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CureHHT
  • HHT
    • What is HHT
      • Signs and Symptoms
      • Medical Summary
      • History of HHT
      • FAQ
    • Diagnosis & Treatment
      • International HHT Guidelines
      • Diagnostic Criteria for HHT
      • Genetic Testing for HHT
      • Screening Guidelines
      • Treatment of HHT
      • Newly Diagnosed
      • Nosebleed Severity Score
    • Get Support
      • HHT Treatment Centers
      • My HHT Tracker App
      • Find a Doctor
      • Resource Library
      • Webinars
      • Patient & Physician Conferences
      • International Patient Support
  • Research
    • Participate in Research
      • Clinical Research
      • Clinical Trials
    • Funding & Awards
      • Research Grants
      • Research Strategies
      • Research Funding Portfolio
    • Tools & Education
      • Advisory Board
      • Nosebleed Severity Score
      • Organ & Tissue Donation
      • 2019 International Scientific Conference
  • News & Resources
    • Latest News
      • Announcements
      • Newsletter
      • Video Library
      • Living with HHT Book
      • HHT in the News
      • Blog
    • Resources
      • HHT Treatment Centers
      • My HHT Tracker App
      • Find a Doctor
      • Webinars
      • Glossary
      • Resource Library
      • International Patient Support
      • Patient & Physician Conferences
  • Who We Are
    • Our Impact
    • Our Mission
    • Leadership & Board
    • Our Partners
    • Fiscal Reporting
    • Contact Us
  • Guidelines
  • Get Involved
    • Awareness
    • Events
    • Walk & Talk Series
    • Walk & Family Days
    • Fundraise for a Cure
    • Share Your Story
    • Partner Opportunities
    • Store
    • Zazzle
    • Join Us
  • Donate
    • Donate Now
    • Ways to Give
    • Tribute Gifts

Useful Links to Outside Organizations

Links to outside medical and government organizations that provide information useful for HHT patients.

Patient Topics
  • Anemia/ Iron Deficiency
  • Brain
  • Drug Therapy
  • Gastrointestinal
  • Genetics
  • Heart
  • HHT in children
  • Insurance
  • Liver
  • Lungs
  • Mental Health
  • Newly Diagnosed
  • Nosebleeds
  • Pregnancy & Women’s Issues
  • Skin
  • Useful Links to Outside Organizations
Advanced Search

Related Resources

MedlinePlus – US National Library of Medicine National, NIH

Organization, Scientific Literature – 2020

MedlinePlus – U.S. National Library of Medicine: an online health information resource for patients and their families and friends.

More

PubMed – US National Library of Medicine National, NIH

Organization, Scientific Literature – 2020

PubMed – NIH National Library of Medicine: National Center for Biotechnology Information and comprising more than 30 million citations for biomedical literature from Medline, including full-text content.

More

AirMedCare Network

Organization – 2020

AirMedCare Network is a membership organization. If you or your family have a medical emergency, their alliance of affiliated air ambulance helicopters and airplanes can provide medical transport, dramatically reducing travel time to an emergency tre…

More

Air Ambulance Worldwide

Organization – 2020

Need transportation to an HHT Center of Excellence? Air Ambulance Worldwide may be able to help. Air Ambulance Worldwide, Inc. offers a wide range of medical flight services, from our medical bed-to-bed private air ambulance service for patients with…

More

Mercy Flight Southeast

Organization – 2020

Need transportation to an HHT Center of Excellence? Mercy Flight Southeast may be able to help. Mercy Flight™ Southeast, Inc. is a non-profit organization that coordinates with volunteer pilot that desire to be involved in “public benefit flying.” We…

More

InsuranceWith – Travelling with a Medical Condition

Organization – 2020

Traveling with a medical condition can be challenging. This resource will address some of the common problems associated with travelling abroad, providing expert advice and tips throughout. You will find specific information on: travelling with medic…

More

Angel Flight

Organization – 2020

Need transportation to an HHT Center of Excellence? Angel Flight may be able to help. Angel Flight is a non-profit charitable organization of pilots, volunteers, and friends. They will arrange free air transportation for any legitimate, charitable, m…

More

Air Care Alliance

Organization – 2020

Need transportation to an HHT Center of Excellence? Air Care Alliance may be able to help. The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service.Learn who we…

More

Medicare Rights Center

Organization – 2020

Do you understand your Medicare rights and benefits? Medicare Rights Center can help you navigate the Medicare system and secure quality health care. The Medicare Rights Center is a national, nonprofit consumer service organization that works to ensu…

More

Kaiser Family Foundation Guide to the Medicaid Appeals Process

Organization – 2020

Medicaid appeals process made simple. Kaiser Family Foundation has developed a Guide to the Medicaid Appeals Process which provides case studies, flow charts, timelines, etc. There is a specific appeals process for each type of health insurance inclu…

More

Patient Advocate Foundation

Organization – 2020

Are you looking for a local, state or federal programs to assist with your healthcare needs? Patient Advocate Foundation seeks to empower patients to take control of their health care. Case managers work with patients to discover local, state, and fe…

More

Ronald McDonald House

Organization – 2020

Do you need a place to stay when you visit an HHT Center of Excellence? Ronald McDonald Houses may be just what the doctor ordered. Ronald McDonald Houses around the world offer families a way to stay together, in proximity to the treatment hospital,…

More

Genetic and Rare Diseases Information Center

Organization – 2020

Looking for current, reliable and easy to understand information about rare or genetic diseases? Contact GARD Information Specialist. Affiliated with the National Institutes of Health (NIH), the Genetic and Rare Diseases Information Center (GARD) is…

More

National Organization for Rare Disorders (NORD)

Organization – 2020

Cure HHT partners with NORD to empower the rare disease community. NORD maintains a Rare Disease Database, Rare Action Network, Patient Assistance Program, and Physician Guides. NORD organizes Rare Disease Day, the international advocacy day to bring…

More

American Society of Hematology – Physician Resources

Organization – 2020

Have questions about anemia? The American Society of Hematology has the answers. The American Society of Hematology (ASH) is committed to helping practicing hematologists provide quality care to patients, continue their professional development, and…

More
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Related News

February 13, 2020

Global Genes – Cure HHT’s Marianne Clancy Named “Rare Leader”

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January 4, 2020

Everyone Should Use Backpack Health!

September 4, 2019
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How to Fundraise for Cure HHT on Facebook

September 19, 2018

Living with HHT Book

May 9, 2018
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