News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

HHT-Ireland-Women-in-Science250 - McLoughlin

Women in Science Day 2021 – International

"HHT Ireland reminds us that women and girls play a critical role in science and technology communities and that their participation should be strengthened." HHT...

A Tale of Two Sisters (Part 2)

My name is Hope and I’m 8 ½ years old. My sister has had nosebleeds ever since I can remember. Sometimes she has a nosebleed...

A Tale of Two Sisters (Part 1)

I have had nosebleeds ever since I was 5 years old. These nosebleeds aren’t your normal nosebleeds - I get them every day, sometimes more...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Genetic Alliance - Understanding Vaccines (Feb. 2021)

Genetic Alliance – Coronavirus Vaccines (Recorded)

COVID Vaccine Infographic

Backpack Health – HHT Specific App Instructions

COVID-19 Official Updates Page

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HHT and COVID-19: Basics and What We Know in HHT

HHT and COVID-19: Vaccines

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HHT and COVID-19: Clotting and Anemia

Presentacion - HHT Generalidades y nociones básicas

WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)

Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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