Bedside to Bench: How the HHT Community Drives Research Initiatives Wed., November 10th 7:00 p.m. (ET) Earlier this year, over 1,200 HHT patients, caregivers, clinicians and researchers alike all responded to surveys about their thoughts on all things HHT. Your voices were heard! Join Cassi Friday, Caregiver and Dr. Anthony Anzell as they present the survey…Learn More >>
Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in time for the holidays! Shop from an assortment of items including t-shirts, notepads and masks. And the best part, 100% of the proceeds go to…Learn More >>
International HHT Guidelines Online Education Series Topic: Brain Vascular Malformations (VMs) Tue., September 21 | 7:00 p.m. (ET) Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she discusses Brain Vascular Malformations (VMs) as they relate to HHT. Dr. Faughnan is a renowned HHT specialist and will walk the audience through a comprehensive…Learn More >>
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.