Cure HHT Announcements

Cure HHT Trivia Night - Charm City Trivia-01

Let’s Play! Virtual Trivia

Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this...
Book Club

Talk Circle: Living With HHT Virtual Book Club Event

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m....
PATH_Logo

PATH – Now Recruiting!

The PATH Study is exploring the use of an oral medication called pomalidomide for the...
Cure HHT RN Logo_RGB

Cure HHT Research Network: Clinician and Scientist Surveys

The Cure HHT Research Network has put together surveys for our medical and basic science...
Washington DC_Victory

A WIN on Capitol Hill for HHT!

You may recall that back in November 2020, Cure HHT reached out for help to...
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Beta Testers Needed for AnemoCheck Mobile App

Cure HHT and Sanguina have been working together to beta test a new smart phone...
CHRN Survey Logo

NEW Research Surveys Available!

The Cure HHT Research Network ("CHRN") is an HHT patient-led research network that encourages the...
Kilian - Screening for pulmonary VMs in North American - publication image 2020

North American Standard of Care for the Screening of Brain & Lung VMs

There is always excitement associated with the publication of one of our important research studies...
Meet-Up - COVID Panel(a)

Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information...