
HHT in children
Resources for understanding the different screening and treatment needs in children.
Related Resources

Diagnosis of HHT
Fact Sheet – 2021Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.
More
Children & HHT
Fact Sheet – 2020Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.
More
My Teen Years HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
More
My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
More
My Child’s HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
MoreCerebrovascular Malformations in a Pediatric Hereditary Hemorrhagic Telangiectasia Cohort
Scientific Literature – 2020Pediatric Neurology. Authors: Lauren A. Beslow, MD, MSCE; Jake Breimann, BA, Daniel J. Licht, MD; Jake Waldman; Samantha Fallacaro; Reed E. Pyeritz, MD, PhD; Elizabeth Goldmuntz, MD; and Arastoo Vossough, MD, PhD. This article can be purchased direct…
More
The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
More
Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population
Scientific Literature – 2018The Journal of Pediatrics. Authors: Kristy S. Pahl, Arkopal Choudhury, Katie Wusik, Adrienne Hammill, Andrew White, Katharine Henderson, Jeffrey Pollak, and Raj S. Kasthuri. This article is available for public use and does not require purchase. Clic…
More
HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
More
My Family Has HHT Pamphlet
Brochure – 2017Looking for a simple explanation of HHT to share with your children and those who care for them everyday? This pamphlet is to assist children who may be uncertain or anxious about the symptoms of HHT experienced by themselves and/or their parents. Th…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
More
Tips to Educate Your Child’s School Nurse about HHT
Article – 2017Educating your child’s school nurse about HHT is important for your peace of mind, as well as for your child’s psychological health and academic success. School Nurses are used to their share of nosebleeds, but they may not know the reason why your c…
More
HHT: Caring for the Younger Generation (recorded)
Webinar – 2017Lynne Sekarski, MSN, RN, CPN, nurse coordinator for the St. Louis Children’s Hospital HHT Center of Excellence at Washington University, provides an in-depth conversation about HHT and children. Children with HHT are typically asymptomatic but this d…
More
Asymptomatic Pulmonary Arteriovenous Malformations in Children with HHT
Scientific Literature – 2017Pediatric Pulmonology. Authors: Ashley M. Gefen and Andrew J. White. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
More
My Child Has HHT: Screening Guidelines
Fact Sheet – 2016Screening your child for HHT is an essential part of their preventive health care. HHT runs in families and each child born has a 50% chance of inheriting the HHT gene.
MoreRelated News

“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!
We’ve taken the Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page…

A Tale of Two Sisters (Part 1)
November 29, 2020
Courage
March 5, 2020