What the HHT?
A blog for the HHT community
Cure HHT Announcements
Fall Into Fitness
Fall Into Fitness November 22, 2020 | 9:30 a.m. (EST) Join Eve Bondareva for a 45-minute virtual total body burn workout to benefit Cure HHT. Eve has worked in the fitness industry for many years, and combines the elements of cardio, functional movement, strength and flexibility to each workout. You will feel amazing after this…
Read More11th Annual Stoner Open
11th Annual Stoner Open October 22, 2020 | 1:30 p.m. (EST) Farmstead Golf & Country Club Spend the day on the green to support Cure HHT! Join Steve Stoner and friends at the Farmstead Golf & Country Club for the 11th year in a row to support an important cause. Let’s make this year’s tournament…
Read MoreLindsay Vos Delivers Keynote Speech at the HFA Annual Symposium
Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to meet Lindsay or hear her speak, you’d undoubtedly have a hard time forgetting her infectious smile and positive attitude. After being diagnosed with HHT and undergoing a 14 hour surgery to remove a brain AVM in 2017, Lindsay has continued…
Read MoreCure HHT’s 2020 Robert E. Berkman Leadership Award Recipient
Up Close and Personal with Christopher Hughes, PhD – Cure HHT’s 2020 Robert E. Berkman Leadership Award Recipient by Phyllis Loveland In recognition of Robert E. Berkman’s exemplary leadership, we honor his legacy through the creation of the Robert E. Berkman Leadership Award, to recognize those members of the Cure HHT Community who exhibit the…
Read MoreTop Geneticist and HHT CoE Director Announces Retirement
We are at once happy and sad to announce the retirement of Reed Pyeritz, MD, PhD, Co-Director of the University of Pennsylvania School of Medicine (“UPenn”) HHT Center of Excellence. Dr. Pyeritz has been an integral part of our organization since 2003 when UPenn became Cure HHT’s 7th HHT Center of Excellence. The knowledge and…
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