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Cure HHT Patient & Physician Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

HHT Patient & Physician Conferences


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An HHT patient conference can change your life…


King of Prussia, Pennsylvania |  April 5-7, 2023

Join us for the first National Patient & Physician Conference on the east coast in some time - patients and healthcare professionals alike won’t want to miss this opportunity!

We will we bring together the experts from 3 of our top centers - University of Pennsylvania/Children’s Hospital of Philadelphia, Johns Hopkins University and New York Presbyterian/Columbia University. Registration is now open! Learn more >>


Check back soon for new location details.

Patient Conference FAQs

What is included in registration for an IN-PERSON conference?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. Although in-person conferences are designed to be strictly in-person, any virtual component included in the curriculum will be noted on the individual conference registration page.

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

What is included in VIRTUAL conference registration?

Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for. 

All attendees will receive conference Swag with a participation certificate.

What are the conference fees?
HHT Academy Fee-Based Sessions: Please visit the individual conference registration site for a complete list of fees. HHT Academy registration fees are non-refundable.
Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (16 yrs+ with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference.

For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]

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