“What is HHT?” It’s a question Marijo McCune gets asked often, and it’s exactly what she hoped to accomplish when she made the decision to create the license plate that reads, ‘CURE HHT.’ “Though I may never know how many people have asked Google [What is HHT], I’m sure there’s been many. They say curiosity…Learn More >>
HHT Global Awareness Day (June 23rd) Get loud and #LetTheWorldHearUs In recognition of awareness day, we’re giving a 10% discount on all items purchased from our store on June 23rd! Why 10%, you ask? It’s estimated that only 10% of HHT patients around the world are diagnosed today. While HHT can be a brutal and…Learn More >>
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.