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Title	Year	Type	Description	Topic(s)
Imaging & HHT	2021	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: Brain, Liver, Lungs, Newly Diagnosed
Gastrointestinal (GI) Bleeding & HHT	2021	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: Gastrointestinal
Nosebleed (Epistaxis) & HHT	2021	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: Nosebleeds
Brain (Cerebral) Vascular Malformations & HHT	2021	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: Brain
Anemia, Iron Deficiency & HHT	2021	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: Anemia/ Iron Deficiency
Diagnosis of HHT	2021	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Genetics, HHT in children, Liver, Lungs, Newly Diagnosed, Nosebleeds, Skin
Children & HHT	2020	Fact Sheet	Companion factsheet to the My HHT Care Checklists patient resources, and based u…	Patient Topics: HHT in children
Efficacy of Timolol in a Novel Intranasal Thermosensitive Gel for HHT–Associated Epistaxis: A Randomized Clinical Trial	2020	Scientific Literature	JAMA Otolaryngology Head & Neck Surgery. Authors: Andrew M. Peterson, MSCI, …	Provider Topics: Nosebleeds or Epistaxis
My Child’s HHT Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: HHT in children
My Teen Years HHT Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: HHT in children
HHT International Clinical Guidelines (2020)	2020	Guidelines	Published by the Annals of Internal Medicine in 2020, the “Second International…	Patient Topics: Newly Diagnosed Provider Topics: International Guidelines for Screening and Treatment
My HHT Nosebleed Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Nosebleeds
My HHT Liver VM Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Liver
My HHT GI Bleeding Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Gastrointestinal
My HHT Pulmonary AVM Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Lungs
My HHT Anemia and Iron Deficiency Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Anemia/ Iron Deficiency
My HHT Pregnancy & Delivery Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Pregnancy & Women’s Issues
Ask The Doctor: Tackling Anemia and Iron Deficiency (Recorded)	2020	Webinar	Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT ind…	Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency
My HHT Brain VM Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Brain
My HHT Care Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Anemia/ Iron Deficiency, Brain, Gastrointestinal, Genetics, HHT in children, Heart, Liver, Lungs, Mental Health, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin
My HHT Diagnosis Checklist	2020	Patient Tool	The “My HHT” checklists are a series of checklists by topic area for people with…	Patient Topics: Newly Diagnosed
Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)	2020	Webinar	Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical…	Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis
Ask the Doctor: HHT and Pulmonary Hypertension (recorded)	2020	Webinar	Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director…	Patient Topics: Heart, Liver, Lungs Provider Topics: Heart, Liver, Lungs
Physician Fact Sheet	2020	Fact Sheet	A compact fact sheet that can be hung on your refrigerator or carried with you t…	Patient Topics: Anemia/ Iron Deficiency, Insurance, Lungs, Newly Diagnosed, Nosebleeds, Skin Provider Topics: Anemia/ Iron Deficiency, Clinicians First Time Seeing a Patient with HHT, Insurance, Lungs, Nosebleeds or Epistaxis, Skin
Navigating the NEW Resource Library (recorded)	2020	Webinar	On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs an…
Managing Stress and Emotional Hurdles in HHT (recorded)	2020	Webinar	Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant prof…	Patient Topics: COVID-19, Mental Health
Anemia and Iron Deficiency in HHT (recorded)	2019	Webinar	Anemia is commonly experienced by those affected with HHT and it frequently resu…	Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency
Nosebleed Management in HHT (recorded)	2015	Webinar	Dr. David Poetker, an Otolaryngologist at the Froedtert & Medical College of…	Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis
Ask the Doctor	2017	Webinar	Dr. James Gossage, Director of the Pulmonary Vascular Disease program and the HH…	Patient Topics: Newly Diagnosed
Genetics: Unraveling Your DNA (recorded)	2018	Webinar	Jaime Jessen, BSc, MSc, CGC, Certified Genetic Counselor and Medical Science Lia…	Patient Topics: Genetics Provider Topics: Genetics