WMAR Baltimore: Musician with rare disease overcomes health scare

March 9, 2022 | WMAR Baltimore | By Abby Isaacs. Musician with rare disease overcomes health scare – “A rare disease turned a Maryland man’s life upside down and it all started with one symptom. Now that he has a treatment plan that works, he’s sharing his story, hoping it helps others to get diagnosed early.”…

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Strides for Strength: Register Now

Join members of the HHT community around the world for our 3rd annual global virtual walk for a cure! We are excited to officially kick off registration for our 3rd annual Strides for Strength – Virtual Walk for a Cure on June 4, 2022. This year, there are even more ways to get involved – you can walk,…

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13th Annual Stoner Open

13th Annual Stoner Open July 8, 2022 | 1:30 p.m. (EST) Farmstead Golf & Country Club Spend the day on the green to support Cure HHT! Join Steve Stoner and friends at the Farmstead Golf & Country Club in Lafayette, NJ for the 13th year in a row to support an important cause. Let’s make…

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Young, Mike - wmar2news 5.16.22 (photo by Tranise Foster)

WMAR Baltimore: Musician with rare disease overcomes health scare

SFS22 - use for social share

Strides for Strength: Register Now

Golfer putting

13th Annual Stoner Open

Federal Funding

Federal Funding Secured for U.S. Centers of Excellence

Frontlines - March 2022_cvr_web

Cure HHT Scientific Newsletter

CHRN 2022

CHRN: Creating a Roadmap for the Future

James, Kate - Business Insider 3.2022

Business Insider: 39-year-old mother of three in the UK, suffered from daily nosebleeds

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International HHT Guidelines


Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
of people with HHT are undiagnosed