News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Role of Contrast Echocardiography in Screening for Pulmonary Arteriovenous Malformation in Patients with HHT

Genetics: HHT Overview

2018 HHT Global Awareness Day Toolkit

I TOOK STEPS TO CURE HHT Sign

HHT Genetic Testing Services – Information for Clinicians

5’UTR Mutations of ENG Cause Hereditary Hemorrhagic Telangiectasia

Cure HHT Newsletter 2018 Volume 2

Genetics: Unraveling Your DNA (recorded)

HHT Genetic Counseling Services

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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Latest News

Why Proper Screening and Treatment Can Save Your Life

It’s June—warm, spring days, flowers, playing outside—and HHT Awareness Month! If you’re reading this post, you probably know at least a little about HHT. But...

Why am I an HHT Warrior?

Some may ask why am I an HHT warrior? What is HHT*? Why are you so passionate about HHT? You don’t look sick, you seem...

Living with HHT Book

Have you read my new book, Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia? It’s designed to tell you everything you need to...