HHT in the News

Rainbow Rehab’s Rainbow Visions Magazine: Coming Full Circle

April 17, 2019

Much of HHT education comes from the deeply personal stories of those who are living with the disorder. This incredible article by recreational therapist Lindsay Vos in Rainbow Rehab’s Rainbow Visions magazine is an intimate and honest portrayal of coming to terms with HHT. “Coming Full Circle” follows Lindsay’s journey through denial, HHT diagnosis, removal…

HHT International Scientific Conference

November 30, 2018

On behalf of the Organizing Committee, we would like to invite you to join us in Rio Grande, Puerto Rico for the 13th HHT International Scientific Conference. We will host a Welcome Reception on June 12th and scientific sessions on June 13-16, 2019. The 2019 meeting will bring together the world’s leading HHT experts in both basic research as well…

Washington Post Feature: Zina Martinez Story

November 20, 2018

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

Chair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT

June 29, 2018

Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a podcast on June 27, 2018 and learn how Dr. Raj Kasthuri talks about Hereditary Hemorrhagic Telangiectasia, also known as HHT, with Dr. Ron Falk. Dr. Kasthuri describes the symptoms, how it can affect internal organs, and…

Living with HHT: Review in Journal of Radiology Nursing

June 21, 2018

Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from the Journal of Radiology Nursing, written by Jeffrey Pollak, MD and Katharine Henderson, MS, reviewing the published book Sara Palmer, PhD titled Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia.  Read Article  |  Purchase Book

Marianne Clancy Interview on Fox 45 News Baltimore

June 21, 2018

Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45 News Baltimore and Cure HHT’s Executive Director, Marianne Clancy, as she talks about HHT and HHT Awareness Month. News Clip > 

Why Was This Teenager Bleeding So Excessively?

March 13, 2018

The New York Times Magazine | 2018

Charlie Druken was ‘living the dream’ at NHL oldtimers game

December 18, 2017

The Telegram | 2017

Tulane receives $1.7 million grant from Department of Defense for blood vessel research

November 14, 2017

Tulane News | 2017