Cure HHT Patient & Physician Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

HHT Patient & Physician Conferences

HHT Academy - Logo_web

Our inaugural HHT Academy virtual conference held in April 2022 was a smashing success! The 9-day learning extravaganza featured courses led by some of the world’s leading HHT experts and geared specifically for patients, international attendees and physicians. We hope those who attended found it valuable, and are excited to share that the academy saw more than 120 new community members join us!

Thank you to our generous sponsors: Nampons, The Eckhauser Family, The Drysdale Family, Scott & Andrea Olitsky and Vaderis Therapeutics.

Patient Conference FAQs

What is included in VIRTUAL conference registration?

Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for. 

All attendees will receive conference Swag with a participation certificate.

What is included in registration for an IN-PERSON conference?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. 

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

What are the conference fees?
HHT Academy VIRTUAL Fee-Based Sessions:
1-3 Sessions    $20 each session
4 Sessions       $60 Total
5+ Sessions     $90 Total
All conference attendees are welcome to participate in complimentary Meet & Greet sessions where we will engage in large group conversations and break into small groups for more intimate discussions.
HHT Academy registration fees are non-refundable. All sessions will be recorded and distributed to those who have registered for that session.
Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (16 yrs+ with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference.

For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]