FB Live Event: Back to School

Join our Facebook Live! As you get your children geared up and ready to head back to school, join us on Wednesday, Aug. 17 at 12 pm (ET) for a Facebook Live featuring Cure HHT Chief Medical Officer, Scott Olitsky, MD, and school nurse, Leslie A. Perry, RN, MS. The duo will cover a range…

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14th HHT International Scientific Conference

On behalf of the Organizing Committee, we would like to invite you to join us in Estoril, Cascais, Portugal for the 14th HHT International Scientific Conference. We will host a Welcome Reception on September 28th and scientific sessions on September 29-October 2nd, 2022.  The program this year will feature several outstanding keynote speakers, multiple cross-disciplinary sessions, extensive…

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UF Health named HHT Center of Excellence

Cure HHT is excited to announce that UF Health has been named the first HHT Center of Excellence in Florida and the 31st CoE in North America. Cure HHT recognizes hospitals equipped with the personnel, expertise, commitment and resources to provide comprehensive evaluation, treatment and education to individuals with HHT and their families. Recognition as an…

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FB Live BTS 2022

FB Live Event: Back to School

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14th HHT International Scientific Conference

UF CoE

UF Health named HHT Center of Excellence

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HHT Global Awareness Day

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PH & HHT - Chakinala

PH & HHT – Signs, Symptoms
& Disease Management (Recorded)

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Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

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Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

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Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed