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News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Important FDA Update Regarding Iron Infusions 

Important FDA Update Regarding Iron Infusions 

There's been a change to the safety label for Injectafer®, an iron infusion often used to treat iron deficiency. The FDA now includes HHT as...
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Volunteers Needed! Join Cure HHT on Capitol Hill

We are calling upon volunteers to Join us in Washington, DC, for HHT Hill Day and be the voice that drives change! Your presence can...
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Cure HHT’s 2024 Impact Report

2024: A Year of Significant Transformation and Progress Every year is a different chapter in our story – each bringing us closer to our ultimate...

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

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With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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