Strides for Strength: Virtual Walk

Our 2nd Annual Global Walk for a Cure—Strides for Strength—is back for another exciting year and we are doing things BIGGER and BETTER than before! Grab your walking shoes, round up your friends and family, and leash your furry friend to start clocking those miles for our largest show of strength this year. Register to…

Learn More >>

International HHT Guidelines: Pulmonary (Lung) AVMs

International HHT Guidelines Webinar Series Topic: Pulmonary (Lung) AVMs Tues., May 25th | 7:00 p.m. (ET) Join Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical Sciences HHT Center of Excellence as they discuss how to recognize the signs and symptoms…

Learn More >>

NEW Webinar: Nuts and Bolts of a Clinical Trial – PATH-HHT Study

Nuts and Bolts of a Clinical Trial PATH-HHT Study Wed., May 12th | 6:00 p.m. (ET)   This discussion will introduce the audience to clinical trials, including the factors that are considered when a clinical trial is designed, the different types of clinical trials, and the importance of clinical trials in developing new treatments for…

Learn More >>
Banner_web box

Strides for Strength: Virtual Walk

Guidelines Webinar Series

International HHT Guidelines: Pulmonary (Lung) AVMs

PATH Webinar

NEW Webinar: Nuts and Bolts of a Clinical Trial – PATH-HHT Study

Guidelines Webinar Series - Pediatrics

International HHT Guidelines: Pediatrics (Recorded)


PATH – Now Recruiting!

Meta Blog

Meta: Accelerating Research on Rare Diseases

Zebra Landscape_web_box

Lift Your Heart for HHT Celebration Kickoff!

HHT-Ireland-Women-in-Science250 - McLoughlin

Women in Science Day 2021 – International

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

International HHT Guidelines


Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
of people with HHT are undiagnosed