JOIN A NATIONAL MOVEMENT

WE'RE CHANGING THE FUTURE OF HHT 

WITH THE 50 STATE CHALLENGE

 

Our 50 State Challengers Are Everywhere

Check out our map of 50 State Challengers! 

Do Something Fun!

Take on the 50 State Challenge and Make it Your Own!

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed

What's Happening

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Research Funding Announcement: Vascular Malformations DOD Grants

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HHT Boston Walk and Family Day

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HHT NYC Walk and Family Day

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HHT Chicago Walk and Family Day

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BUTI Yoga Class to Benefit HHT

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9th Annual Stoner Open to Benefit Cure HHT