Upcoming LIVE Webinars & Meet-Ups
The live webinars are presented through Zoom. The webinar is typically viewed on your computer but you can also download the Zoom App to your smartphone or ipad. Additionally, please note that Virtual Meet-Ups are live-stream only, unlike the recorded Webinars, and are not available for later viewing unless otherwise indicated.
Can't make it at the scheduled time? Don't worry, you can sign up anyway to receive a link to the recorded version with exclusive early access! All webinars are recorded. Please check the details of the Virtual Meet-Up that you are interested in to see if it will be recorded.
Schedule
International HHT Guidelines
Webinar Series
Topic: Guidelines Overview & My HHT Care
Wed., March 3th | 7 p.m. (ET)
Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. Faughnan will take the audience through a brief description of the specific topic areas involved in HHT while preparing viewers for the upcoming topic specific Webinars launching in the coming weeks. Learn how to use the “My HHT Care” checklists (available in our Comprehensive Guide to Managing Your HHT booklet – copies available by request to Cure HHT) to ensure that you and your family members are receiving the best possible care for HHT.
This one-hour FREE Webinar will feature 30 minutes of physician presentations immediately followed by an additional 30-minute Q&A session.
International HHT Guidelines
Webinar Series
Topic: Anemia
Sat., March 13th | 12:00 p.m. (ET)
Join Dr. Raj Kasthuri, Director, UNC Chapel Hill HHT Center of Excellence and Dr. Hanny Al-Samkari, Associate Director, Massachusetts General Hospital HHT Center of Excellence as they discuss anemia and iron deficiency as it relates to HHT. Both doctors are renowned hematologists and will walk the audience through a comprehensive overview of what an anemia diagnosis means for HHT patients and the various treatment options available. Learn how to use the “My Anemia Care Checklist” for Anemia and Anticoagulation in HHT (also available in our Comprehensive Guide to Managing Your HHT booklet – copies available by request to Cure HHT) to ensure that you and your family members are receiving the best possible care for HHT.
With 50% of the HHT population affected by anemia and iron deficiency, you don’t want to miss this informative educational event in managing this troublesome manifestation of HHT. This one-hour FREE Webinar will feature 30 minutes of physician presentations immediately followed by an additional 30-minute Q&A session.
International HHT Guidelines
Webinar Series
Topic: GI Bleeding
Wed., March 17th | 7 p.m. (ET)
Join Dr. Murali Chakinala, Co-Director, Washington University HHT Center of Excellence and Dr. Vivek Iyer, Director, Mayo Clinic HHT Center of Excellence as they discuss how to recognize the signs and symptoms of GI bleeding in HHT. Drs. Chakinala and Iyer will further dissect this subject area by taking the audience through the diagnosis process and current favorable treatments in managing this complication of HHT. Learn how to use the “My GI Bleeding Care Checklist” (also available in our Comprehensive Guide to Managing Your HHT booklet – copies available by request to Cure HHT) to ensure that you and your family members are receiving the best possible care for HHT.
This one-hour FREE Webinar will feature 30 minutes of physician presentations immediately followed by an additional 30-minute Q&A session.
International HHT Guidelines Webinar Series
Topic: Pediatrics
Sat., May 1st | 12:00 p.m. (ET)
Join Dr. Andy White, Co-Director, St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Children’s Hospital HHT Center of Excellence as they discuss the new pediatric international HHT guidelines. While some manifestations of HHT, such as telangiectasia and nosebleeds, are age dependent and may be absent in young children with HHT, potentially serious and even life-threatening complications of pulmonary (lung) arteriovenous malformations (AVMs) and brain vascular formation’s (VM’s) can occur at any age. Drs. White and Hammill will take the audience through the guideline recommendations for screening and treatment.
Learn how to use the “My Child’s HHT Care Checklist” and the “My Teen Years HHT Care Checklist” (also available in our Comprehensive Guide to Managing Your HHT booklet – copies available by request to Cure HHT) to ensure that you and your family members are receiving the best possible care for HHT.
This one-hour FREE Webinar will feature 30 minutes of physician presentations immediately followed by an additional 30-minute Q&A session.
Nuts and Bolts of a Clinical Trial PATH-HHT Study
Wed., May 12th | 6:00 p.m. (ET)
This discussion will introduce the audience to clinical trials, including the factors that are considered when a clinical trial is designed, the different types of clinical trials, and the importance of clinical trials in developing new treatments for disease. We will also discuss in detail the PATH-HHT trial of pomalidomide for treatment of HHT as an example relevant to the HHT population. This one-hour FREE Webinar will feature 30 minutes of physician presentations immediately followed by an additional 30-minute Q&A session.
International HHT Guidelines
Webinar Series
Topic: Pregnancy & Women’s Issues
Mon., May 17th | 5:00 p.m. (ET)
Join Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology, Toronto HHT Centre of Excellence and Dr. Andrea Lausman, Maternal fetal medicine specialist, Toronto HHT Centre of Excellence as they discuss why pregnant woman with HHT should be assessed for their risk of pregnancy and delivery-related complications and have access to, as needed, a multidisciplinary maternal-fetal medicine team that includes HHT experts. Drs. Meffe and Lausman will take the audience through the guidelines recommendations for screening and treatment. In addition, Dr. Meffe will discuss how HHT may interact with menstrual issues. Learn how to use the Cure HHT “My Pregnancy and Delivery Care Checklist” (also available in our Comprehensive Guide to Managing Your HHT booklet– copies available by request to Cure HHT) to ensure that you and your family members are receiving the best possible care for HHT.
This one-hour FREE Webinar will feature 30 minutes of physician presentations immediately followed by an additional 30-minute Q&A session.
