New HHT-HTC Treatment Centers

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine Hemophilia and Coagulation Disorders Program, as well as the Indiana Hemophilia & Thrombosis Center, Hemophilia Treatment Center (HTCs) are now operational and accepting new HHT patients! Thanks to a new program proposed by Cure HHT and funded by the CDC, Cure…

Learn More >>

Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full episode on Wednesday 6/23, HHT Awareness Day! This FREE podcast will be available through the Biorasi website and on all major podcast streaming platforms including…

Learn More >>

30 Years Strong Highlights

With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few of the many successes that donors like you have made possible! Together, we have built an amazing foundation – expanding expert clinical access, funding research,…

Learn More >>
New HHT-HTC Centers - Indiana & Michigan_web image

New HHT-HTC Treatment Centers

Few-&-Far-Between-Podcast-Website-Graphic (approved)

Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

30th Anniversary Logos_Final_web

30 Years Strong Highlights

30th Anniversary Celebration_image3

30th Anniversary Celebration

Guidelines Series - 10 - Diagnosis

International HHT Guidelines: Diagnosis of HHT

Banner_web box

Strides for Strength: Virtual Walk


RARE GENOMES PROJECT: Genome Sequencing for Suspected Rare Disease

Golfer putting

12th Annual Stoner Open

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

International HHT Guidelines


Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
of people with HHT are undiagnosed