Leadership & Board

Foundation Staff

Marianne Clancy, MPA

CEO and Managing Director, Strategic Partnerships

Adrienne Barton, CFRE

Chief Operating Officer

Nicole Schaefer

Chief Administrative Officer

Riley Blevins, MBA

Senior Director, Global Community Engagement

Tania Competiello

Senior Director, National Healthcare Programs

Crystal Cottrill

National HHT Coordinating Center Grant Manager

Cassi Friday, PhD

Director, Research Programs and Grants

Erica Gould, MJ, CFRM

Development Associate

Michael Kennedy

Bookkeeper

Cathleen Kinnear

Operations & Business Systems Associate

Mary Leigh Krock

Strategic Partnership Specialist

Phyllis Loveland

Senior Manager, Development & Community Engagement

Valaree Machen, MS

Senior Brand Marketing Manager

Leslie Perry, RN, MS

BVMC Research Coordinator

Hellen Tecle

Community Events & Education Manager

Scott Olitsky, MD, MBA

Global Center of Excellence and Outreach Director

Murali Chakinala, MD

Senior Clinical Research Advisor

Gossage_James - Medical Director cropped

James Gossage, MD

Vice Chair, Center of Excellence Executive Committee

Christopher C.W. Hughes, PhD

Chair, North American Scientific and Medical Advisory Council

Marie Faughnan, MD, MSc

Vice Chair, North American Scientific and Medical Advisory Council

Board of Directors

Learn more about our Cure HHT Board of Directors

John Dunn, MA

President

Scotts Valley, CA

Gabriella Choi, MBA

Vice President

Venice, CA

Marc Topaz, Esq.

Treasurer

Fort Washington, PA

Karen Silber Weissel, PhD

Secretary

Newton, MA

Anthony Anzell, Ph.D.

Board Member

Pittsburgh, PA

Scott Boatwright, J.D.

Board Member

Asheville, NC

Michael Nolan

Board Member

Cork, Ireland

Brandon Probst, PhD

Board Member

Lehi, UT

Terry Thompson, MBA

Board Member

Bedminster, NJ

Dennis Routledge

Emeritus Member

Somerset, NJ

Global Research and Medical Advisory Board

Hans-Jurgen Mager, MD, PhD

Chair

Pulmonary,

St. Antonius Ziekenhuis

Rosemary Akhurst, PhD

Vice Chair

Scientist,

University of California, San Francisco

Hanny Al-Samkari, MD

Hematology,

Massachusetts General Hospital

Pinar Bayrak-Toydemir, MD, PhD

Scientist,

ARUP Laboratories and Dept. Pathology University of Utah

Sabine Bailly, PhD

Scientist,

INSERM

Joyce Bischoff, PhD

Scientist,

Department of Surgery, Children’s Hospital Boston Harvard Medical School

Luisa Maria Botella, PhD

Scientist,

Centro Investigaciones Biologicas, CSIC

Murali Chakinala, MD, FCCP

Pulmonary,

Div. Of Pulmonary & Critical Care Medicine Washington University School of Medicine

Mark S. Chesnutt, MD

Pulmonary,

Dotter Interventional Institute, Oregon Health and Science University

Miles Conrad, MD

Interventional Radiology,

UC San Francisco Medical Center Interventional Radiology Clinic

Sophie Dupuis-Girod, MD, PhD

Pediatrician and Geneticist,

Service de genetique, Hospital Femme-Mere-Enfant

Marie E. Faughnan, MD, MSc

Past Chair

Pulmonary,

St. Michaels Hospital

Urban W. Geisthoff, MD

Otolaryngology,

Klinik fur Hals-, Nasen- and Ohrenhilkunde Universitatsklinikum GieBen und Marburg

James Gossage, MD

Pulmonary,

Augusta University Medical Center, Division of Pulmonary Medicine

Steven Hetts, MD

Neuroradiology,

University of California San Francisco Medical Center

Christopher C. W. Hughes, PhD

Past Chair

Scientist, Professor and Chair,

Dept. of Molecular Biology & Biochemistry Univ. California, Irvine

Anette Kjeldsen, MD

Otolaryngology,

Dept. ORL-HNS, Odense University Hospital

Masaki Komiyama, MD

Neuro-Interventional Radiology,

Department of Neuro-Intervention, Osaka City General Hospital

Franck Lebrin, PhD

Scientist,

Ejnthoven Laboratory Leiden University Medical Center

Philippe Marambaud, PhD

Scientist,

Litwin-Zucker Center for Alzheimer’s Disease & Memory Disorders Zucker School of Medicine at Hofstra/Northwell, The Feinstein Institute for Medical Research/Northwell Health

Raj Kasthuri, MBBS

Hematology,

University of North Carolina Chapel Hill

Douglas Marchuk, PhD

Scientist,

Dept. of Molecular Genetics and Microbiology, Duke University Medical Center

Jamie McDonald, MS, CGC

Past Vice-Chair

Genetics Counselor,

University of Utah

Stryder Meadows, PhD

Scientist,

Meadows Lab – Tulane University

Meir Mei-Zahav, MD

Pediatrics,

Schneider Children’s Medical Center of Israel

Suk Paul Oh, PhD

Scientist,

Department of Neurobiology, Barrow Neurological Institute/Dignity Health St. Joseph Hospital and Medical Center

Roxana Ola, PhD

Scientist,

Heidelberg University

Marco Post, MD, PhD

Cardiology,

St. Antonius Hospital

Felix Ratjen, MD, FRCP (Canada)

Respiratory Medicine/Pediatrics,

University of Toronto/The Hospital for Sick Children

Beth L. Roman, PhD

Scientist,

Human Genetics, University of Pittsburgh Graduate School of Public Health

Marcelo Serra, MD

Internal Medicine,

Hospital Italiano

Dennis Sprecher, MD

Cardiology, Board Liaison

Calvin Vary, PhD

Scientist,

Center for Molecular Medicine, Maine Medical Center Research Institute

Andrew White, MD

Pediatrics and Rheumatology,

SSM Health Cardinal Glennon Children’s Hospital

Ingrid Winship, MDChB, MD, FRACP, FACD

Genetics,

University of Melbourne Office for Research, Royal Melbourne Hospital

Lawrence H. Young, MD

Cardiology,

Yale University School of Medicine, Section of Cardiovascular Medicine

Alan Guttmacher, MD

Emeritus

Medical Genetics

Michelle Letarte, PhD

Emeritus

Scientist

Franklin J. Miller, MD

Emeritus

Interventional Radiology

Reed E. Pyeritz, MD, PhD

Emeritus

Medical Genetics

Karel G. terBrugge, MD, FRCP (C)

Emeritus

Interventional Neuroradiology

Peter B. Terry, MD

Past Vice-Chair and Emeritus

Pulmonary

Robert I. White, Jr, MD

Chair Emeritus

Interventional Radiology