News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Systemic bevacizumab for the treatment of chronic bleeding in HHT

HHT: Diagnosis and Management from the Hematologist’s Perspective

Becoming a Family Ambassador

Pulmonary Hypertension Awareness Month Infographic

Pulmonary Hypertension Fact Sheet for Awareness Month

Pulmonary Hypertension Awareness Flyer

My HHT Tracker (recorded)

My HHT Tracker – URL Links

My HHT Tracker Quick Guide

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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Latest News

Sharing to make a difference

Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals...

HHT International Scientific Conference

On behalf of the Organizing Committee, we would like to invite you to join us in Rio Grande, Puerto Rico for the 13th HHT International Scientific Conference....

Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section's featured article about a HHT diagnosis, written by Sandra...