Upcoming LIVE Webinars & Meet-Ups
The live webinars are presented through Zoom. The webinar is typically viewed on your computer but you can also download the Zoom App to your smartphone or ipad. Additionally, please note that Virtual Meet-Ups are live-stream only, unlike the recorded Webinars, and are not available for later viewing unless otherwise indicated.
Can't make it at the scheduled time? Don't worry, you can sign up anyway to receive a link to the recorded version with exclusive early access! All webinars are recorded. Please check the details of the Virtual Meet-Up that you are interested in to see if it will be recorded.
February 1, 2023
6:00 pm (ET)
Join us as we delve into all of the exciting clinical research projects underway in HHT! Cassi Friday, PhD (Overview) will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial), and Brian Mangilog (Rare Genomes Project) will share more research projects and the potential impacts for patients. Advancements in research are not possible without the participation of patients. These various studies range from drug therapy trials to tissue donations and genetic testing.
This online education opportunity will conclude with a 30-minute Q&A session with the panel.
Registration is now closed. Check back on approximately 2/8 for access to the recorded webinar.
"Dr. Kasthuri's presentation was so easy to follow, understand and make sense of. I've been suffering badly with anemia and never understood why Ferritin levels were so important until now."
"What a wonderful webinar today! Answered so many of my questions... Kim was amazing and really loved all her advice, besides her own (and many of our) medical challenges!"
Fort Washington, PA
"Excellent information presented by the two physicians. I have learned everything I can on my on about iron deficiency anemia, but having these two doctors discuss it in an unhurried forum was very helpful to me."
“I am a Nurse Practitioner and I learn so much from these webinars about my husband’s HHT. My two daughters have it as well.”
"It is good to continually learn about HHT. I really appreciate these webinars. This is the second one and each has given new insight and information."
“What a wonderful webinar tonight about HHT, and how it affects the liver and the heart. Awesome!”
"I appreciate knowing that many people are working to improve life for families affected by HHT."