Webinar: Getting to Know Backpack Health – Live App Demo (recorded)

With 1 in 5000 people suffering from HHT, which presents with a multitude of symptoms, having a tool like Backpack Health is crucial to managing your health needs. Backpack Health provides a platform for your important medical data that is translatable and easy to share with your health care professionals and family. This Webinar includes…

Riggans Imaging Webinar

HHT Lung AVMs – A Tangled Web (recorded)

Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangled Web” from the Florida HHT Patient Conference. Dr. Riggans focuses on the importance of diagnostic imaging, as well as symptoms and therapeutic approaches to AVMs, a common complication from HHT. …

IVF and Preimplantation Genetic Testing for HHT (recorded)

Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has HHT through genetic testing before and during pregnancy, as well as after birth were discussed. Following the presentation,…

Anemia and Iron Deficiency in HHT (recorded)

Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammill, Director at the Cincinnati HHT Center of Excellence, discusses the most effective ways to manage anemia in HHT patients.

Screening & Treatment of Brain AVMs in HHT (recorded)

Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. Dr. Issam Awad, Director of the University of Chicago HHT Center of Excellence, discusses the symptoms and therapeutic approaches to…