Cure HHT Patient & Physician Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

HHT Patient & Physician Conferences

HHT Academy - Web post Image
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HHT Academy sessions are presented through Zoom. These live sessions should be viewed on a computer. Instructions will be provided after you register for the conference.

Can’t make a session? All sessions will be recorded and distributed to those who have registered for that session.

Contact [email protected] if you have any questions.


Please note that financial assistance is available for the Cure HHT Academy, as our mission is to empower our entire community with the HHT knowledge they need. To learn more about eligibility, please email [email protected]

Virtual Offering

The Cure HHT Academy is pleased to present its 1st Virtual Patient/Physician Conference. Our program is completely customizable – pick and choose the sessions that interest you most!

Cure HHT is happy to present both patient and physician focused tracks over a nine-day period from April 29 – May 7, 2022. Certain sessions are specifically designed with HHT patients in mind, and certain sessions are designed for physicians. However, the focused tracks are simply a suggestion; feel free to register for any session, regardless of its designated focus/audience.

Patient-focused Agenda

Physician-focused Agenda

International-focused Agenda


HHT Academy features

  • Patient and physician focused tracks – select any or all of the nine tracks and curate a program just for you
  • Four Meet and Greets complimentary with registration
  • Targeted Q & A sessions with HHT experts
  • Discussion groups offered throughout the conference
  • Exciting clinical trial/research announcements – be the first to know!
  • Exclusive swag upon registration
  • Participation Certificates*
  • And so much more!

Don't miss this incredible opportunity to expand your HHT knowledge and connect personally with the HHT Community of patients and physicians.

Disclaimer: HHT Academy is a Cure HHT educational program associated with patient and physician conferences. The HHT Academy is not an accredited institution and does not issue certifications or degree certificates. Cure HHT does not issue educational credits of any kind, including continuing education credits. 

Patient Conference FAQs

What is included in VIRTUAL conference registration?

Registration includes a link to view the sessions you choose, invitation to join complimentary Meet & Greet, along with access to discussion groups on specific topics and recordings of the sessions you registered for. 

All attendees will receive conference Swag with a participation certificate.

What is included in registration for an IN-PERSON conference?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. 

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

What are the conference fees?
HHT Academy VIRTUAL Fee-Based Sessions:
1-3 Sessions    $20 each session
4 Sessions       $60 Total
5+ Sessions     $90 Total
All conference attendees are welcome to participate in complimentary Meet & Greet sessions where we will engage in large group conversations and break into small groups for more intimate discussions.
HHT Academy registration fees are non-refundable. All sessions will be recorded and distributed to those who have registered for that session.
Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (16 yrs+ with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference.

For in-person events, we recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]