HHT Patient & Physician Conferences
Our inaugural HHT Academy virtual conference held in April 2022 was a smashing success! The 9-day learning extravaganza featured courses led by some of the world’s leading HHT experts and geared specifically for patients, international attendees and physicians. We hope those who attended found it valuable, and are excited to share that the academy saw more than 120 new community members join us!
Thank you to our generous sponsors: Nampons, The Eckhauser Family, The Drysdale Family, Scott & Andrea Olitsky and Vaderis Therapeutics.
“Everything from PR/registration through final comments was outstanding. Kudos to everyone involved—speakers and behind the scenes people. The patient personal interaction with other HHT/caregivers and physicians, researchers, etc. was unbelievably encouraging!!”
2018 Arizona Conference
"It is essential that we provide ourselves and our children with all the resources necessary to take control of our health. Knowledge is power, and understanding that you are not alone in this fight is just as important for children."
Dr. Andy White, Pediatrician
“Loved it! So encouraging! Nice to know there is a community for HHT patients.”
2018 Tennessee Conference
"The conference gave me new insights and perspectives into owning my genetic disorder. I was provided with a tremendous amount of new information that will guide me in positive directions."
D.D., Newport Beach, CA
“Really appreciated the easiness to talk with the physicians, scientists and staff of HHT! Thank you so much.”
2018 Arizona Conference
Patient Conference FAQs
Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for.
All attendees will receive conference Swag with a participation certificate.
Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception.
Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay.
- Patients & Family Members
- Children (16 yrs+ with and without HHT)
- Friends of Diagnosed
- Genetic Counselors
- Interventional Radiologists
- Interventional Neuroradiologists
- Otolaryngologists/ Rhinologists
- Pulmonary Medicine Specialists
- Nurse Practitioners
- Pediatric Specialists
- and More!
You can register online through each conference's website or over the phone at (410) 357-9932.
Casual attire is appropriate for the entire conference.
For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events.