International Guidelines for Screening and Treatment
A comprehensive document outlining screening, treatment and management as determined by an international consensus from HHT experts worldwide. These guidelines were published by the Journal of Medical Genetics in 2009 and are utilized by providers at the HHT Centers of Excellence.
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Patient Symptom & Care Checklists
Provider Tool – 2020Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs….
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HHT International Clinical Guidelines (2020)
Guidelines – 2020Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document to share with your physician. It outlines the screening, treatment and management of HHT a…
MoreHHT International Clinical Guidelines (2009)
Guidelines – 2009Published by the Journal of Medical Genetics in 2009, the International Guidelines for the Diagnosis and Management of HHT (First “International Guidelines for the Diagnosis and Management of HHT”) is a comprehensive document to share with your physi…
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Everyone Should Use Backpack Health!
Two years ago, I wrote a blog about being the medical case manager for my own family where I shared tips and tricks to keep information organized and how to keep medical records when you transfer to d…
