Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is a genetic blood vessel disorder that affects approximately 1.4 million worldwide and yet remains largely undiagnosed. The familial and societal impact of HHT on a national and global scale is immeasurable.
The success of the Cure HHT scientific and medical education programs, along with our awareness activities, would not be possible without the financial support of the HHT community and our sponsors.
We invite you to join our list of supporters by reviewing the Cure HHT Partnership Opportunities. Questions may be directed to Marisa Maccia, at 410-357-9932 or [email protected].
Cure HHT Partnership Opportunties
In 2018, Cure HHT will host 2-3 regional medical conferences to educate patients and physicians in geographic areas that are underserved by the medical community but have HHT Centers of Excellence in neighboring states. These conferences are the perfect opportunity to share information with patients and physicians so they can take the initiative to make informed decisions about the treatment and management of this disease.
- Increase your social media followers; broadcast your proud partnership with Cure HHT
- Showcase your products and services by distributing samples or promotional materials
- Promote presentations and activities specific to your niche of the HHT medical community
Connect with researchers unraveling the mysteries of HHT mechanisms of disease and discovering potential therapies for patients around the world. The 13th HHT International Scientific Conference will take place in 2019, get more exposure to this community by becoming a sponsor, exhibitor or advertiser.
- Directly reach global opinion leaders
- Increase your visibility and build brand awareness through electronic exposure to 8,000 healthcare professionals, researchers, and patients worldwide
- Integrated meeting and exhibit space to facilitate greater networking and
relationship building with the HHT community
- Partner with the only not-for-profit organization in the world committed to
serving those with HHT and bringing together international thought
leaders working collaboratively to find a cure for HHT
Cure HHT recently celebrated 25 years of building awareness of HHT, educating, the public and medical professionals, leveraging funding for research, and advocating for patients and families affected by the disease.
Our new website showcases our tireless work to make an impact on the medical, scientific and patient communities. Special features include a comprehensive resource library with fact sheets, webinars, scientific literature, and more; sections on Understanding HHT and what a newly diagnosed person needs to know; and an interactive database listing knowledgeable doctors throughout North America.
Through HHT Walks and Family Days, Cure HHT is able to spread awareness and knowledge about this disease to others, and help those who are unsure about their diagnosis to learn more by visiting HHT medical specialists. These special days create and strengthen a community so that no one person feels alone with this diagnosis.
Join us so we can all make a difference in the lives of those who have HHT!
Visit our website or download our PDF to find out how to partner with us for our HHT Walks and Family Days.