What the HHT?

A blog for the HHT community

International HHT Guidelines: Epistaxis/Nosebleed Management

International HHT Guidelines Webinar Series Topic: Epistaxis/Nosebleed Management Sat., June 12th | 12:00 p.m. (ET) Join Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr. James Gossage, Director, Augusta University HHT Center of Excellence as they discuss the new International HHT Guidelines for Epistaxis (Nosebleed Management). Both doctors are renowned HHT specialist…

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Las Guías Internacionales de HHT: Epistaxis en HHT (Grabado)

Las Guías Internacionales de HHT Epistaxis en HHT (solo en español) 10 de Junio | 6:30 p.m. (ET) (7:30 p.m Argentina) La Dra. Yesica Lijdens, Otorrinolaringóloga de la Unidad HHT Hospital Italiano de Buenos Aires, y el Dr. Federico Urquiola, Otorrinolaringólogo y Coordinador ORL de la Unidad HHT Hospital Italiano de Buenos Aires, nos brindarán información sobre…

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International HHT Guidelines: Liver

International HHT Guidelines Webinar Series Topic: Liver VMs Tues., June 8th | 7:00 p.m. (ET) Join Dr. Kevin Whitehead, Co-Director, University of Utah HHT Center of Excellence and Dr. Josanna Rodriguez-Lopez, Director, Massachusetts General Hospital HHT Center of Excellence as they discuss Liver Vascular Malformations (VMs) as they relate to HHT. Both doctors are renowned…

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A Tale of Two Sisters (Part 2)

Lily&Hope

My name is Hope and I’m 8 ½ years old. My sister has had nosebleeds ever since I can remember. Sometimes she has a nosebleed in the middle of playing. Blood can drip on our Legos and we have to stop. I feel really sad when Lily’s having her nosebleeds because I really like playing…

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A Tale of Two Sisters (Part 1)

Lily&Hope

I have had nosebleeds ever since I was 5 years old. These nosebleeds aren’t your normal nosebleeds – I get them every day, sometimes more than once a day. On January 31, 2020, I was diagnosed with a very rare genetic condition called Hereditary Hemorrhagic Telangiectasia (HHT for short). I had lots of tests to…

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