News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

IVF and Preimplantation Genetic Testing for HHT (recorded)

Anemia and Iron Deficiency in HHT (recorded)

Avastin Indication Table

Healthcare Provider Brochure – Role of a Doctor in HHT Care

Screening & Treatment of Brain AVMs in HHT (recorded)

Cure HHT Newsletter 2019 Volume 1

Links Between Strokes and HHT: A Population-Based Study

#myHHTvalentine

Eating for Health: Dietary Choices that Impact Bleeding

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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Latest News

How a Stroke Changed My Life

Just a few years ago, I was a 48-year-old sales manager and an owner of a large, successful manufacturing company. I was always in great...

I was finally part of the 1%

This is a story that begins back in mid-summer of 2005, June 9th. Thirteen years ago, my brother, Robert, died from HHT (Hereditary Hemorrhagic Telangiectasia)....

Lifelong Battle

This is my wife, Renee's story. Renee started her battle with HHT, unknowingly, as a young child. After researching her history, with family members, it...