
Pregnancy & Women’s Issues
Resources for understanding and treating issues that affect women with HHT including pregnancy, menopause, and birth control.
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Pregnancy & HHT
Fact Sheet – 2020Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.
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My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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My HHT Pregnancy & Delivery Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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IVF and Preimplantation Genetic Testing for HHT (recorded)
Webinar – 2019Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has H…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Let’s Get Personal – HHT in Women (recorded)
Webinar – 2016Dr. Els de Gussem, Director of the HHT Center of Excellence at Grace Hospital AMC in Winnipeg, Canada, takes an in-depth look at the effects of HHT on the changing female body. She discusses the impact of birth control, pregnancy and menopause as wel…
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreOutcomes of Pregnancy in Women with HHT
Scientific Literature – 2014Obstetrics & Gynecology. Authors: de Gussem, Els M. MD; Lausman, Andrea Y. MD, FRCPC; Beder, Aarin J. MD, CFPC; Edwards, Christine P. BSc; Blanker, Marco H. MD, PhD; Terbrugge, Karel G. MD, FRCPC; Mager, Johannes J. MD, PhD; Faughnan, and Marie E. MD…
MoreHereditary Hemorrhagic Telangiectasia and Risks for Adverse Pregnancy Outcomes
Scientific Literature – 2012American Journal of Medical Genetics. Authors: Karen Wain, Karen Swanson, William Watson, Elysia Jeavons, Amy Weaver, and Noralane Lindor. This article can be purchased directly from the publisher. Click to view the article description and purchase o…
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International HHT Guidelines: Pregnancy & Women’s Issues
International HHT Guidelines Webinar Series Topic: Pregnancy & Women’s Issues Mon., May 17th | 5:00 p.m. (ET) Join Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology,…

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