News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

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With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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Why Was This Teenager Bleeding So Excessively?

The New York Times Magazine | 2018
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Legislative Activity Impacting HHT

Recently, I have taken a more active role in the HHT community as a member of the legislative committee. It is so important for lawmakers...
Eleanor was diagnosed with HHT January 2017 and her little brother Theo was just diagnosed this month. They are wearing their happy organ shirts given to them by their Aunt Abby and Uncle Joe! We hope for happy organs for them both as they go through their journey with HHT.

Genetics 101! Happy New Year, HHT Community!

I thought I would use this time and space to update you on the newest Friday family addition, our son, Theo! Theodore was born last...
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I am So Lucky!!!

A silver lining is a funny thing. You wish you could see it while you are mucking your way through a crisis, but you can’t, and...
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Holiday Reflections

November is one of my favorite months due to the beautiful change in the air with the crisp and cool mornings and nights; the gorgeous...
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Charlie Druken was ‘living the dream’ at NHL oldtimers game

The Telegram | 2017