International HHT Challenging Case Series: PAVM (Recorded)
This series of virtual meetings serves as a platform for the medical community to present and discuss challenging HHT clinical cases in an interactive format. This meeting, moderated by the HHT Center of Excellence at New York Presbyterian / Columbia University Irving Medical Center, discussed five challenging pulmonary arteriovenous malformations (PAVM) cases.
HHT Medical Emergency Wallet Card
In the event of an emergency, this printable compact medical card is wallet-sized and can speak for an HHT patient when they can’t. The card features a description of HHT, recommended medical protocols, common HHT related complications, a link for physicians to review resources, and a place to enter your personal information. Printed cards are…
COVID-19 Official Updates Page
Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.
Patient Symptom & Care Checklists
Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs. The checklists are based upon updates from the Second International HHT Guidelines published in the Annals of Internal…