News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Screening & Treatment of Brain AVMs in HHT (recorded)

Cure HHT Newsletter 2019 Volume 1

Links Between Strokes and HHT: A Population-Based Study

#myHHTvalentine

Eating for Health: Dietary Choices that Impact Bleeding

Dietary Choices That Impact Bleeding

Initial Experience of a HHT Center of Excellence (UCLA)

Systemic bevacizumab for the treatment of chronic bleeding in HHT

HHT: Diagnosis and Management from the Hematologist’s Perspective

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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Latest News

Rainbow Rehab’s Rainbow Visions Magazine: Coming Full Circle

Much of HHT education comes from the deeply personal stories of those who are living with the disorder. This incredible article by recreational therapist Lindsay...

Part II: Floating Down the River of De-Nial

You’ll know from Part I that I was in denial. I decided not to accept Dr. Old School’s opinion that I had HHT and would...

Part I: Dr. Old School, Diagnosis and Denial

Maybe this will sound familiar to you. Pesky nosebleeds that, over time, become prevalent, preoccupying and pernicious. I have suffered from nosebleeds since I was...