Webinars

Upcoming LIVE Webinars

WEBINAR: CureHHT.org – Your Guide to Everything HHT

June 20, 2018
4:00pm – 5:00pm (EDT)
Presented by Cure HHT

 

Join Cure HHT staffers, Nicole Schaefer, Allyson Clancy and Nolie Krock, as they help you navigate the new Cure HHT website. HHT is a multi-organ disorder which can be overwhelming. CureHHT.org provides everything you need to know about HHT. Walk through each section with us to see all of the resources Cure HHT has to offer. The presentation will be followed by a live Q&A session so we encourage you to come with questions.

June is HHT Awareness Month – what a perfect time to learn all that you can about the HHT website so you can educate yourself, your doctors and family members. 

Register

“What a wonderful webinar tonight about HHT, and how it affects the liver and the heart. Awesome!”

MaryAnn

Brookville, PA

“I am a Nurse Practitioner and I learn so much from these webinars about my husband’s HHT. My two daughters have it as well.”

Alice

Kirksville, MO

"It is good to continually learn about HHT. I really appreciate these webinars. This is the second one and each has given new insight and information."

J

Ottawa, Canada

"I appreciate knowing that many people are working to improve life for families affected by HHT."

R

Wooster, Ohio

Past Webinars

Genetics: Unraveling Your DNA (recorded)

May 22, 2018
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HHT Overview and Screening Guidelines (recorded)

April 19, 2018
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The 50 State Challenge: An Introduction (recorded)

March 28, 2018
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Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)

February 12, 2018
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HHT Scientific Conference Summaries (recorded)

January 10, 2018
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Tangled Web of HHT (recorded)

December 11, 2017
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#OnMyOwn (recorded)

October 24, 2017
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HHT: Caring for the Younger Generation (recorded)

September 26, 2017
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Ask the Doctor

May 16, 2017
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What’s the Skinny on HHT? (recorded)

January 24, 2017
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In the Know – HHT and Kids (recorded)

June 14, 2016
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ABC’s of AVMs (recorded)

May 18, 2016
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Pumping Iron in HHT (recorded)

April 27, 2016
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AVM Progression and Regression – Findings from a Notch-Mediated Mouse Model of Brain AVM (recorded)

March 9, 2016
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Pulmonary Hypertension and HHT (recorded)

February 24, 2016
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Let’s Get Personal – HHT in Women (recorded)

February 4, 2016
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HHT Research Breakthroughs: What it Means For You (recorded)

November 11, 2015
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Nosebleed Management in HHT (recorded)

October 19, 2015
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What Does This All Mean to Me and My Family? (recorded)

June 3, 2015
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Pathophysiology of HHT and Advances in HHT Research (recorded)

April 28, 2015
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