Our 2nd Annual Global Walk for a Cure—Strides for Strength—is back for another exciting year and we are doing things BIGGER and BETTER than before! Grab your walking shoes, round up your friends and family, and leash your furry friend to start clocking those miles for our largest show of strength this year. Register to…Learn More >>
International HHT Guidelines Webinar Series Topic: Pulmonary (Lung) AVMs Tues., May 25th | 7:00 p.m. (ET) Join Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical Sciences HHT Center of Excellence as they discuss how to recognize the signs and symptoms…Learn More >>
Nuts and Bolts of a Clinical Trial PATH-HHT Study Wed., May 12th | 6:00 p.m. (ET) This discussion will introduce the audience to clinical trials, including the factors that are considered when a clinical trial is designed, the different types of clinical trials, and the importance of clinical trials in developing new treatments for…Learn More >>
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.