Lift Your Heart for HHT Celebration Kickoff!

Help our rare disease mascot flight! February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Lift Your Heart for HHT tribute celebration from February 22 through February 28 (Rare Disease Day®), for each donation made, we’ll honor your loved ones who are either affected by HHT…

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NEW Webinar: Nuts and Bolts of a Clinical Trial – PATH-HHT Study

Nuts and Bolts of a Clinical Trial PATH-HHT Study Wed., May 12th | 6:00 p.m. (ET)   This discussion will introduce the audience to clinical trials, including the factors that are considered when a clinical trial is designed, the different types of clinical trials, and the importance of clinical trials in developing new treatments for…

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Women in Science Day 2021 – International

“HHT Ireland reminds us that women and girls play a critical role in science and technology communities and that their participation should be strengthened.” HHT Ireland talks to Petronella McLoughlin, an HHT patient who is a Senior Finite Scheduler with MSD Biotech, Dublin. McLoughlin notes: “It is exciting to be among those who influence therapeutical…

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Lift Your Heart for HHT Celebration Kickoff!

PATH Webinar

NEW Webinar: Nuts and Bolts of a Clinical Trial – PATH-HHT Study

HHT-Ireland-Women-in-Science250 - McLoughlin

Women in Science Day 2021 – International

Card1_Cure HHT and RDD Branded

Rare Disease Month

Book Club

Talk Circle: Living With HHT Virtual Book Club Event

Backpack - Nosebleed Tracking

NEW Feature – Nosebleed Tracking with Backpack Health

PATH_Logo

PATH – Now Recruiting!

Washington DC_Victory

A WIN on Capitol Hill for HHT!

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

International HHT Guidelines

EXPLORE RECOMMENDATIONS BY TOPIC AREA, VIEW CUSTOM CARE CHECKLISTS, AND MUCH MORE.

Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed