This series of virtual meetings serves as a platform for the medical community to present and discuss challenging HHT clinical cases in an interactive format. This meeting, moderated by the HHT Center of Excellence at New York Presbyterian / Columbia University Irving Medical Center, discussed five challenging pulmonary arteriovenous malformations (PAVM) cases.

In the event of an emergency, this printable compact medical card is wallet-sized and can speak for an HHT patient when they can’t. The card features a description of HHT, recommended medical protocols, common HHT related complications, a link for physicians to review resources, and a place to enter your personal information. Printed cards are…

Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.

Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs. The checklists are based upon updates from the Second International HHT Guidelines published in the Annals of Internal…