Research Roundtable: An Inside Look at Exciting Clinical Trials

Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial…

International HHT Guidelines – Overview (Recorded)

Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…

Physician Fact Sheet

A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…

Medicare Rights Center

Do you understand your Medicare rights and benefits? Medicare Rights Center can help you navigate the Medicare system and secure quality health care. The Medicare Rights Center is a national, nonprofit consumer service organization that works to ensu…

Kaiser Family Foundation Guide to the Medicaid Appeals Process

Medicaid appeals process made simple. Kaiser Family Foundation has developed a Guide to the Medicaid Appeals Process which provides case studies, flow charts, timelines, etc. There is a specific appeals process for each type of health insurance inclu…

HHT and Insurance: Overview, resources, and out-of-network concerns

Diagnosis and Procedure Codes for HHT

Diagnosis and procedure codes are important for insurance processing, but they also help determine a more accurate prevalence of the disease. Make sure your medical records are accurate (CPT, ICD-9 & ICD-10).

Executive Summary – 12th HHT International Scientific Conference (2017)

Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…

Disability Definition According to Social Security Administration

The Social Security Administration clearly defines “disability” on their website. See the criteria for an HHT-related disability.

How to Appeal Health Insurance Denial

Simple instructions to follow if your health insurance claim has been denied.

Executive Summary – 11th HHT International Scientific Conference (2015)

Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…