HHT Patient & Physician Conferences
HHT Academy sessions are presented through Zoom. These live sessions should be viewed on a computer. Instructions will be provided after you register for the conference.
Can’t make a session? All sessions will be recorded and distributed to those who have registered for that session.
Contact [email protected] if you have any questions.
Please note that financial assistance is available for the Cure HHT Academy, as our mission is to empower our entire community with the HHT knowledge they need. To learn more about eligibility, please email [email protected].
The Cure HHT Academy is pleased to present its 1st Virtual Patient/Physician Conference. Our program is completely customizable – pick and choose the sessions that interest you most!
Cure HHT is happy to present both patient and physician focused tracks over a nine-day period from April 29 – May 7, 2022. Certain sessions are specifically designed with HHT patients in mind, and certain sessions are designed for physicians. However, the focused tracks are simply a suggestion; feel free to register for any session, regardless of its designated focus/audience.
HHT Academy features
- Patient and physician focused tracks – select any or all of the nine tracks and curate a program just for you
- Four Meet and Greets complimentary with registration
- Targeted Q & A sessions with HHT experts
- Discussion groups offered throughout the conference
- Exciting clinical trial/research announcements – be the first to know!
- Exclusive swag upon registration
- Participation Certificates*
- And so much more!
Don't miss this incredible opportunity to expand your HHT knowledge and connect personally with the HHT Community of patients and physicians.
Disclaimer: HHT Academy is a Cure HHT educational program associated with patient and physician conferences. The HHT Academy is not an accredited institution and does not issue certifications or degree certificates. Cure HHT does not issue educational credits of any kind, including continuing education credits.
“Everything from PR/registration through final comments was outstanding. Kudos to everyone involved—speakers and behind the scenes people. The patient personal interaction with other HHT/caregivers and physicians, researchers, etc. was unbelievably encouraging!!”
2018 Arizona Conference
"It is essential that we provide ourselves and our children with all the resources necessary to take control of our health. Knowledge is power, and understanding that you are not alone in this fight is just as important for children."
Dr. Andy White, Pediatrician
“Loved it! So encouraging! Nice to know there is a community for HHT patients.”
2018 Tennessee Conference
"The conference gave me new insights and perspectives into owning my genetic disorder. I was provided with a tremendous amount of new information that will guide me in positive directions."
D.D., Newport Beach, CA
“Really appreciated the easiness to talk with the physicians, scientists and staff of HHT! Thank you so much.”
2018 Arizona Conference
Patient Conference FAQs
Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for.
All attendees will receive conference Swag with a participation certificate.
Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception.
Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay.
- Patients & Family Members
- Children (16 yrs+ with and without HHT)
- Friends of Diagnosed
- Genetic Counselors
- Interventional Radiologists
- Interventional Neuroradiologists
- Otolaryngologists/ Rhinologists
- Pulmonary Medicine Specialists
- Nurse Practitioners
- Pediatric Specialists
- and More!
You can register online through each conference's website or over the phone at (410) 357-9932.
Casual attire is appropriate for the entire conference.
For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events.