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MY HHT TRACKER IS HERE!

A FREE app for tracking and managing your HHT!

Now available WORLDWIDE on iOS!

IN OUR LIFETIME

Watch John and Suzanne's story and learn more about how HHT changed their lives.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed

What's Happening

HHT App (2)

My HHT Tracker App – Download Now!

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SURVEY: My HHT Tracker

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Comprehensive HHT Resource: Living with HHT Book

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7th Annual Night of Hope to Benefit Cure HHT

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Webinar: Screening and Treatment of Brain AVMs in HHT

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HHT International Scientific Conference