Marianne Clancy
Marianne Clancy, Executive Director Cure HHT

A Message from Cure HHT Executive Director, Marianne Clancy

To our HHT Community: Two years ago, we coined the phrase #InThisTogether as part of our annual year-end appeal.  Now more than ever, this simple phrase has been on our minds and is driving all that we do during these unprecedented times surrounding the outbreak of the Coronavirus (COVID-19).  The impact COVID-19 has had on our communities, HHT patients, physicians, and Cure HHT staff has definitely been something we never thought we’d encounter in our lifetime.  With that being said, I wanted to connect with you directly and to put your mind at ease knowing that we are truly #InThisTogether with our entire HHT community as we continue to navigate uncharted territory, not only as an organization, but as a community.

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Cure HHT & Backpack Health

Cure HHT has partnered with Backpack Health to help individuals and families with HHT. We are excited to offer the Backpack app, designed for Cure HHT, as a FREE, IOS, Android and Web-friendly tool!

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed