Brain
Resources for understanding issues that affect the brain in HHT patients including brain AVMs, stroke, brain infections, migraines and seizures. This section will include screening recommendations and treatment options.
Related Resources
My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
More
My HHT Brain VM Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
More
The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreExecutive Summary – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
More
Screening & Treatment of Brain AVMs in HHT (recorded)
Webinar – 2019Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. Dr. Issam Awad, Director of the Uni…
More
HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreSurgical Treatment vs Nonsurgical Treatment for Brain Arteriovenous Malformations in Patients with HHT: A Retrospective Multicenter Consortium Study
Scientific Literature – 2018Neurosurgery. Authors: Meybodi, AT, Kim, H., Nelson, J., Hetts, SW., Krings, T, terBrugge, KG, Faughnan, ME, Lawton, MT, and the Brain Vascular Malformation Consortium HHT Investigator Group. This article is available for public use and does not requ…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
More
HHT & Stroke
Fact Sheet – 2016Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and young adults as well. Learn what causes a stroke and how to lower your risk.
MoreCerebrovascular Manifestations of Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2015Stroke. Authors: Waleed Brinjikji, Vivek N. Iyer, Thomas Sorenson, and Giuseppe Lanzino. This article is available for public use and does not require purchase. Click to view the full article.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreLower Risk of Intracranial Arteriovenous Malformation Hemorrhage in Patients with HHT
Scientific Literature – 2015Neurosurgery. Authors: Wuyang Yang, Ann Liu, Alice L. Hung, Maria Braileanu, Joanna Y. Wang, Justin M. Caplan, Geoffrey P. Colby, Alexander L. Coon, Rafael J. Tamargo, Edward S. Ahn, and Judy Huang. This article can be purchased directly from the pub…
MoreHemorrhage Rates from Brain Arteriovenous Malformation in Patients with HHT
Scientific Literature – 2015Stroke. Authors: Helen Kim, Jeffrey Nelson, Timo Krings, Karel G. terBrugge, Charles E. McCulloch, Michael T. Lawton, William L. Young, Marie E. Faughnan, and the Brain Vascular Malformation Consortium HHT Investigator Group. This article is availabl…
More
Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)
Webinar – 2015Dr. Marie Faughnan, Director of the HHT Center of Excellence at the University of Toronto / St. Michael’s Hospital, Scientific Research Director for Cure HHT, reviews the management and treatment protocols for brain AVMs in HHT patients. Dr. Faughnan…
More
Cerebral Abscesses among Danish Patients with HHT
Scientific Literature – 2013Acta Neurol Scandinavica. Authors: A. D. Kjeldsen, P. M. Tørring, H. Nissen, and P. E. Andersen. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreRelated News
One Kiwis Dream for HHT Awareness
My first time learning about HHT was in 2016 when I was diagnosed with the disease at the young age of 43. I had suffered a fall from my horse that landed me at the Wellington Orthopedics Ward in New…
Courage
March 5, 2020
Recorded WEBINAR: The Science Behind the 2019 Scientific Conference
February 2, 2020
