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CureHHT
  • HHT
    • What is HHT
      • Signs and Symptoms
      • Medical Summary
      • History of HHT
      • FAQ
    • Diagnosis & Treatment
      • International HHT Guidelines
      • Diagnostic Criteria for HHT
      • Genetic Testing for HHT
      • Screening Guidelines
      • Treatment of HHT
      • Newly Diagnosed
      • Nosebleed Severity Score
    • Get Support
      • HHT Treatment Centers
      • My HHT Tracker App
      • Find a Doctor
      • Resource Library
      • Webinars
      • Patient & Physician Conferences
      • International Patient Support
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  • Guidelines
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Liver

Resources addressing the treatment of HHT-related issues that affect the liver including liver AVMs, liver failure, and liver transplantation.

Provider Topics
  • Anemia/ Iron Deficiency
  • Brain
  • Clinicians First Time Seeing a Patient with HHT
  • Drug Therapy
  • Gastrointestinal
  • Genetics
  • Heart
  • HHT in children
  • Insurance
  • International Guidelines for Screening and Treatment
  • Liver
  • Lungs
  • Nosebleeds or Epistaxis
  • Pregnancy & Women’s Issues
  • Skin
  • Useful Links to Outside Organizations
Advanced Search

Related Resources

Patient Symptom & Care Checklists

Provider Tool – 2020

Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs….

More
Ask the Doctor

Ask the Doctor: HHT and Pulmonary Hypertension (recorded)

Webinar – 2020

Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver Programs at the Pulmonary Hypertension Association, discuss the dual diagnoses of Hereditary Hemorrhagic Telangiectasia (HHT) and Pulmonary Hypert…

More

PH and HHT Patient Brochure

Brochure – 2020

Did you know that if you have HHT you are at risk for Pulmonary Hypertension? The Pulmonary Hypertension Association developed a brochure for PH and HHT patients that provides answers for the most commonly asked questions. There are several HHT Cente…

More

Bevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia

Scientific Literature – 2020

PLoS One. Authors: Carolina Vázquez, María Laura Gonzalez, Augusto Ferraris, Juan Carlos Bandi, and Marcelo Martín Serra. This article is available for public use and does not require purchase. Click to view the full article.

More

The Science Behind the 2019 Scientific Conference (recorded)

Webinar – 2020

Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…

More

Abstracts – 13th HHT International Scientific Conference (2019)

Scientific Literature – 2019

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

More

HHT Scientific Conference Summaries (recorded)

Webinar – 2018

  Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…

More

Abstracts – 12th HHT International Scientific Conference (2017)

Scientific Literature – 2017

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

More

Executive Summary – 12th HHT International Scientific Conference (2017)

Scientific Literature – 2017

Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…

More

Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights

Scientific Literature – 2017

Author: Veronique M.M. Vorselaars. This article is available for public use and does not require purchase. Click to view the full article.

More

Abstracts – 11th HHT International Scientific Conference (2015)

Scientific Literature – 2015

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

More

Executive Summary – 11th HHT International Scientific Conference (2015)

Scientific Literature – 2015

Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…

More

Cardiac and Liver Manifestations (recorded)

Webinar – 2015

Dr. Kevin Whitehead, Co-Director at the University of Utah HHT Center of Excellence, covers various ways that the heart can be affected in HHT, including heart failure due to liver AVMs and pulmonary hypertension. The presentation is followed by a Q…

More

Bevacizumab: Finding its Niche in the Treatment of Heart Failure Secondary to Liver Vascular Malformations in HHT

Scientific Literature – 2013

Hepatology. Authors: Lawrence H. Young, Katharine J. Henderson, Robert I. White, and Guadalupe Garcia-Tsao. This article is available for public use and does not require purchase. Click to view the full article.

More

Hepatobiliary and Pancreatic: Pancreatic Vascular Malformations in HHT

Scientific Literature – 2012

Journal of Gastroenterology and Hepatol. Authors: K. Lim, W. Tam, C. Worthley, and N. Q. Nguyen. This article is available for public use and does not require purchase. Click to view the full article.

More
  • Next

Related News

February 2, 2020

Recorded WEBINAR: The Science Behind the 2019 Scientific Conference

Now available!

Everyone Should Use Backpack Health!

September 4, 2019

2019 Scientific Conference Recap

August 26, 2019

Comprehensive HHT Resource: Living with HHT Book

January 17, 2019

My HHT Tracker iOS App is Ready to Download!

September 28, 2018

Living with HHT Book

May 9, 2018
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