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Who We Are

The Cornerstone of the HHT Community

Renamed Cure HHT in 2014, the HHT Foundation International was founded by a tenacious and passionate group of patient families and physicians, who shared a hope for a better future for those with HHT.

Since its establishment in 1991, Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments. Cure HHT has the perseverance and experience to integrate and drive vital progress across the patient, medical and scientific communities.

Our Goals


Dramatically reduce the number of undiagnosed cases of HHT through focused awareness to the public and medical community. Cure HHT provides a supportive environment for those who are diagnosed and provide opportunities for people to connect to others who share similar experiences and concerns.


Significantly expand the availability and accessibility to consistent, quality care. We seek to educate physicians and healthcare professionals to recognize HHT and refer for diagnosis and screening. Through creation of a comprehensive The HHT Center of Excellence model featuring multi-discipline specialists working together to treat patients and families has been emulated throughout the world. We strive to accelerate advances in clinical care.


Through our collaborations with physicians and scientists, we look to set the global agenda for finding more effective HHT treatments. Cure HHT invests in breakthrough research and supports the best science worldwide to uncover the mechanisms underlying HHT, improve treatments and ultimately, to find a cure. Dedicated and unrelenting, Cure HHT is constantly working to ensure HHT patients and families can live long and productive lives full of joy and spontaneity.

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