News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

FDA Adds Boxed Warning to Ferric Carboxymaltose Following Petition Led by Cure HHT’s Dr. Scott Olitsky

When something in HHT care isn’t working the way it should, speaking up matters. On August 13, 2026, the US Food and Drug Administration (FDA)...

Cure HHT Announces Palmer Family Fund Young Investigator Travel Award Recipients for 16th HHT International Scientific Conference

MONKTON, MD — AUGUST 20, 2026 — Cure HHT is proud to announce the recipients of the Palmer Family Fund for Young Investigator Travel Awards...

Vaderis Therapeutics Announces Series B Financing and Initiation of the Global Phase 3 HEROIC Study

Cure HHT is thrilled to share this important milestone from Vaderis Therapeutics: the initiation of the global Phase 3 HEROIC study evaluating engasertib, an investigational...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Your Samples, Your Impact: How the Cure HHT Biobank is Accelerating Research

State of HHT: An Update from Cure HHT’s CEO

Town Hall: Cure HHT Centers of Excellence Program Updates

2751746_Awareness26-CaregiverTipSheet_060826

REST for Caregivers

Women’s Health & HHT: Across the Lifespan

Brain AVMS – Recent Advances in Imaging and Management (Recording)

Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk (Recording)

Knowledge is Power: The 5 Biggest Changes in HHT Care (Recording)

Comprehensive Guide to Managing Your Nosebleeds (Recording)

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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