New Webinar! CHRN Survey Results

Bedside to Bench: How the HHT Community Drives Research Initiatives Wed., November 10th 7:00 p.m. (ET) Earlier this year, over 1,200 HHT patients, caregivers, clinicians and researchers alike all responded to surveys about their thoughts on all things HHT. Your voices were heard! Join Cassi Friday, Caregiver and Dr. Anthony Anzell as they present the survey…

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Shop for a cause. Shop for a cure. Shop Cure HHT! 

Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in time for the holidays! Shop from an assortment of items including t-shirts, notepads and masks. And the best part, 100% of the proceeds go to…

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International HHT Guidelines: Brain Vascular Malformations (VMs) (Recorded)

International HHT Guidelines Online Education Series Topic: Brain Vascular Malformations (VMs) Tue., September 21 | 7:00 p.m. (ET) Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she discusses Brain Vascular Malformations (VMs) as they relate to HHT. Dr. Faughnan is a renowned HHT specialist and will walk the audience through a comprehensive…

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CHRN - Data Analysis 2021

New Webinar! CHRN Survey Results

Cure HHT Store_webpost 1-01

Shop for a cause. Shop for a cure. Shop Cure HHT! 

Guidelines Series -12-Faughnan

International HHT Guidelines: Brain Vascular Malformations (VMs) (Recorded)

Liver Imaging_webinar2

Physician Webinar: The Role of Liver Imaging in HHT (Recorded)

69 WFMZ-TV News - logo2

WFMZ-TV 69 News reports on HHT-HTC Openings

CDC Public Health Webinar Series_HHT 2021_web (AMW)

CDC Features HHT in Popular Webinar Series

Anzell - UltraTri

UltraTri for HHT

Barrow CoE3

Barrow Neurological Institute named new HHT Center of Excellence

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

International HHT Guidelines

EXPLORE RECOMMENDATIONS BY TOPIC AREA, VIEW CUSTOM CARE CHECKLISTS, AND MUCH MORE.

Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed