Cure HHT Patient Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

2018 HHT Patient Conferences

Cure HHT Patient & Physician Conference

Registration Now Open!
October 20-21, 2018
Ann Arbor, Michigan

 

HHT is a family affair and this is an event that everyone should attend! Cure HHT is thrilled to announce that we will be hosting an HHT conference this fall for HHT patients of all ages and healthcare professionals treating this disease.

This will be the only conference this year to highlight the pediatric component of HHT, featuring a presentation by HHT pediatrician Dr. Andy White, a parent forum and a Kidz Club program, along with presentations on organ impact, current HHT research and the launch of the HHT App.

CLICK HERE to learn more about about the conference program, Kidz Club, and venue OR register online!

Patient Conference FAQs

What is included in registration?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. 

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference. We recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]