Webinars

Upcoming LIVE Webinars

Webinar: Screening and Treatment of Brain AVMs in HHT

Monday, March 25, 2019 7:00pm – 8:00pm EDT Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. Please join Dr. Issam Awad, Director of the University of Chicago HHT Center of Excellence, as he discusses the symptoms and therapeutic approaches to AVMs in the brain. The presentation will be followed by a live Q&A session so we encourage you to come with questions. Once you register for the webinar, you will receive a personal link for logging on, as well as a call-in number. You can access the webinar on your desktop, laptop, smartphone, tablet, or other device. Or, you can simply dial in by phone and listen. Can’t watch it that day? No problem! Still register and we’ll email you when the recording is available. There is no cost to register! 

Register Now

Webinar: Anemia and Iron Deficiency in HHT

May 15, 2019
7:00pm – 8:00pm EDT

Join Dr. Adrienne Hammil and she discusses the most effective ways to manage anemia in HHT patients. Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract.

Dr. Adrienne Hammill is Co-Director of the Cincinnati Children’s Hospital HHT Center of Excellence. She is trained in pediatrics and hematology/oncology and is particularly interested in bringing new and/or better medical therapy options to the treatment of vascular anomalies.

Once you register for the webinar, you will receive a personal link for logging on, as well as a call-in number. You can access the webinar on your desktop, laptop, smartphone, tablet, or other device. Or, you can simply dial in by phone and listen.

Can’t watch it that day? No problem! Still register and we’ll email you when the recording is available.

There is no cost to register! 

Register Now

“What a wonderful webinar tonight about HHT, and how it affects the liver and the heart. Awesome!”

MaryAnn

Brookville, PA

“I am a Nurse Practitioner and I learn so much from these webinars about my husband’s HHT. My two daughters have it as well.”

Alice

Kirksville, MO

"It is good to continually learn about HHT. I really appreciate these webinars. This is the second one and each has given new insight and information."

J

Ottawa, Canada

"I appreciate knowing that many people are working to improve life for families affected by HHT."

R

Wooster, Ohio

Past Webinars

Eating for Health: Dietary Choices that Impact Bleeding

January 16, 2019
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My HHT Tracker (recorded)

October 29, 2018
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CureHHT.org – Your Guide to Everything HHT (recorded)

June 20, 2018
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Genetics: Unraveling Your DNA (recorded)

May 22, 2018
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HHT Overview and Screening Guidelines (recorded)

April 19, 2018
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Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)

February 12, 2018
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HHT Scientific Conference Summaries (recorded)

January 10, 2018
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Tangled Web of HHT (recorded)

December 11, 2017
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#OnMyOwn (recorded)

October 24, 2017
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HHT: Caring for the Younger Generation (recorded)

September 26, 2017
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Ask the Doctor

May 16, 2017
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What’s the Skinny on HHT? (recorded)

January 24, 2017
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Pumping Iron in HHT (recorded)

April 27, 2016
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Pulmonary Hypertension and HHT (recorded)

February 24, 2016
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Let’s Get Personal – HHT in Women (recorded)

February 4, 2016
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Nosebleed Management in HHT (recorded)

October 19, 2015
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What Does This All Mean to Me and My Family? (recorded)

June 3, 2015
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Pathophysiology of HHT and Advances in HHT Research (recorded)

April 28, 2015
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Cardiac and Liver Manifestations (recorded)

February 26, 2015
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Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)

February 11, 2015
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