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What the HHT?

A blog for the HHT community

Friends Virtual Trivia

Do the names Monica, Chandler, Ross, Rachel, Joey and Phoebe ring a bell? Then don’t miss Charm City’s “Friends” themed Trivia Night. Charm City is hosting their weekly Sunday Trivia Night for charity on April 11th, 2021 @ 8:00 pm (EDT) to benefit Cure HHT. Tickets are $15.00 and a portion of all proceeds will…

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Let’s Play! Virtual Trivia

Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this is the event for you! Join Cure HHT and Charm City Trivia on Thursday, March 25th for an entertaining night where everyone knows something about everything. Come together for a fast-paced fun game of trivia featuring music, sports, entertainment and…

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Talk Circle: Living With HHT Virtual Book Club Event

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m. (EST) (Final Night of the Winter Series) It’s the three year anniversary of the publication of Living with HHT – Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia and we are celebrating with a modern twist on a traditional book club! Join…

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Cure HHT Research Network: Clinician and Scientist Surveys

The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020, the Cure HHT Research Network (CHRN) aims to bring safe, effective treatments to patients more quickly by prioritizing research based on patient needs, broadening and…

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A WIN on Capitol Hill for HHT!

You may recall that back in November 2020, Cure HHT reached out for help to urge the Senate to correct an oversight related to the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP) and add “vascular malformations” back among the conditions eligible for study – a designation that has advanced HHT research since 2015. Our…

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