News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

HHT in the News – Wisconsin

KENOSHA — For most of his life, Mark Schnuck has had nosebleeds. Some have been minor, others severe, but they have just been something the...

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“How the Healthcare Industry Failed my Daughter”

Hello everyone. My daughter, Sofia, is 13 years old and has recently been diagnosed with HHT. When Sofia was about three years old she started...

Everyone Should Use Backpack Health!

Two years ago, I wrote a blog about being the medical case manager for my own family where I shared tips and tricks to keep...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Identification of Retinal Vascular Lesions Using Ultra-Widefield Angiography in HHT Patients

Webinar: Getting to Know Backpack Health – Live App Demo (recorded)

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Backpack Health App

HHT Lung AVMs – A Tangled Web (recorded)

IVF and Preimplantation Genetic Testing for HHT (recorded)

Anemia and Iron Deficiency in HHT (recorded)

Avastin Indication Table

Healthcare Provider Brochure – Role of a Doctor in HHT Care

Screening & Treatment of Brain AVMs in HHT (recorded)

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.