Be part of uncovering the real impact of HHT
Cure HHT and Diagonal Therapeutics are teaming up to uncover the hidden challenges and daily realities of living with HHT.
If you or someone you know is living with HHT, this remote, observational study offers a unique chance to help researchers see what living with HHT truly looks like. Your involvement will help uncover how HHT affects daily life, healthcare needs, and overall quality of life.
HHT affects more than 1.4 million people worldwide and is the 2nd most common genetic bleeding disorder in the U.S. But it is still often misdiagnosed and misunderstood.
Since our inception in 1991, we’ve worked tirelessly to raise awareness, improve treatments, and increase patient access to life-saving care.
Impact by the numbers.
We drive science forward through government advocacy, seed grants, and other means. Turning your donations into millions of dollars dedicated to funding new treatments, technology, and drugs.
28 seed grants
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
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