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Get Involved

Help people with HHT enjoy a life without worry about this disease.

Join us and together we can make a difference.


There are many meaningful ways you can support this cause. Participate in an HHT event, share your HHT story, become an HHT Champion, or advocate for HHT patients to your local legislators. When you choose to get involved, you’re not only supporting the search for a cure, you’re supporting a community of people whose lives have been affected by this disease.

Together, we can improve the lives of those who have HHT.

Together, we can make HHT known in all corners of the world.

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