News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

HHT Awareness in a BIG Way!

This June Awareness Month, Cure HHT was able to spread awareness in a huge way with a 24-foot-wide billboard! Our "More Than Just a Nosebleed"...

New HHT Center Gives Hope to Father and Son with Rare Genetic Disease

May 19, 2020 | Michigan Health | by Rene Wisely: "Nose bleeds are a less frequent tradition in the Gutowski family now as a team...

One Kiwis Dream for HHT Awareness

My first time learning about HHT was in 2016 when I was diagnosed with the disease at the young age of 43. I had suffered a fall from my horse that landed...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Ask the Doctor: HHT and Pulmonary Hypertension (recorded)

PH and HHT Patient Brochure

Physician Fact Sheet

Managing Stress and Emotional Hurdles in HHT (recorded)

Navigating the NEW Resource Library (recorded)

Rose Geranium Oil Compound

Rare Coagulation Disorders Resource Room – HHT

PubMed – US National Library of Medicine National, NIH

MedlinePlus – US National Library of Medicine National, NIH

Explore Resource Library

HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.