Filter Test Search Search Resources Resouce Type All TypesArticleBrochureEspañolFact SheetFundraisingGovernmentGuidelinesNewsletterOrganizationPatient ToolPolicy StatementProvider ToolScientific LiteratureVideoWebinar Patient Topics All TopicsAnemia/ Iron DeficiencyBrainCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceLiverLungsMental HealthNewly DiagnosedNosebleedsPregnancy & Women’s IssuesSkinUseful Links to Outside Organizations Provider Topics All TopicsAnemia/ Iron DeficiencyBrainHHT Continuing EducationClinicians First Time Seeing a Patient with HHTCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceInternational Guidelines for Screening and TreatmentLiverLungsNosebleeds or EpistaxisPregnancy & Women's IssuesScientific NewsletterSkinUseful Links to Outside Organizations Title Year Type Description Topic(s) Mi CHECKLIST Sobre HHT Cuidados: Malformaciones Vasculares Hepáticas (MVH) 2023 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Liver Mi CHECKLIST Sobre HHT Cuidados: Sangrado Gastrointestinal 2023 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Gastrointestinal Mi Checklist Sobre HHT Cuidados: Malformaciones Vasculares Cerebrales (MVC) 2023 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Brain The Role of Genetics in HHT (for patients) 2023 Brochure For people who suspect that they might have HHT, this brochure provides an overv… Patient Topics: Genetics, Newly Diagnosed The Role of Genetics in HHT (for providers) 2023 Brochure This brochure gives healthcare providers an overview of the signs, symptoms, and… Provider Topics: Genetics Abstracts – 14th HHT International Scientific Conference (2022) 2023 Scientific Literature Angiogenesis. This article is open access and free for a certain period of time;… Provider Topics: Anemia/ Iron Deficiency, Brain, COVID-19, Clinicians First Time Seeing a Patient with HHT, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Heart, Insurance, International Guidelines for Screening and Treatment, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues, Scientific Newsletter, Skin, Useful Links to Outside Organizations Executive Summary – 14th HHT International Scientific Conference (2022) 2023 Scientific Literature Angiogenesis. This article is open access and free for a certain period of time;… Provider Topics: Anemia/ Iron Deficiency, Brain, COVID-19, Clinicians First Time Seeing a Patient with HHT, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Heart, Insurance, International Guidelines for Screening and Treatment, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues, Scientific Newsletter, Skin, Useful Links to Outside Organizations HHT Family Ambassadors & Communicating with Family 2023 Video FB Live Event – Join Sara Palmer, PhD, author of Living with HHT, and Riley Blev… Patient Topics: Mental Health, Newly Diagnosed Angel Flight NE 2023 Organization, Patient Tool Angel Flight NE is a non-profit organization providing FREE medical air transpor… Patient Topics: Useful Links to Outside Organizations Provider Topics: Useful Links to Outside Organizations Uncovering Your Roots: Decoding Genetic Testing 2023 Video, Webinar Discover the power of genetic testing as we uncover the roots of HHT! Join us fo… Patient Topics: Genetics, Newly Diagnosed Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods 2023 Video, Webinar Calling all foodies! Grab your apron and head to the kitchen to join Registered… Patient Topics: Anemia/ Iron Deficiency Dietary Iron & HHT 2023 Fact Sheet Iron deficiency is a common and important manifestation of HHT. Lack of iron mak… Patient Topics: Anemia/ Iron Deficiency Research Roundtable: An Inside Look at Exciting Clinical Trials 2023 Webinar Delve into the exciting clinical research projects underway in HHT! Cassi Friday… Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Genetics, HHT in children, Heart, Liver, Lungs, Mental Health, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues The Connection Between HHT and PH 2022 Video Learn more about the connection between HHT and PH, disease management, signs an… Patient Topics: Heart, Lungs Nosebleed Management – Nurse Cards 2022 Patient Tool, Provider Tool This card contains helpful tips for nosebleed management in a format that is ide… Patient Topics: HHT in children, Newly Diagnosed, Nosebleeds Back to School (tips for caregivers of children with HHT) 2022 Video Facebook Live event featuring Cure HHT Chief Medical Officer, Scott Olitsky, MD,… Patient Topics: HHT in children, Newly Diagnosed, Nosebleeds PH and HHT: Signs, Symptoms and Disease Management (Recorded) 2022 Webinar PHA and Cure HHT – Murali M. Chakinala, M.D. discusses the importance of recogni… Patient Topics: Heart, Lungs, Newly Diagnosed Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument 2022 Scientific Literature Blood Advances. Authors: Raj S Kasthuri, Shruti Chaturvedi, Sonia Thomas, Nathan… Provider Topics: Clinicians First Time Seeing a Patient with HHT, Nosebleeds or Epistaxis Heartland Regional Genetics Network 2022 Español Heartland Regional Genetics Network ofrece materiales gratuitos en español para… Patient Topics: Genetics, Useful Links to Outside Organizations Provider Topics: Genetics HHT Frontlines Scientific Newsletter (2018) 2018 Newsletter February 2018. Cure HHT’s biannual newsletter that centralizes and summarizes se… HHT Frontlines Scientific Newsletter (2019) 2019 Newsletter June 2019. Cure HHT’s biannual newsletter that centralizes and summarizes select… HHT Frontlines – Scientific Newsletter 2022 Newsletter Spring 2022. Cure HHT’s biannual newsletter that centralizes and summarizes sele… Provider Topics: Scientific Newsletter A Comprehensive Guide to Managing Your HHT 2022 Brochure, Fact Sheet, Patient Tool We’ve taken the International HHT Guidelines and distilled them into easily read… Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Genetics, HHT in children, Liver, Lungs, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin Provider Topics: Clinicians First Time Seeing a Patient with HHT Bedside to Bench: How the HHT Community Drives Research Initiatives (Recorded) 2021 Webinar In March 2020, Cure HHT was 1 of 30 organizations selected to participate in the… Patient Topics: Anemia/ Iron Deficiency, Brain, Drug Therapy, Gastrointestinal, Genetics, Liver, Lungs, Nosebleeds, Pregnancy & Women’s Issues Provider Topics: Anemia/ Iron Deficiency, Brain, Drug Therapy, Gastrointestinal, Genetics, Heart, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues Las Guías Internacionales de HHT: Epistaxis – Tratamiento Farmacológico (Grabado) 2021 Español, Webinar El Dr. Marcelo Serra, Director de la Unidad de HHT del Hospital Italiano de Buen… Provider Topics: Nosebleeds or Epistaxis HHT International Guidelines: Brain Vascular Malformations (VMs) (Recorded) 2021 Webinar Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence, discusses Brain… Patient Topics: Brain Provider Topics: Brain Physician Webinar: The Role of Liver Imaging in HHT (Recorded) 2021 Webinar Liver involvement occurs in approximately 75% of people with HHT. While many peo… Provider Topics: Clinicians First Time Seeing a Patient with HHT, Liver Giving hereditary haemorrhagic telangiectasia the attention it deserves 2021 Article The Lancet Haematology. Author: Hanny Al-Samkari, MD. This article can be purcha… Provider Topics: Anemia/ Iron Deficiency, Nosebleeds or Epistaxis International HHT Guidelines: Diagnosis 2021 Webinar Dr. Justin McWilliams, Co-Director, UCLA HHT Center of Excellence and Katie Wusi… Patient Topics: Genetics, Newly Diagnosed Provider Topics: Clinicians First Time Seeing a Patient with HHT, International Guidelines for Screening and Treatment Iron Replacement in HHT 2025 Policy Statement Iron deficiency anemia is common in people with HHT with an estimated prevalence… Patient Topics: Anemia/ Iron Deficiency, Gastrointestinal, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Gastrointestinal, Nosebleeds or Epistaxis Previous Next
