The Science Behind the 2019 Scientific Conference (recorded)

Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and treatments for PAVMs, and the latest basic science research! After the presentation, Drs. Marambaud and White answer the audiences…

Living with HHT (recorded)

Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how to educate your family about HHT and how to navigate the invaluable resources available…

Webinar: Getting to Know Backpack Health – Live App Demo (recorded)

With 1 in 5000 people suffering from HHT, which presents with a multitude of symptoms, having a tool like Backpack Health is crucial to managing your health needs. Backpack Health provides a platform for your important medical data that is translatable and easy to share with your health care professionals and family. This Webinar includes…

Riggans Imaging Webinar

HHT Lung AVMs – A Tangled Web (recorded)

Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangled Web” from the Florida HHT Patient Conference. Dr. Riggans focuses on the importance of diagnostic imaging, as well as symptoms and therapeutic approaches to AVMs, a common complication from HHT. …

IVF and Preimplantation Genetic Testing for HHT (recorded)

Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has HHT through genetic testing before and during pregnancy, as well as after birth were discussed. Following the presentation,…