Nosebleeds
Resources addressing the treatment of nosebleeds.
Related Resources
Iron Replacement in HHT
Policy Statement – 2025Iron deficiency anemia is common in people with HHT with an estimated prevalence of 50%. Further, a number of people with HHT develop symptomatic iron deficiency without anemia. Iron deficiency is an under recognized and sub-optimally managed complic…
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A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)
Webinar – 2024Join us to learn about sclerotherapy, an innovative treatment offering hope to HHT patients suffering from chronic nosebleeds. Dr. Jay Piccirillo, ENT at Washington University, explains how this minimally invasive therapy works, its benefits, who qua…
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United States Map of Nasal Sclerotherapy Providers
Patient Tool, Provider Tool – 2024This Map shows the current US HHT experts that perform nasal sclerotherapy as of November, 2024. This image was created by Dr. Jay Piccirillo at Washington University. Please note that local providers may also offer nasal sclerotherapy.
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Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded)
Webinar – 2024Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at University of Florida, goes over a variety of ways you can help manage your HHT-related nosebleeding. Treatments available for patients are rapidly evolving. Learn about all t…
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Hemorragias Nasales (epistaxis) y HHT
Español, Fact Sheet – 2024Hoja informativa complementaria a los recursos para pacientes de Mi Checklist Sobre HHT Cuidados, y basada en las actualizaciones de las Segundo HHT Internacional Directrices publicadas en Annals of Internal Medicine en 2020.
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How to Be an HHT Changemaker Part 1: Drive Research (Recorded)
Webinar – 2024Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Co…
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NEW Criteria! Groundbreaking Trial for HHT: Learn About Pazopanib (Recorded)
Webinar – 2024Your questions answered about our newest clinical trial with NEW expanded criteria! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is now eligible, what Pazopanib is, and how you can get involved!
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Pazopanib: A Groundbreaking Trial for HHT (Recording)
Webinar – 2023Get your questions answered about our newest clinical trial! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is eligible, what Pazopanib is and how you can get involved!
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Research Roundtable: An Inside Look at Exciting Clinical Trials
Webinar – 2023Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial…
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Nosebleed Management – Nurse Cards
Patient Tool, Provider Tool – 2022This card contains helpful tips for nosebleed management in a format that is ideal for providers who may not be familiar with the care required for HHT-related nosebleeds. Additionally, the card is available for purchase in our store on durable cards…
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Back to School (tips for caregivers of children with HHT)
Video – 2022Facebook Live event featuring Cure HHT Chief Medical Officer, Scott Olitsky, MD, and school nurse, Leslie A. Perry, RN, MS as children gear up and get ready to head back to school. The duo covers a range of topics from how to discuss HHT with your sc…
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A Comprehensive Guide to Managing Your HHT
Brochure, Fact Sheet, Patient Tool – 2022We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Gui…
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Bedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
Webinar – 2021In March 2020, Cure HHT was 1 of 30 organizations selected to participate in the Chan Zuckerberg Initiative (also known as CZI) Rare is One Project. This ambitious project is lifting up the work that patient communities are doing to accelerate resear…
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International HHT Guidelines: Epistaxis/Nosebleed Management (Recorded)
Webinar – 2021Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr. James Gossage, Director, Augusta University HHT Center of Excellence discuss the new International HHT Guidelines for Epistaxis (Nosebleed Management). Both doctors are r…
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Las Guías Internacionales de HHT: Epistaxis en HHT (Grabado)
Español, Webinar – 2021La Dra. Yesica Lijdens, Otorrinolaringóloga de la Unidad HHT Hospital Italiano de Buenos Aires, y el Dr. Federico Urquiola, Otorrinolaringólogo y Coordinador ORL de la Unidad HHT Hospital Italiano de Buenos Aires, brindan información sobre cómo trata…
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Webinar: Mental Health & HHT
Mental Health & HHT Tues., May 24th | 12:00 p.m. (ET) Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical challenges, and this webinar will address the often-overloo…
More Than A Nosebleed: Buddy’s Story
December 13, 2024
More Than A Nosebleed: Collyns’ Story
December 10, 2024
HHT Kids Day – San Francisco
July 13, 2024
June Awareness – Be an HHT Changemaker!
June 1, 2024