News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

2019 SciCon – Angiogenesis Publications

The executive summary and abstracts from the 2019 HHT International Scientific Conference, including details of the clinical and basic science, are now available online in...

Cure HHT Support of Legislative Bill H.R.4144 – “Ending the Diagnostic Odyssey Act”

Cure HHT supports legislative bill H.R.4144 - "Ending the Diagnostic Odyssey Act." "[N]early 80% of all rare diseases have a genetic cause, and half of...

Cure HHT – 2019 Research, Medical Access and Awareness Initiatives Brochure

An overview of Cure HHT's work, made possible by your support, in advancing diagnosis, treatment and research of HHT.

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Living with HHT (recorded)

Section 504 of the Rehabilitation Act

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Future Treatments for Hereditary Hemorrhagic Telangiectasia

Abstracts – 13th HHT International Scientific Conference (2019)

Executive Summary – 13th HHT International Scientific Conference (2019)

Systemic bevacizumab for high-output cardiac failure in HHT: an international survey of HHT centers

Identification of Retinal Vascular Lesions Using Ultra-Widefield Angiography in HHT Patients

Webinar: Getting to Know Backpack Health – Live App Demo (recorded)

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Backpack Health App

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.