Filter Test Search Search Resources Resouce Type All TypesArticleBrochureEspañolFact SheetFundraisingGovernmentGuidelinesNewsletterOrganizationPatient ToolPolicy StatementProvider ToolScientific LiteratureVideoWebinar Patient Topics All TopicsAnemia/ Iron DeficiencyBrainCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceLiverLungsMental HealthNewly DiagnosedNosebleedsPregnancy & Women’s IssuesSkinUseful Links to Outside Organizations Provider Topics All TopicsAnemia/ Iron DeficiencyBrainHHT Continuing EducationClinicians First Time Seeing a Patient with HHTCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceInternational Guidelines for Screening and TreatmentLiverLungsNosebleeds or EpistaxisPregnancy & Women's IssuesScientific NewsletterSkinUseful Links to Outside Organizations Title Year Type Description Topic(s) Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence 2020 Scientific Literature Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky,… Provider Topics: Brain, Lungs Cerebrovascular Malformations in a Pediatric Hereditary Hemorrhagic Telangiectasia Cohort 2020 Scientific Literature Pediatric Neurology. Authors: Lauren A. Beslow, MD, MSCE; Jake Breimann, BA, Dan… Patient Topics: Brain, HHT in children Provider Topics: Brain, HHT in children Lung (Pulmonary) Arteriovenous Malformations & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Lungs Women’s Health, Pregnancy & HHT 2020 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Pregnancy & Women’s Issues Patient Symptom & Care Checklists 2020 Provider Tool Download and distribute “My HHT Care Checklists” to patients to complete and ret… Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Gastrointestinal, Genetics, HHT in children, International Guidelines for Screening and Treatment, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues, Skin Liver Vascular Malformations & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Liver Imaging & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Brain, Liver, Lungs, Newly Diagnosed Gastrointestinal (GI) Bleeding & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Gastrointestinal Nosebleed (Epistaxis) & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Nosebleeds Brain (Cerebral) Vascular Malformations & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Brain Anemia, Iron Deficiency & HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Anemia/ Iron Deficiency Diagnosis of HHT 2021 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Genetics, HHT in children, Liver, Lungs, Newly Diagnosed, Nosebleeds, Skin Children & HHT 2020 Fact Sheet Companion factsheet to the My HHT Care Checklists patient resources, and based u… Patient Topics: HHT in children Efficacy of Timolol in a Novel Intranasal Thermosensitive Gel for HHT–Associated Epistaxis: A Randomized Clinical Trial 2020 Scientific Literature JAMA Otolaryngology Head & Neck Surgery. Authors: Andrew M. Peterson, MSCI, … Provider Topics: Nosebleeds or Epistaxis My Child’s HHT Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: HHT in children My Teen Years HHT Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: HHT in children HHT International Clinical Guidelines (2020) 2020 Guidelines Published by the Annals of Internal Medicine in 2020, the “Second International… Patient Topics: Newly Diagnosed Provider Topics: International Guidelines for Screening and Treatment My HHT Nosebleed Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Nosebleeds My HHT Liver VM Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Liver My HHT GI Bleeding Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Gastrointestinal My HHT Pulmonary AVM Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Lungs My HHT Anemia and Iron Deficiency Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Anemia/ Iron Deficiency My HHT Pregnancy & Delivery Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Pregnancy & Women’s Issues Ask The Doctor: Tackling Anemia and Iron Deficiency (Recorded) 2020 Webinar Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT ind… Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency My HHT Brain VM Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Brain My HHT Care Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Genetics, HHT in children, Heart, Liver, Lungs, Mental Health, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin My HHT Diagnosis Checklist 2020 Patient Tool The “My HHT” checklists are a series of checklists by topic area for people with… Patient Topics: Newly Diagnosed Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded) 2020 Webinar Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis Ask the Doctor: HHT and Pulmonary Hypertension (recorded) 2020 Webinar Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director… Patient Topics: Heart, Liver, Lungs Provider Topics: Heart, Liver, Lungs Physician Fact Sheet 2020 Fact Sheet A compact fact sheet that can be hung on your refrigerator or carried with you t… Patient Topics: Anemia/ Iron Deficiency, Insurance, Lungs, Newly Diagnosed, Nosebleeds, Skin Provider Topics: Anemia/ Iron Deficiency, Clinicians First Time Seeing a Patient with HHT, Insurance, Lungs, Nosebleeds or Epistaxis, Skin Previous Next
