Join us in taking steps to promote HHT Awareness!

Global HHT Awareness Day is June 23

How many steps will you take for HHT?

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
of people with HHT are undiagnosed

What's Happening


Hot off the Press! Spring Newsletter 2018 v2


WEBINAR: CureHHT.org – Your Guide to Everything HHT


Research Funding Announcement: Vascular Malformations DOD Grants


Cure HHT Conference

Fly for HHT 2

Sophia’s Fly for HHT Fundraiser


Why Was This Teenager Bleeding So Excessively?