Webinars

Upcoming LIVE Webinars

Genetics: Unraveling Your DNA

May 2018  (Date TBD)
Presented by Jaime Jessen, BSc, MSc, CGC, CCGC

 

Learn about the inheritance pattern of HHT, identify your family gene mutation, discover the benefits and limitations of genetic testing for HHT, along with family planning options and the Genetic Information Nondiscrimination Act of 2008 (GINA).

“What a wonderful webinar tonight about HHT, and how it affects the liver and the heart. Awesome!”

MaryAnn

Brookville, PA

“I am a Nurse Practitioner and I learn so much from these webinars about my husband’s HHT. My two daughters have it as well.”

Alice

Kirksville, MO

"It is good to continually learn about HHT. I really appreciate these webinars. This is the second one and each has given new insight and information."

J

Ottawa, Canada

"I appreciate knowing that many people are working to improve life for families affected by HHT."

R

Wooster, Ohio

Past Webinars

HHT Overview and Screening Guidelines (recorded)

April 19, 2018
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The 50 State Challenge: An Introduction (recorded)

March 28, 2018
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Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)

February 12, 2018
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HHT Scientific Conference Summaries (recorded)

January 10, 2018
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Tangled Web of HHT (recorded)

December 11, 2017
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#OnMyOwn (recorded)

October 24, 2017
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HHT: Caring for the Younger Generation (recorded)

September 26, 2017
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Ask the Doctor

May 16, 2017
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What’s the Skinny on HHT? (recorded)

January 24, 2017
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In the Know – HHT and Kids (recorded)

June 14, 2016
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ABC’s of AVMs (recorded)

May 18, 2016
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Pumping Iron in HHT (recorded)

April 27, 2016
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AVM Progression and Regression – Findings from a Notch-Mediated Mouse Model of Brain AVM (recorded)

March 9, 2016
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Pulmonary Hypertension and HHT (recorded)

February 24, 2016
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Let’s Get Personal – HHT in Women (recorded)

February 4, 2016
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HHT Research Breakthroughs: What it Means For You (recorded)

November 11, 2015
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Nosebleed Management in HHT (recorded)

October 19, 2015
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What Does This All Mean to Me and My Family? (recorded)

June 3, 2015
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Pathophysiology of HHT and Advances in HHT Research (recorded)

April 28, 2015
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Cardiac and Liver Manifestations (recorded)

February 26, 2015
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