Cure HHT Patient & Physician Conferences

Learn about HHT, Hear the Latest HHT Research, Make New Friends and Meet the HHT Medical Experts

HHT Patient & Physician Conferences

Save The Date – Florida Conference 2019

HHT Patient & Physician Conference
September 21-22, 2019
Marriott Pompano Beach Resort & Spa
Pompano Beach, Florida
WE ARE COMING TO YOU!  Cure HHT is thrilled to announce that we will be hosting a conference this fall in Pompano Beach, Florida (near Fort Lauderdale). Florida is a large state and is underserved by knowledgeable specialists but we are working to change this. You and your local physicians will be able to learn from HHT Centers of Excellence experts in neighboring states. Come early and get to know your fellow Floridians at a Meet and Greet on Friday evening (September 20) from 6-8pm. More information concerning the program, speakers and registration will be available in the coming months. Stay tuned!

Patient Conference FAQs

What is included in registration?

Registration includes priceless time to interact one-on-one with HHT specialists, access to all presentations, presentation materials, meals served throughout the conference and the welcome reception. 

Accommodations are NOT included in registration. Please visit each conference website to learn about how to secure accommodations for your stay. 

Who should attend a Cure HHT Patient Conference?
  • Patients & Family Members
  • Children (16 yrs+ with and without HHT)
  • Friends of Diagnosed
  • Genetic Counselors
  • Interventional Radiologists
  • Neurologists
  • Interventional Neuroradiologists
  • Gastroenterologists
  • Hepatologists
  • Otolaryngologists/ Rhinologists
  • Pulmonary Medicine Specialists
  • Hematologists
  • Cardiologists
  • Dermatologists
  • Nurse Practitioners
  • Pediatric Specialists
  • Researchers
  • and More!
How can I register?

You can register online through each conference's website or over the phone at (410) 357-9932. 

What is the appropriate Conference attire?

Casual attire is appropriate for the entire conference. We recommend bringing a sweater to wear as the room temperatures can fluctuate. Dinner attire is suggested for any evening events. 

Who can I contact for more information?

If you have questions or need more information about the upcoming Cure HHT Patient Conferences, please contact Nicole Schaefer at [email protected]