Cure HHT Patient Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

2018 HHT Patient Conferences

Thank you!

Cure HHT Patient & Physician Conference
October 20-21, 2018
Ann Arbor, Michigan



Whether this was your first or your fifth HHT conference, I am confident that everyone who attended learned something new. From screening and treatment guidelines to cutting edge research, Cure HHT want patients and healthcare providers to be empowered to effectively treat and manage this disease. I am so thankful that 125 patients and physicians were able to be a part of this very special weekend.

A SPECIAL THANK YOU to our speakers who volunteered their time to provide critical information and for the sponsors who partnered with Cure HHT to make this community education event possible.

We are grateful to be part of such a caring and compassionate community of patients, physicians and scientists. HHT is unique in that way; we are all very fortunate to have such dedicated and compassionate teams of specialists at our HHT Centers of Excellence.

And on behalf of the Cure HHT Board of Directors, Staff and entire HHT community we truly appreciate our partnership with We appreciate our partnership with Indiana Hemophilia Treatment CenterUniversity of MichiganPulmonary Hypertension AssociationState Farm and Enterprise Holdings Foundation. Their commitment to the HHT Community is invaluable.

Patient Conference FAQs

What is included in registration?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. 

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference. We recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]