Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at University of Florida, goes over a variety of ways you can help manage your HHT-related nosebleeding. Treatments available for patients are rapidly evolving. Learn about all the options from therapeutics to surgical interventions and more – available to you. Dr. Justice…

YOU asked us to educate the medical community on HHT. Learn more about our new HHT Continuing Education Credit Online Platform in Part 2 of our “How to Be an HHT Changemaker” Series. Melissa Dickey, RN, MSN FNP, teaches you how to get your local providers signed up for our free HHT education program.

Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Connect, The Global Patient Registry. Hear more about what a patient registry is,…

Your questions answered about our newest clinical trial with NEW expanded criteria! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is now eligible, what Pazopanib is, and how you can get involved!

Drs. Adrienne Hammill, Center Director at Cincinnati Children’s Hospital and Kevin Whitehead, Center Director at University of Utah. Dr. Hammill guides you through the early stages of life, covering genetic testing, prenatal care, and the significance of early screening for pediatric patients; while Dr. Kevin Whitehead delves into HHT and aging, addressing aspects such as…