Heart
Resources for understanding and treating issues that affect the heart in HHT patients including heart failure and pulmonary hypertension.
Related Resources
My HHT Care Checklist
Guidelines, Patient Tool – 2020The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…
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Ask the Doctor: HHT and Pulmonary Hypertension (recorded)
Webinar – 2020Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver Programs at the Pulmonary Hypertension Association, discuss the dual diagnoses of Hereditary Hemorrhagic Telangiectasia (HHT) and Pulmonary Hypert…
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PH and HHT Patient Brochure
Brochure – 2020Did you know that if you have HHT you are at risk for Pulmonary Hypertension? The Pulmonary Hypertension Association developed a brochure for PH and HHT patients that provides answers for the most commonly asked questions. There are several HHT Cente…
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The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreSystemic bevacizumab for high-output cardiac failure in HHT: an international survey of HHT centers
Scientific Literature – 2019Orphanet Journal of Rare Diseases. Authors: Hanny Al-Samkari, Hasan A. Albitar, Scott E. Olitsky, Marianne S. Clancy and Vivek N. Iyer. This article is available for public use and does not require purchase. Click to view the full article.
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights
Scientific Literature – 2017Author: Veronique M.M. Vorselaars. This article is available for public use and does not require purchase. Click to view the full article.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
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Cardiac and Liver Manifestations (recorded)
Webinar – 2015Dr. Kevin Whitehead, Co-Director at the University of Utah HHT Center of Excellence, covers various ways that the heart can be affected in HHT, including heart failure due to liver AVMs and pulmonary hypertension. The presentation is followed by a Q…
MoreBevacizumab: Finding its Niche in the Treatment of Heart Failure Secondary to Liver Vascular Malformations in HHT
Scientific Literature – 2013Hepatology. Authors: Lawrence H. Young, Katharine J. Henderson, Robert I. White, and Guadalupe Garcia-Tsao. This article is available for public use and does not require purchase. Click to view the full article.
MoreHepatobiliary and Pancreatic: Pancreatic Vascular Malformations in HHT
Scientific Literature – 2012Journal of Gastroenterology and Hepatol. Authors: K. Lim, W. Tam, C. Worthley, and N. Q. Nguyen. This article is available for public use and does not require purchase. Click to view the full article.
MoreBevacizumab Reverses Need for Liver Transplantation in HHT
Scientific Literature – 2008Liver Transplantation. Authors: Andrew Mitchell, Leon A. Adams, Gerry MacQuillan, Jon Tibballs, Rohan vanden Driesen, and Luc Delriviere. This article is available for public use and does not require purchase. Click to view the full article.
MoreLiver Transplantation for Cardiac Failure in Patients with HHT
Scientific Literature – 2005Liver Transplantation. Authors: Thierry Thevenot, Claire Vanlemmens, Vincent Di Martino, Marie-Claude Becker, Pierre-Olivier Denue, Bernadette Kantelip, Solange Bresson-Hadni, Bruno Heyd, Georges Mantion, and Jean-Philippe Miguet. This article is ava…
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Bedside to Bench: How the HHT Community Drives Research Initiatives (Recorded)
In January of this year, over 1,200 HHT patients, caregivers, clinicians and researchers responded to surveys about their thoughts on all things HHT. Now, the results are in! Learn how Cure HHT is usi…
Recorded WEBINAR: The Science Behind the 2019 Scientific Conference
February 2, 2020
2019 SciCon – Angiogenesis Publications
January 8, 2020
Everyone Should Use Backpack Health!
September 4, 2019