News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

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With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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Lifelong Battle

This is my wife, Renee's story. Renee started her battle with HHT, unknowingly, as a young child.  After researching her history, with family members, it...
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Everything but HHT … The Story of a Diagnosis

As a former lawyer and a professional musician, I always thought I was kind of healthy. I say kind of because I’ve always had bad...
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Part III: No Nosebleeds, No Problem?

If you meet with a geneticist, they ask you about your family.  My father had a brother and a sister, but my mother was one...