Upcoming Events

6th Annual Night of Hope to Benefit Cure HHT

When: Saturday, May 5, 2018 from 6:00-11:00pm EST

Where: Laurel Manor: Livonia, MI

Details: Join the Nissan Family for the 6th Annual Night of Hope, an event to raise money and awareness for HHT. There will be games, auctions, dinner, dancing, and the famous cake auction by Dr. Andy White!  To learn more about this special evening and to register as an individual attendee, table or sponsor, please visit the 6th Annual Night of Hope website.

9th Annual Stoner Open to Benefit Cure HHT

When: Sunday, June 3, 2018 from 11:00 am-8:00pm EST

Where: Hideaway Hill Golf Club: Kresgeville, PA

Details: Join the Stoner family for the 9th Annual Stoner Open, a golf tournament to raise money and awareness for HHT. Registration includes 18 holes of golf, prizes, awards, beverages throughout the day, lunch, dinner and a tournament t-shirt! Individual entries, foursomes and sponsorships are available. To learn more about this special tournament and to register, please visit the 9th Annual Stoner Open website.

HHT Boston Walk and Family Day

When: Sunday, June 10, 2018 from 1-3 PM EST

Where: Pinebank Promontory & Jamaica Pond

Details: Join Cure HHT and the MGH HHT Center of Excellence for a day dedicated to HHT during HHT Awareness Month!  This FREE event is open to all HHT patients, families and friends who want to raise awareness, meet others who have HHT and learn about ways to manage HHT. To learn more and register, visit the HHT Boston Walk and Family Day website.

HHT Chicago Walk and Family Day

When: Sunday, June 3, 2018 from 10:30 AM-1 PM

Where: Sunset Woods Park | Highland Park, IL

Details: Join Cure HHT and the University of Chicago HHT Center of Excellence for a day dedicated to HHT during HHT Awareness Month!  This FREE event is open to all HHT patients, families and friends who want to raise awareness, meet others who have HHT and learn about ways to manage HHT. To learn more and register, visit the HHT Chicago Walk and Family Day website.

Online Pampered Chef Fundraiser for HHT

When: Friday, April 13-Friday, April 27, 2018

Details: One of our own from the HHT community in Hickory, NC is throwing a 2-week online fundraiser through Pampered Chef as part of the 50 State Challenge! When you shop for Pampered Chef’s kitchen, grill and entertainment items in the next two weeks, proceeds will go to Cure HHT. 

Pampered Chef is a perfect gift for birthdays, holidays, anniversaries, bridal showers, housewarming parties … and a great addition to anyone’s kitchen!

Here’s how to get started:
2. Click “Shop Now” to check out all available items online and add any interested items to your cart.
3. Share this link with friends and family! Orders will be accepted from 4/13-4/27, so start shopping! 

HHT NYC Walk and Family Day

When: Saturday, June 9, 2018 from 12:30 PM – 3 PM

Where: Shore Road Park & Parkway | Brooklyn, NY

Details: Join Cure HHT and the NewYork-Presbyterian/Columbia University Medical Center HHT Center of Excellence for a day dedicated to HHT during HHT Awareness Month!  This FREE event is open to all patients, families and friends who want to raise awareness, meet others and learn about ways to manage HHT. To learn more and register, visit the HHT NYC Walk and Family Day website.

Cure HHT Conference

We’re coming to the Midwest. Stay tuned for more details.

 

Ann Arbor, Michigan
Fall 2018 (Date TBD – likely early November)