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News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

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Donegal News: Letterkenny man shares story to mark Rare Disease Day

February 28, 2023 | Donegal News (Ireland). Letterkenny man shares story to mark Rare Disease Day - "Letterkenny man Michael MacGinty, who suffers with a...
Welcome Cassi Friday, PhD

Cure HHT Welcomes Cassi Friday, PhD

  Cure HHT is thrilled to welcome Cassi Friday, PhD as the newest member of our team! Get to know Cassi, her connection to HHT,...
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Help Keep Us On the Cutting Edge

The turn of the calendar to December marks the kickoff of our year-end appeal, and this year we are asking for your continued support to help...

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

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With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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