Cure HHT Announcements

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CDC Features HHT in Popular Webinar Series

One of the biggest challenges facing HHT patients continues to be the lack of HHT...
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Barrow Neurological Institute named new HHT Center of Excellence

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive...
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Cure HHT Spring 2021 Newsletter: Now Available!

Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as...
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New HHT-HTC Treatment Centers

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine...
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Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare...
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30 Years Strong Highlights

With your support, Cure HHT has accomplished so much, and the best is yet to...
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30th Anniversary Celebration

Cure HHT’s 30th Anniversary kick-off is a virtual celebration was a huge success, with with...
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Strides for Strength: Virtual Walk

Our 2nd Annual Global Walk for a Cure—Strides for Strength—is back for another exciting year...
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RARE GENOMES PROJECT: Genome Sequencing for Rare Disease

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs...
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PATH – Now Recruiting!

The PATH Study is exploring the use of an oral medication called pomalidomide for the...
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Let’s Play! Virtual Trivia

Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this...
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Talk Circle: Living With HHT Virtual Book Club Event

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m....
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Cure HHT Research Network: Clinician and Scientist Surveys

The Cure HHT Research Network has put together surveys for our medical and basic science...
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A WIN on Capitol Hill for HHT!

You may recall that back in November 2020, Cure HHT reached out for help to...
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Beta Testers Needed for AnemoCheck Mobile App

Cure HHT and Sanguina have been working together to beta test a new smart phone...