International HHT Guidelines: Brain Vascular Malformations (VMs)

International HHT Guidelines Online Education Series Topic: Brain Vascular Malformations (VMs) Tue., September 21 | 7:00 p.m. (ET) Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she discusses Brain Vascular Malformations (VMs) as they relate to HHT. Dr. Faughnan is a renowned HHT specialist and will walk the audience through a comprehensive…

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Physician Webinar: The Role of Liver Imaging in HHT (Recorded)

Liver involvement occurs in approximately 75% of people with HHT. While many people are asymptomatic, the complications associated with liver involvement have historically been under diagnosed. These complications include arterioportal shunting leading to portal hypertension and arteriosystemic shunting leading to high output cardiac failure (HOCF). HOCF occurs much more frequently than has previously been considered.…

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WFMZ-TV 69 News reports on HHT-HTC Openings

There’s nothing we relish more than seeing news coverage about HHT. We were so excited to have WFMZ-TV Channel 69 report on our two newest HHT-HTC Treatment Centers that opened in Indiana and Michigan! Not only did the reporting share the good news about access to care but gave an overview of HHT and its…

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Guidelines Series -12-Faughnan

International HHT Guidelines: Brain Vascular Malformations (VMs)

Liver Imaging_webinar2

Physician Webinar: The Role of Liver Imaging in HHT (Recorded)

69 WFMZ-TV News - logo2

WFMZ-TV 69 News reports on HHT-HTC Openings

CDC Public Health Webinar Series_HHT 2021_web (AMW)

CDC Features HHT in Popular Webinar Series

Anzell - UltraTri

UltraTri for HHT

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Barrow Neurological Institute named new HHT Center of Excellence

Newsletter - Web box

Cure HHT Spring 2021 Newsletter: Now Available!

New HHT-HTC Centers - Indiana & Michigan_web image

New HHT-HTC Treatment Centers

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International HHT Guidelines

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Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed