Leadership & Board
Foundation Staff
Chief Operating Officer
Director, Marketing and Communications
Director, National HHT Coordinating Center, CHORUS Registry, and CME Programs
Salesforce Administrator
Patient Education and Registry Administrator
Operations & Business Systems Associate
CHRN Administrator
Manager, Donor Relations & Community Engagement
Project Manager, Pazopanib Clinical Trial
Graphics & Communications Design Coordinator
Chief Medical Officer and Chair, Center of Excellence Executive Committee
Vice Chair, Center of Excellence Executive Committee
Chair, North American Scientific and Medical Advisory Council
Vice Chair, North American Scientific and Medical Advisory Council
Chair, Global Research and Medical Advisory Board
Vice Chair, Global Research and Medical Advisory Board
President
Scotts Valley, CA
Vice President
Sandy, UT
Treasurer
Fort Washington, PA
Board Member
Brookline, MA
Board Member
Blue Bell, PA
