Saturday, February 23, 2019
The Health Museum of Houston
1515 Hermann Drive
Houston, TX 77004
9:00am – 1:00pm (CST)
Thursday, February 28, 2019
Texas Children’s Hospital
6621 Fannin Street
Houston, TX 77030
11:30am – 1:30pm (CST)
The 4th annual Rare Disease Day event will feature over 35 rare disease organizations hosting booths. Dr. Ionela Iacobas from the Vascular Anomalies Center, Texas Children’s Hospital Baylor College of Medicine will be onsite raising awareness about Hereditary Hemorrhagic Telangiectasia (HHT). Details are available on the Houston Rare Disease Day Flyer.
To learn more about how you can engage in Rare Disease Day visit, https://www.rarediseaseday.org
When: Saturday, March 16, 2019 from 5:00-11:00pm EST
Where: Plymouth Manor: Plymouth, MI
Details: Join the Nissan Family for the 7th Annual Night of Hope, an event to raise money and awareness for HHT. There will be games, auctions, dinner, dancing, and more! To learn more about this special evening and to register as an individual attendee, table or sponsor, please visit the 7th Annual Night of Hope website.
Online: Visit the 7th Annual Night of Hope website.
By Check: Checks payable to Cure HHT with “Night of Hope” and number of tickets in memo line. Checks can be mailed to:
PO Box 329
Monkton, MD 21111
Monday, March 25, 2019
7:00pm – 8:00pm EST
Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. Please join Dr. Issam Awad, Director of the University of Chicago HHT Center of Excellence, as he discusses the symptoms and therapeutic approaches to AVMs in the brain. The presentation will be followed by a live Q&A session so we encourage you to come with questions.
Once you register for the webinar, you will receive a personal link for logging on, as well as a call-in number. You can access the webinar on your desktop, laptop, smartphone, tablet, or other device. Or, you can simply dial in by phone and listen.
Can’t watch it that day? No problem! Still register and we’ll email you when the recording is available.
There is no cost to register!
May 18-19, 2019
Join our HHT team at Denver’s largest running weekend! You can sign up to participate in a 5K, 10-Mile, Relay, Half Marathon or Marathon. Help us raise awareness and funds for HHT research, and don’t miss out on this incredible experience – sign up today!