Every person has a story to tell. Let's tell yours about HHT.
Sharing your HHT story strengthens and empowers our community.
It can make all the difference to know you’re not alone when living with a rare disease like HHT.
Join your voice with thousands of others to spread awareness about HHT and show others that they are not alone in their HHT journey.
Submit Your Story
We've created a form to make sharing your story easy! Once it is completed, your story will be available to help raise awareness about this disease.
Our HHT Blog: What the HHT
A special space dedicated to HHT patients, doctors, family members and friends just like you who to share photos, videos and stories from around the world about their experience.