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Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods

Calling all foodies! Grab your apron and head to the kitchen to join registered Dietitian Nutritionist Kat Benson for our most sizzling online education opportunity yet, as she leads you through an interactive cooking demonstration! Kat will discuss the importance of iron in the body, the correlation between iron deficiency and HHT, the best dietary sources of iron, and everyday foods that can trigger bleeding…

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Singapore General Hospital Certified as HHT International Treatment Center

Increasing access to specialized care is an important part of Cure HHT’s mission. We’ve made significant progress in the last 30+ years, but work remains to realize a future where every patient has access to expert care. This gap in care is particularly present for many in our international community, which is why we’re unveiling a new “International Treatment Center” program aimed at increasing the number of knowledgeable physicians and care teams around the globe…

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Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods

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Singapore General Hospital Certified as HHT International Treatment Center

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Donegal News: Letterkenny man shares story to mark Rare Disease Day

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PATH Clinical Trial – Now Recruiting!

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Celebrate Rare on Rare Disease Day

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KISS HHT goodbye this February!

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Online Education: Research Roundtable (RECORDED)

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Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

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Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

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Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

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International HHT Guidelines

EXPLORE RECOMMENDATIONS BY TOPIC AREA, VIEW CUSTOM CARE CHECKLISTS, AND MUCH MORE.

Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

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1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed
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