
Useful Links to Outside Organizations
Links to outside medical and government organizations that provide information useful for HHT providers.
Related Resources

The Rare Genomes Project
Organization, Patient Tool, Provider Tool – 2022The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected rare disease who do not have a genetic diagnosis. The goal of their project is two-fold: (1) pro…
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Meta | Science Discovery Platform
Organization, Scientific Literature – 2021Meta is a free research discovery tool from the Chan Zuckerberg Initiative, providing a faster way to understand and explore science through personalized feeds. Meta puts biomedical research in context so you can advance your work or take it in new d…
MoreMedlinePlus – US National Library of Medicine National, NIH
Organization, Scientific Literature – 2020MedlinePlus – U.S. National Library of Medicine: an online health information resource for patients and their families and friends.
MorePubMed – US National Library of Medicine National, NIH
Organization, Scientific Literature – 2020PubMed – NIH National Library of Medicine: National Center for Biotechnology Information and comprising more than 30 million citations for biomedical literature from Medline, including full-text content.
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