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Cure HHT Canada

Cure HHT Canada is a registered, tax-deductible charitable organization in Canada.  The establishment of Cure HHT Canada marks a concentrated effort to expand and increase support of our community in Canada. Supporting Cure HHT Canada will facilitate scholarships to young Canadian researchers and physicians, certify new centers, and support Canadian patient conferences and educational events…

Angel Flight NE

Angel Flight NE is a non-profit organization providing FREE medical air transportation for individuals with limited financial resources, including those suffering from rare diseases, to obtain life-saving medical treatment. Angel Flight NE’s primary service area covers 9 states including Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, and Vermont. However, they…

No-Cost Genetic Testing for HHT and Other Rare Diseases: Rare Genomes Project

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected singe gene disorders who do not have a genetic diagnosis. The goal of their project is two-fold: (1) provide access to testing for families that are genetically undiagnosed and (2) discover previously un-identified…

Meta | Science Discovery Platform

Meta is a free research discovery tool from the Chan Zuckerberg Initiative, providing a faster way to understand and explore science through personalized feeds. Meta puts biomedical research in context so you can advance your work or take it in new directions. With Meta, spend less time searching and more time exploring the topics, findings,…

PubMed – US National Library of Medicine National, NIH

PubMed – NIH National Library of Medicine: National Center for Biotechnology Information and comprising more than 30 million citations for biomedical literature from Medline, including full-text content.

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