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CureHHT
  • HHT
    • What is HHT
      • Medical Summary
      • Signs and Symptoms
      • History of HHT
      • FAQ
    • Diagnosis & Treatment
      • International HHT Guidelines
      • Diagnostic Criteria for HHT
      • Genetic Testing for HHT
      • Screening Guidelines
      • Treatment of HHT
      • Newly Diagnosed
    • Get Support
      • HHT Treatment Centers
      • My HHT Tracker App
      • Find a Doctor
      • Resource Library
      • Webinars
      • International Scientific Conferences
      • Patient & Physician Conferences
      • International Patient Support
  • Research
    • Participate in Research
      • Clinical Research
      • Clinical Trials
      • Surveys & Studies
    • Funding & Awards
      • Research Grants
      • Research Strategies
      • Research Funding Portfolio
    • Tools & Education
      • Advisory Board
      • Nosebleed Severity Score
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  • News & Resources
    • Latest News
      • Announcements
      • Newsletter
      • Living with HHT Book
      • HHT in the News
      • Blog
    • Resources
      • HHT Treatment Centers
      • Find a Doctor
      • Webinars
      • Resource Library
      • Glossary
      • Video Library
    • More Resources
      • Covid-19
      • International Patient Support
      • My HHT Tracker App
      • HHT ESS Score
      • International Scientific Conferences
      • Patient & Physician Conferences
  • Who We Are
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    • Join Our Team
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  • Guidelines
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    • Zazzle
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  • Ways to Donate
    • Donate Now
    • Tribute Gifts
    • Planned Giving
    • Other Gift Types

The Rare Genomes Project

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected rare disease who do not have a genetic diagnosis. The goal of their project is two-fold: (1) provide access to testing for families that are genetically undiagnosed and (2) discover previously un-identified gene…

HHT Medical Emergency Wallet Card

In the event of an emergency, this printable compact medical card is wallet-sized and can speak for an HHT patient when they can’t. The card features a description of HHT, recommended medical protocols, common HHT related complications, a link for physicians to review resources, and a place to enter your personal information. Printed cards are…

COVID-19 Official Updates Page

Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.

Patient Symptom & Care Checklists

Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs. The checklists are based upon updates from the Second International HHT Guidelines published in the Annals of Internal…

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