Skip to content

News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Anzell_UA 2024_cropped 1

Uplifting Athletes Support the Rare Disease Community

What does the NFL Draft, WWE star Joe Spivak (aka Tank Ledger), and HHT research have in common? Before Feb 2024, nothing! Allow me to...
Lapides-Jim and Michelle-2 cropped

An HHT patient conference can change your life

A Letter from Cure HHT Board Member, Jim Lapides I am writing to share an invaluable opportunity for all HHT patients - Cure HHT is...
Ann Trussell family

Ann Trussell: “My promise to my daughters…I will do everything in my power to find a cure!”

Ann Trussell joined the Cure HHT Board of Directors to help ensure the next generation of HHT patients don’t experience the pain and struggles of...

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Treatment Centers Header Image

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

notebook-2386034_1920

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

Scroll To Top