News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

A major milestone for HHT treatment!

I am reaching out to share the news of a truly momentous milestone for both our organization and our community; the Pazopanib clinical trial has...

Pazopanib Clinical Trial: Q&A

The Pazopanib clinical trial has launched, and the road to reach this breakthrough milestone has been more involved and hard-fought than many may realize. Cure...

Children’s Hospital of Philadelphia receives funding for pediatric HHT patients

HHT providers at the Children’s Hospital of Philadelphia receive funding from the Department of Pediatrics Chair’s Initiative to increase clinical and research excellence for pediatric...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Abstracts – 14th HHT International Scientific Conference (2022)

Executive Summary – 14th HHT International Scientific Conference (2022)

Family Ambassador - Sara Palmer (June 2023)

HHT Family Ambassadors & Communicating with Family

Angel Flight NE

Uncovering Your Roots: Decoding Genetic Testing

Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods

Dietary Iron & HHT

Research Roundtable: An Inside Look at Exciting Clinical Trials

Olitsky - HHT and PH - FB Live (11.2022)

The Connection Between HHT and PH

Explore Resource Library

HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

LEARN MORE

Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

LEARN MORE