Leadership & Board

Foundation Staff

Nicole
Nicole Schaefer
Chief Operating Officer
Riley Blevins
Riley Blevins, MBA
Director, Marketing and Communications
Melissa Dickey_cropped
Melissa Dickey, RN, MSN, FNP
Director, National HHT Coordinating Center, CHORUS Registry, and CME Programs
Hash, Todd_casual_cropped
Todd Hash
Salesforce Administrator
Courtney Kasturiarachi (5)_website
Courtney Kasturiarachi, MPH
Patient Education and Registry Administrator
Cathleen
Cathleen Kinnear
Operations & Business Systems Associate
Krock, Nolie_square2
Nolie Krock
CHRN Administrator
Phyllis Loveland_cropped2
Phyllis Loveland
Manager, Donor Relations & Community Engagement
Saum, Gary_cropped
Gary Saum
Project Manager, Pazopanib Clinical Trial
Ashley Watkins
Ashley Watkins, MA
Graphics & Communications Design Coordinator
Olitsky, Scott (2019) square
Scott Olitsky, MD, MBA
Chief Medical Officer and Chair, Center of Excellence Executive Committee
Gossage_James - Medical Director cropped
James Gossage, MD
Vice Chair, Center of Excellence Executive Committee
Hughes, Chris - GRMAB Chair
Christopher C.W. Hughes, PhD
Chair, North American Scientific and Medical Advisory Council
Faughnan MD, Marie
Marie Faughnan, MD, MSc
Vice Chair, North American Scientific and Medical Advisory Council
Hans-Jurgen Mager, MD
Hans-Jurgen Mager, MD, PhD
Chair, Global Research and Medical Advisory Board
Akhurst, Rosemary - researcher
Rosemary Akhurst, PhD
Vice Chair, Global Research and Medical Advisory Board
Dunn, John_square
John Dunn
President

Scotts Valley, CA

Holt, Ben
Benjamin Holt, Esq.
Vice President

Sandy, UT

Marc Topaz_square
Marc Topaz, Esq.
Treasurer

Fort Washington, PA

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Dennis Routledge
Emeritus Member

Somerset, NJ