2018 HHT Patient Conferences
Cure HHT Patient & Physician Conference
October 20-21, 2018
Ann Arbor, Michigan
Whether this was your first or your fifth HHT conference, I am confident that everyone who attended learned something new. From screening and treatment guidelines to cutting edge research, Cure HHT want patients and healthcare providers to be empowered to effectively treat and manage this disease. I am so thankful that 125 patients and physicians were able to be a part of this very special weekend.
A SPECIAL THANK YOU to our speakers who volunteered their time to provide critical information and for the sponsors who partnered with Cure HHT to make this community education event possible.
We are grateful to be part of such a caring and compassionate community of patients, physicians and scientists. HHT is unique in that way; we are all very fortunate to have such dedicated and compassionate teams of specialists at our HHT Centers of Excellence.
And on behalf of the Cure HHT Board of Directors, Staff and entire HHT community we truly appreciate our partnership with We appreciate our partnership with Indiana Hemophilia Treatment Center, University of Michigan, Pulmonary Hypertension Association, State Farm and Enterprise Holdings Foundation. Their commitment to the HHT Community is invaluable.
“Everything from PR/registration through final comments was outstanding. Kudos to everyone involved—speakers and behind the scenes people. The patient personal interaction with other HHT/caregivers and physicians, researchers, etc. was unbelievably encouraging!!”
2018 Arizona Conference
"It is essential that we provide ourselves and our children with all the resources necessary to take control of our health. Knowledge is power, and understanding that you are not alone in this fight is just as important for children."
Dr. Andy White, Pediatrician
“Loved it! So encouraging! Nice to know there is a community for HHT patients.”
2018 Tennessee Conference
"The conference gave me new insights and perspectives into owning my genetic disorder. I was provided with a tremendous amount of new information that will guide me in positive directions."
D.D., Newport Beach, CA
“Really appreciated the easiness to talk with the physicians, scientists and staff of HHT! Thank you so much.”
2018 Arizona Conference
Patient Conference FAQs
Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception.
Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay.
- Patients & Family Members
- Children (with and without HHT)
- Friends of Diagnosed
- Genetic Counselors
- Interventional Radiologists
- Interventional Neuroradiologists
- Otolaryngologists/ Rhinologists
- Pulmonary Medicine Specialists
- Nurse Practitioners
- Pediatric Specialists
- and More!
You can register online through each conference's website or over the phone at (410) 357-9932.
Casual attire is appropriate for the entire conference. We recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events.