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Living with a chronic illness such as HHT can feel isolating, and affect physical and emotional well-being.

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Related Resources

How to Be an HHT Changemaker Part 1: Drive Research (Recorded)

Webinar – 2024

Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Co…

HHT Family Ambassadors & Communicating with Family

Video – 2023

FB Live Event – Join Sara Palmer, PhD, author of Living with HHT, and Riley Blevins of Cure HHT as they navigate discussing HHT with family members and the importance of being a family ambassador during HHT Awareness Month in June. Click image below…

Research Roundtable: An Inside Look at Exciting Clinical Trials

Webinar – 2023

Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial…

My HHT Care Checklist

Patient Tool – 2020

The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are based on the care recommended in the HHT Guidelines. Start with the “Checklist for My HHT C…

Managing Stress and Emotional Hurdles in HHT (recorded)

Webinar – 2020

Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine, discusses how to manage stress and emotional hurdles i…

COVID-19: Mind over Matter (recorded)

Webinar – 2020

Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challenging times of COVID-19 coupled with HHT. Join Dr. Palmer as she addresses the stressors s…

Living with HHT (recorded)

Webinar – 2020

Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how t…

Executive Summary – 12th HHT International Scientific Conference (2017)

Scientific Literature – 2017

Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…

Depression and Post-Traumatic Stress Disorder in Individuals with HHT

Scientific Literature – 2017

Thrombosis Research. Authors: Shruti Chaturvedi, Marianne Clancy, Nicole Schaefer, Olalekan Oluwole, and Keith R. McCrae. This article is available for public use and does not require purchase. Click to view the full article.

HHT & Depression

Fact Sheet – 2016

The stress of living with a genetic disease can lead to depression. Learn how to recognize the signs and symptoms.

Executive Summary – 11th HHT International Scientific Conference (2015)

Scientific Literature – 2015

Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…