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Brain AVMS – Recent Advances in Imaging and Management

In this session Dr. Krings will describe recent advances in imaging, neurointervention and medical management in patients with Brain Arteriovenous Malformations. In particular he will discuss how Vessel Wall Imaging allows us to understand why certain brain AVMs bleed and how to predict future rupture. He will discuss in detail recent advances of catheter technology…

Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk (Recording)

Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this session, you’ll learn: How were the 3 HHT genes identified? What functions do these genes encode? How do the mutations cause HHT? Finally, what does all this mean for the search for effective treatment and ultimately, a cure? Live Q&A discussion Learn more.    

Knowledge is Power: The 5 Biggest Changes in HHT Care (Recording)

Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this Cure HHT webinar recording, we walk through the five biggest changes in HHT…

Comprehensive Guide to Managing Your Nosebleeds (Recording)

If you live with hereditary hemorrhagic telangiectasia (HHT), you already know nosebleeds (epistaxis) aren’t “just annoying”—they can disrupt daily life, drive anxiety, and in some cases lead to serious complications. In this Cure HHT webinar recording, we walk through practical, up-to-date strategies to help you manage chronic and recurring HHT-related nosebleeds and understand the growing…

Your Questions Answered: An Informative Session on an HHT Clinical Trial (Recorded)

An informative webinar about hereditary hemorrhagic telangiectasia (HHT). The webinar is being run by Cure HHT and introduces an upcoming clinical trial evaluating whether an investigational medication has the potential to treat HHT. During this session, HHT expert Dr. Hanny Al-Samkari clearly explains the goals of this clinical trial and who can take part. Learn…

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