Nosebleeds or Epistaxis
Resources to guide physicians in the management of epistaxis.
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Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)
Webinar – 2020Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING nosebleed related. From current drug therapies and surgical options, to food triggers and more, Dr….
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Physician Fact Sheet
Fact Sheet – 2020A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…
MoreRose Geranium Oil Compound
Scientific Literature – 2020This article is available for public use and does not require purchase. Click to view the full article.
MoreBevacizumab (Avastin) Use In HHT
Policy Statement – 2020Hereditary hemorrhagic telangiectasia (HHT, also known as OslerWeber-Rendu Syndrome) is a condition that is characterized by focal proliferation of blood vessels (vascular malformations) in multiple organs. Two of the most commonly affected organs in…
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The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreAbstracts – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreSystemic bevacizumab for the treatment of chronic bleeding in HHT
Scientific Literature – 2018Journal of Internal Medicine. Authors: Al-Samkari, H., Kritharis, A., Rodriguez-Lopez, J.M., and Kuter, D.J. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MorePazopanib May Reduce Bleeding in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018Angiogenesis. Authors: Marie E. Faughnan, James R. Gossage, Murali M. Chakinala, S. Paul Oh, Raj Kasthuri, Christopher C. W. Hughes, Justin P. McWilliams, Joseph G. Parambil, Nicholas Vozoris, Jill Donaldson, Gitanjali Paul, Pamela Berry, and Dennis…
MoreVitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018Biomarkers in Medicine. Authors: Lauren Marissa Weber, Jamie McDonald and Kevin Whitehead This article is available for public use and does not require purchase. Click to view the full article.
MoreVitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018A retrospective chart review of 198 patients was performed to explore the relationship between vitamin D levels and the ESS in order to explore the association between vitamin D levels and mild versus severe epistaxis, as well as the overall epistaxi…
MoreAvastin Indication Table
Article – 2018Table detailing Criteria for IV Bevacizumab (Avastin) Use for Epistaxis and GI Bleeding. Resource taken from: Iyer, V. N., Apala, D. R., Pannu, B. S., Kotecha, A., Brinjikji, W., Leise, M. D., … Swanson, K. L. Intravenous Bevacizumab for Ref…
MoreIntravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding
Scientific Literature – 2018Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D. Leise, MD; Patrick S. Kamath, MD; Sanjay Misra, MD; Kebede H. Begna, MD; Rodrigo Cartin-Ceba, MD; Hilary…
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HHT is More than a Bleeding Nose – What an ENT Doctor Needs to Know About HHT and Why.
Video – 2018Professor Anette Kjeldsen, Member of the VASCERN HHT Working Group and the HHT Center of Excellence at Odense University Hospital, Denmark, provides and overview for Ear, Nose & Throat (ENT) Doctors in order to help them properly recognize the s…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MorePulmonary Arteriovenous Malformations (PAVMs) and Hereditary Hemorrhagic Telangiectasia (HHT)
Article – 2018Dr. Marie Faughnan, Cure HHT Scientific Research Director and Director of the HHT Center of Excellence at St. Michael’s Hospital / University of Toronto, provides a detailed overview of everything a medical professional needs to know about HHT and PA…
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CURE HHT OFFICIAL STATEMENT COVID-19 Traducción Española Update: August 6, 2020 | COVID-19 TESTING Scott Olitsky, MD, MBA – Cure HHT Chief Medical Officer James R. Gossage, MD – Director, Augusta Uni…
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