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Cure HHT Patient & Physician Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

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HHT Patient & Physician Conferences

UPCOMING CONFERENCES

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Learn more about the upcoming Denver conference directly from Dr. Hountras, Director of the Colorado HHT Center of Excellence.

REGIONAL

Denver, Colorado |  March 25, 2023

Don't miss your chance to connect with the local HHT community just outside Denver, Colorado in Aurora, on March 25, 2023, for a day of networking and learning for both patients and physicians. Medical professionals can now receive CME credits for participation. This is an in-person conference.  Register Now >>

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of The University of Colorado School of Medicine and Cure HHT. The University of Colorado School of Medicine is accredited by the ACCME to provide continuing medical education for physicians.

The University of Colorado School of Medicine designates this live activity for a maximum of 6 AMA PRA Category 1 Credit(s)™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

NATIONAL

Seattle, Washington |  June 3-4, 2023

Join members of our HHT community – both patients and physicians alike - as we come together for our national conference on June 3-4, 2023 just outside Seattle, Washington in Bellevue, to learn more about HHT, share new scientific advancements, and more.

Medical professionals can now receive CME credits for participation.

Check back soon for updates on open registration. This is an in-person conference.

“Just wanted to thank you and the Cure HHT staff for an amazing experience. Other than my Dad, this is the first time I've actually been with people who have HHT and it was so comforting to know that I wasn't alone anymore.”

Lynne S.

"It is essential that we provide ourselves and our children with all the resources necessary to take control of our health. Knowledge is power, and understanding that you are not alone in this fight is just as important for children."

Dr. Andy White, Pediatrician

"The conference gave me new insights and perspectives into owning my genetic disorder. I was provided with a tremendous amount of new information that will guide me in positive directions."  

HHT Patient

"After my attendance at this conference, I understand even more my father's enthusiasm and appreciation for the foundation. I left the conference with a warm feeling of kinship and a sense of hope. Thank you for your ongoing efforts and support!"

Maria K.

“Excellent conference. Speakers and doctors were very approachable and helpful. Thank you.”

Patricia G.

Patient Conference FAQs

What is included in registration for an IN-PERSON conference?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. Although in-person conferences are designed to be strictly in-person, any virtual component included in the curriculum will be noted on the individual conference registration page.

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

What is included in VIRTUAL conference registration?

Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for. 

All attendees will receive conference Swag with a participation certificate.

What are the conference fees?
HHT Academy Fee-Based Sessions: Please visit the individual conference registration site for a complete list of fees. HHT Academy registration fees are non-refundable.
 
Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (16 yrs+ with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference.

For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]. 

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