International HHT Guidelines: Pulmonary AVMs (Recorded)

Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical Sciences HHT Center of Excellence discuss how to recognize the signs and symptoms of Pulmonary (Lung) AVMs in HHT. Drs. Conrad and Meek further dissect this subject area by taking the audience through the diagnosis process and current favorable treatments in managing this complication of HHT. This one-hour webinar features 40 minutes of physician presentations immediately followed by an additional 20-minute Q&A session.

In addition, learn how to use the Cure HHT “My Pulmonary (Lung) AVMs Care Checklist” to ensure that you and your family members are receiving the best possible care for HHT. All HHT Care Checklists are available in our Comprehensive Guide to Managing Your HHT booklet – Request your complimentary copy today.

The International Guidelines for Patient Care page on the Cure HHT website provides a complete listing of all topic areas and resource materials.

 

Key points from webinar:

  • Pulmonary AVMs remove the normal filters in the lungs, allowing bubbles, carbon dioxide, bacteria, and small blood clots to pass through
  • Blood clots can cause: TIA/Stroke, brain abscess, bone infection, and heart attack
  • Screen for pulmonary AVMs in asymptomatic children with HHT
  • Treatment of pulmonary AVMs should be considered if ≥ 3mm (children) or ≥ 2-3mm (adults)
  • Modern coils do not pose problems for MRI scans
  • Long-term advice to patients with documented pulmonary AVMs (treated or untreated) or patients that have not had their lungs screened: prophylactic antibiotics is necessary for procedures with the risk of bacteria (i.e., dental cleaning, colonoscopy, etc.)