Cure HHT Patient & Physician Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

HHT Patient & Physician Conferences

UPCOMING CONFERENCES

A Letter from Cure HHT Board Member, Jim Lapides

An HHT patient conference can change your life…

NATIONAL

King of Prussia, Pennsylvania | April 5-7, 2023

Join us for the first National Patient & Physician Conference on the east coast in some time - patients and healthcare professionals alike won’t want to miss this opportunity!

We will we bring together the experts from 3 of our top centers - University of Pennsylvania/Children’s Hospital of Philadelphia, Johns Hopkins University and New York Presbyterian/Columbia University. Registration is now open! Learn more >>

REGIONAL

Check back soon for new location details.

“Just wanted to thank you and the Cure HHT staff for an amazing experience. Other than my Dad, this is the first time I've actually been with people who have HHT and it was so comforting to know that I wasn't alone anymore.”

Lynne S.

"It is essential that we provide ourselves and our children with all the resources necessary to take control of our health. Knowledge is power, and understanding that you are not alone in this fight is just as important for children."

Dr. Andy White, Pediatrician

"The conference gave me new insights and perspectives into owning my genetic disorder. I was provided with a tremendous amount of new information that will guide me in positive directions."

HHT Patient

"After my attendance at this conference, I understand even more my father's enthusiasm and appreciation for the foundation. I left the conference with a warm feeling of kinship and a sense of hope. Thank you for your ongoing efforts and support!"

Maria K.

“Excellent conference. Speakers and doctors were very approachable and helpful. Thank you.”

Patricia G.

Patient Conference FAQs

What is included in registration for an IN-PERSON conference?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. Although in-person conferences are designed to be strictly in-person, any virtual component included in the curriculum will be noted on the individual conference registration page.

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay.

What is included in VIRTUAL conference registration?

Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for.

All attendees will receive conference Swag with a participation certificate.

What are the conference fees?

HHT Academy Fee-Based Sessions: Please visit the individual conference registration site for a complete list of fees. HHT Academy registration fees are non-refundable.

Who should attend a Cure HHT Patient Conference?

Patients & Family Members
Children (16 yrs+ with and without HHT)
Friends of Diagnosed
Genetic Counselors
Interventional Radiologists
Neurologists
Interventional Neuroradiologists
Gastroenterologists
Hepatologists
Otolaryngologists/ Rhinologists
Pulmonary Medicine Specialists
Hematologists
Cardiologists
Dermatologists
Nurse Practitioners
Pediatric Specialists
Researchers
and More!

How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932.

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference.

For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events.

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected].