Filter Test Search Search Resources Resouce Type All TypesArticleBrochureEspañolFact SheetFundraisingGovernmentGuidelinesNewsletterOrganizationPatient ToolPolicy StatementProvider ToolScientific LiteratureVideoWebinar Patient Topics All TopicsAnemia/ Iron DeficiencyBrainCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceLiverLungsMental HealthNewly DiagnosedNosebleedsPregnancy & Women’s IssuesSkinUseful Links to Outside Organizations Provider Topics All TopicsAnemia/ Iron DeficiencyBrainHHT Continuing EducationClinicians First Time Seeing a Patient with HHTCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceInternational Guidelines for Screening and TreatmentLiverLungsNosebleeds or EpistaxisPregnancy & Women's IssuesScientific NewsletterSkinUseful Links to Outside Organizations Title Year Type Description Topic(s) Mental Health & HHT (Recorded) 2025 Webinar Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical… Patient Topics: Mental Health Entering the Therapeutics Age: A New Era for HHT Treatment (Recorded) 2024 Webinar Lately, there’s been an exciting wave of news about HHT therapies. Several clini… Patient Topics: Drug Therapy Provider Topics: Drug Therapy A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded) 2024 Webinar Join us to learn about sclerotherapy, an innovative treatment offering hope to H… Patient Topics: Anemia/ Iron Deficiency, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Nosebleeds or Epistaxis United States Map of Nasal Sclerotherapy Providers 2024 Patient Tool, Provider Tool This Map shows the current US HHT experts that perform nasal sclerotherapy as of… Patient Topics: Anemia/ Iron Deficiency, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Clinicians First Time Seeing a Patient with HHT, Nosebleeds or Epistaxis Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded) 2024 Webinar Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at Unive… Patient Topics: Anemia/ Iron Deficiency, Nosebleeds Mi CHECKLIST Sobre: HHT Cuidados 2024 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Mi CHECKLIST Sobre HHT Cuidados: Diagnóstico 2024 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Newly Diagnosed Mi CHECKLIST Sobre HHT Cuidados: Mi Hijo 2024 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: HHT in children El Papel de la Genética en HHT (para pacientes) 2024 Brochure, Español Para las personas que sospechan que podrían tener HHT, este folleto proporciona… Patient Topics: Genetics Salud, Embarazo y HHT en las Mujeres 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Pregnancy & Women’s Issues Malformaciones Arteriovenosas (pulmonares) y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Lungs Niños y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: HHT in children Malformaciones Vasculares Hepáticas (hígado) y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Liver Imágenes Diagnósticas y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Brain, Gastrointestinal, HHT in children, Newly Diagnosed Diagnóstico de HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Newly Diagnosed Hemorragia Gastrointestinal y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Gastrointestinal, Newly Diagnosed Hemorragias Nasales (epistaxis) y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Newly Diagnosed, Nosebleeds Malformaciones Vasculares Cerebrales y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Brain, Newly Diagnosed Anemia, Deficiencia de Hierro y HHT 2024 Español, Fact Sheet Hoja informativa complementaria a los recursos para pacientes de Mi Checklist So… Patient Topics: Anemia/ Iron Deficiency, Newly Diagnosed How to Be an HHT Changemaker Part 2: Educate Your Local Provider (Recorded) 2024 Webinar YOU asked us to educate the medical community on HHT. Learn more about our new H… Patient Topics: Useful Links to Outside Organizations Provider Topics: Clinicians First Time Seeing a Patient with HHT, HHT Continuing Education How to Be an HHT Changemaker Part 1: Drive Research (Recorded) 2024 Webinar Participating in research is the ultimate way to be an HHT changemaker. We have… Patient Topics: Anemia/ Iron Deficiency, Brain, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Heart, Liver, Lungs, Mental Health, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin NEW Criteria! Groundbreaking Trial for HHT: Learn About Pazopanib (Recorded) 2024 Webinar Your questions answered about our newest clinical trial with NEW expanded criter… Patient Topics: Anemia/ Iron Deficiency, Drug Therapy, Nosebleeds Provider Topics: Drug Therapy, Useful Links to Outside Organizations Cure HHT Canada 2024 Organization Cure HHT Canada is a registered, tax-deductible charitable organization in Canad… Patient Topics: Useful Links to Outside Organizations Provider Topics: Useful Links to Outside Organizations Caring for HHT Through the Generations (Recorded) 2024 Webinar Drs. Adrienne Hammill, Center Director at Cincinnati Children’s Hospital and Kev… Patient Topics: Anemia/ Iron Deficiency, Drug Therapy, Genetics, HHT in children CME 2023 Provider Tool Take FREE online CME courses to learn more about HHT and receive continuing educ… Provider Topics: HHT Continuing Education Pazopanib: A Groundbreaking Trial for HHT (Recording) 2023 Webinar Get your questions answered about our newest clinical trial! Join Cassi Friday,… Patient Topics: Anemia/ Iron Deficiency, Drug Therapy, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Drug Therapy, Nosebleeds or Epistaxis Guías clínicas internacionales HHT (2020) 2023 Español, Guidelines, Provider Tool Publicada por Annals of Internal Medicine en 2020, las “Segundas pautas internac… Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Gastrointestinal, HHT in children, Heart, International Guidelines for Screening and Treatment, Liver, Lungs Listas de verificación de atención y síntomas del paciente 2023 Español, Provider Tool Descargue y distribuya “Mis listas de verificación de atención HHT” a los pacien… Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Gastrointestinal, HHT in children, Heart, International Guidelines for Screening and Treatment, Liver, Lungs, Pregnancy & Women's Issues Mi CHECKLIST Sobre HHT Cuidados: Embarazo y Parto 2023 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: Pregnancy & Women’s Issues Mi CHECKLIST Sobre HHT Cuidados: Adolescencia 2023 Español, Patient Tool Las listas de verificación “Mi HHT” son una serie de listas de verificación por… Patient Topics: HHT in children Next
