Anemia/ Iron Deficiency
Resources addressing anemia/iron deficiency including causes, symptoms, and treatment options.
Related Resources
Bedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
Webinar – 2021In March 2020, Cure HHT was 1 of 30 organizations selected to participate in the Chan Zuckerberg Initiative (also known as CZI) Rare is One Project. This ambitious project is lifting up the work that patient communities are doing to accelerate resear…
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Giving hereditary haemorrhagic telangiectasia the attention it deserves
Article – 2021The Lancet Haematology. Author: Hanny Al-Samkari, MD. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreIron Replacement in HHT
Policy Statement – 2021Iron deficiency anemia is common in people with HHT with an estimated prevalence of 50%. Further, a number of people with HHT develop symptomatic iron deficiency without anemia. Iron deficiency is an under recognized and sub-optimally managed complic…
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Las Guías Internacionales de HHT: Anemia (Recorded)
Español, Webinar – 2021El Dr. Marcelo Serra, Internista y Director de la Unidad de HHT, Hospital Italiano de Buenos Aires y la Dra. Yesica Lijdens, Otorrinolaringóloga del HHT Hospital Italiano de Buenos Aires, brindan información sobre los conceptos de anemia aplicados al…
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International HHT Guidelines – Overview (Recorded)
Webinar – 2021Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…
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WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Español, Webinar – 2021Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT del Hospital Italiano de Buenos Aires, brinda una visión general de HHT que es comprensible…
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Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
Webinar – 2021A rare opportunity to receive factual information surrounding COVID-19 and HHT from leading HHT experts who have been on the frontlines since the very beginning of the COVID-19 pandemic. This interdisciplinary group of experts discuss the multiple as…
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Patient Symptom & Care Checklists
Provider Tool – 2020Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs….
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Ask The Doctor: Tackling Anemia and Iron Deficiency (Recorded)
Webinar – 2020Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT induced anemia and iron deficiency. With anemia affecting 50% of people diagnosed with HHT, and many not even aware that they have anemia. Watch our “Ask the Doctor” series…
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Physician Fact Sheet
Fact Sheet – 2020A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…
MoreRare Coagulation Disorders Resource Room – HHT
Scientific Literature – 2020Rare Bleeding Disorders – HHT Overview.
MoreBevacizumab (Avastin) Use In HHT
Policy Statement – 2020Hereditary hemorrhagic telangiectasia (HHT, also known as OslerWeber-Rendu Syndrome) is a condition that is characterized by focal proliferation of blood vessels (vascular malformations) in multiple organs. Two of the most commonly affected organs in…
MoreBevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia
Scientific Literature – 2020PLoS One. Authors: Carolina Vázquez, María Laura Gonzalez, Augusto Ferraris, Juan Carlos Bandi, and Marcelo Martín Serra. This article is available for public use and does not require purchase. Click to view the full article.
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The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreExecutive Summary – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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