Living with HHT
Sara Palmer, PhD
Dr. Palmer is a retired psychologist and former assistant professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University School of Medicine.
She is the coauthor of Spinal Cord Injury: A Guide for Living; When Your Spouse Has a Stroke: Caring for Your Partner, Yourself, and Your Relationship; and Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability.
Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
By Sara Palmer, PhD
In this one of a kind book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. This book is currently available in two languages (English and Arabic).
Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and heir families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.
*Cure HHT receives a portion of the proceeds when the book is purchased through Amazon Smile and you choose Cure HHT as your preferred charity. Additionally, Dr. Palmer donates all book royalties to Cure HHT.
"A lot of people in my country aren't diagnosed and we don't have a clinic here specialized for HHT. I buy the book Living with HHT and it's very useful." - Zuhair M.
“A must-read for patients and health care professionals seeking information about HHT, an uncommon disease diagnosis. Families will find answers in this thoroughly researched resource, learn about HHT’s psychological impact, and discover coping strategies for living a long and happy life as they navigate their medical journey.” —Marianne Clancy, Executive Director, Cure HHT
Interested in translating Living with HHT to a different language? Please contact us at [email protected]
About the translator: Ahmad Y. Alzahrani graduated with MBBS (Medicine Bachelor and Bachelor of Surgery) degree from King Saud University, Riyadh, Saudi Arabia. Completed his MPH (Master of Public Health) with concentration on health systems and quality management from King Saud bin Abdulaziz University for Health Sciences, in Riyadh, Saudi Arabia.
Dr. Alzahrani is a member of a family carrying the genes of HHT and, unfortunately, lost his mother due to a complication of HHT. Since then, he has dedicated his time and efforts helping others (especially HHT patients and their families) to better understand the disease. One of these efforts includes translating the Living with HHT book by Sara Palmer, PhD to Arabic, which will help raise awareness about HHT.
He is currently a Chief Resident Physician in Saudi Board of Preventive Medicine in Jeddah City, as well as the Regional Chief Resident in the second sector for preventive medicine programs. Previously, he was working as Research and Development Director in Saudi Red Crescent Authority in Riyadh City of Saudi Arabia. Earlier he was assigned as Medical Director in the same institution. He published several papers pertaining to public health as well as quality improvement projects.