International Guidelines for Screening and Treatment
A comprehensive document outlining screening, treatment and management as determined by an international consensus from HHT experts worldwide. These guidelines were published by the Journal of Medical Genetics in 2009 and are utilized by providers at the HHT Centers of Excellence.
Related Resources
Guías clínicas internacionales HHT (2020)
Español, Guidelines, Provider Tool – 2023Publicada por Annals of Internal Medicine en 2020, las “Segundas pautas internacionales para el diagnóstico y tratamiento de la HHT” son un documento completo para compartir con su médico. Describe la detección, el tratamiento y el manejo de la HHT s…
MoreListas de verificación de atención y síntomas del paciente
Español, Provider Tool – 2023Descargue y distribuya “Mis listas de verificación de atención HHT” a los pacientes para que las completen y se las devuelvan, incluidas: atención HHT, diagnóstico HHT, anemia, VM cerebrales, pediatría, adolescencia, hemorragia nasal, sangrado gastro…
MoreAbstracts – 14th HHT International Scientific Conference (2022)
Scientific Literature – 2023Angiogenesis. This article is open access and free for a certain period of time; otherwise, it is available for purchase directly from the publisher. Click to view resource.
MoreExecutive Summary – 14th HHT International Scientific Conference (2022)
Scientific Literature – 2023Angiogenesis. This article is open access and free for a certain period of time; otherwise it is available for purchase directly from the publisher. Click to view resource.
More
International HHT Guidelines: Diagnosis
Webinar – 2021Dr. Justin McWilliams, Co-Director, UCLA HHT Center of Excellence and Katie Wusik, Genetic Counselor for the Cincinnati Children’s Hospital HHT Center of Excellence discuss diagnosing HHT. Dr. McWilliams and Ms. Wusik walk the audience through how a…
More
International HHT Guidelines: Pulmonary AVMs (Recorded)
Webinar – 2021Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical Sciences HHT Center of Excellence discuss how to recognize the signs and symptoms of Pulm…
More
Las Guías Internacionales de HHT: Anemia (Recorded)
Español, Webinar – 2021El Dr. Marcelo Serra, Internista y Director de la Unidad de HHT, Hospital Italiano de Buenos Aires y la Dra. Yesica Lijdens, Otorrinolaringóloga del HHT Hospital Italiano de Buenos Aires, brindan información sobre los conceptos de anemia aplicados al…
More
International HHT Guidelines: GI Bleeding Management
Webinar – 2021Dr. Murali Chakinala, Co-Director, Washington University HHT Center of Excellence and Dr. Vivek Iyer, Director, Mayo Clinic HHT Center of Excellence as they discuss how to recognize the signs and symptoms of GI bleeding in HHT. Drs. Chakinala and Iye…
More
International HHT Guidelines – Overview (Recorded)
Webinar – 2021Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…
More
Patient Symptom & Care Checklists
Provider Tool – 2020Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs….
More
HHT International Clinical Guidelines (2020)
Guidelines – 2020Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document to share with your physician. It outlines the screening, treatment and management of HHT a…
MoreHHT International Clinical Guidelines (2009)
Guidelines – 2009Published by the Journal of Medical Genetics in 2009, the International Guidelines for the Diagnosis and Management of HHT (First “International Guidelines for the Diagnosis and Management of HHT”) is a comprehensive document to share with your physi…
MoreRelated News
Knowledge is Power: The 5 Biggest Changes in HHT Care
Upcoming Webinar: Knowledge is Power: The 5 Biggest Changes in HHT Care Thurs., February 26th | 7:00 p.m. (ET) Our understanding of HHT is constantly evolving. If you haven’t been to a confer…
A Monumental $128 Million Step Forward for HHT Research
April 3, 2024
15th HHT International Scientific Conference
March 1, 2024
2024 National HHT Patient & Physician Conference
November 28, 2023
Help save lives this Giving Tuesday
November 23, 2023