THE CURE HHT RESOURCE LIBRARY

The one stop shop for all HHT Resources!

SHARE YOUR HHT STORY

We all have a story to tell.

JOIN A NATIONAL MOVEMENT

We're changing the future of HHT with the 50 State Challenge!

WHAT THE HHT?

A blog for the HHT Community.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed

What's Happening

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Cure HHT Conference: Michigan

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HHT Recognized in WebMD Article!

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Marianne Clancy Interview on Fox 45 News Baltimore

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Hot off the Press! Spring Newsletter 2018 v2

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Why Was This Teenager Bleeding So Excessively?

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The First Comprehensive Book on “Living with HHT”