News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

Cure HHT Official Health Updates: Coronavirus Disease (COVID-19)

CURE HHT OFFICIAL STATEMENT COVID-19 Traducción Española Update: April 2, 2020 Marie Faughnan, M.D., M.Sc - Director, Toronto HHT Centre of Excellence Director There is...

Announcement from Cure HHT Executive Director (COVID-19)

A Message from Cure HHT Executive Director, Marianne Clancy To our HHT Community: Two years ago, we coined the phrase #InThisTogether as part of our annual...

PATH – Now Recruiting!

The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

COVID-19: Mind over Matter (recorded)

Cure HHT Social Media Channels

COVID-19 Fact Check Links

COVID-19 Reliable Resources

Becoming a Family Ambassador

Bevacizumab (Avastin) Use In HHT

Understanding Your Positive SMAD4 Genetic Result

Rare Coagulation Disorders Resource Room – HHT

$Bevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia$

Bevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.