News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

Donegal News: Letterkenny man shares story to mark Rare Disease Day

February 28, 2023 | Donegal News (Ireland). Letterkenny man shares story to mark Rare Disease Day - "Letterkenny man Michael MacGinty, who suffers with a...

Cure HHT Welcomes Cassi Friday, PhD

Cure HHT is thrilled to welcome Cassi Friday, PhD as the newest member of our team! Get to know Cassi, her connection to HHT,...

Help Keep Us On the Cutting Edge

The turn of the calendar to December marks the kickoff of our year-end appeal, and this year we are asking for your continued support to help...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Research Roundtable: An Inside Look at Exciting Clinical Trials

Olitsky - HHT and PH - FB Live (11.2022)

The Connection Between HHT and PH

Nosebleed Management – Nurse Cards

Back to School (tips for caregivers of children with HHT)

PH and HHT: Signs, Symptoms and Disease Management (Recorded)

Blood Advances - Development and Performance of a HHT QOL Instrument (Kasthuri, 2022)

Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument

Heartland Regional Genetics Network

HHT Frontlines – Scientific Newsletter

A Comprehensive Guide to Managing Your HHT

Explore Resource Library

HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

LEARN MORE

Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

LEARN MORE