therapies for HHT patients. Dr. Anzell was 15 years-old when he was diagnosed with HHT and has since dedicated his life to finding a cure. Dr. Anzell is also a Cure HHT Board member.
