UltraTri for HHT

Dr. Anthony Anzell, Cure HHT’s newest recipient of the Compassionate Champion award, Board Member, Researcher and HHT patient is gearing up for another one of his, as he likes to call it, “Crazy Events.”  Anthony and five of his friends, have created their bigger version of the Ironman competition with an Ultra-Tri, taking place August…

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Barrow Neurological Institute named new HHT Center of Excellence

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of training, mentor center communications and a site visit from Cure HHT’s Center of Excellence (COE) Committee, Barrow Neurological Institute is named the 30th HHT CoE in North…

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Cure HHT Spring 2021 Newsletter: Now Available!

Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as a pdf or Flipbook.

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UltraTri for HHT

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Barrow Neurological Institute named new HHT Center of Excellence

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Cure HHT Spring 2021 Newsletter: Now Available!

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New HHT-HTC Treatment Centers

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Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

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30 Years Strong Highlights

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Strides for Strength: Virtual Walk

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RARE GENOMES PROJECT: Genome Sequencing for Rare Disease

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

International HHT Guidelines

EXPLORE RECOMMENDATIONS BY TOPIC AREA, VIEW CUSTOM CARE CHECKLISTS, AND MUCH MORE.

Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed