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What the HHT?

A blog for the HHT community

Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information surrounding COVID-19 and HHT from leading experts who have been on the frontlines since the very beginning of the COVID-19 pandemic. This interdisciplinary group of experts from across our HHT North American Centers of Excellence will discuss the multiple aspects…

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ACT NOW! HHT Federal Funding in Jeopardy!

Over the past few years, our HHT researchers have received significant funding for “Vascular Malformations,” a serious manifestation of HHT, through the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). We recently learned that VM’s were inadvertently left OUT of the PRMRP for 2021. Your help is urgently needed in getting VM’s back…

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Magic in the Making: Finding a Cure for HHT

Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m. (EST) Cure HHT proudly presents “Magic in the Making – Finding a Cure for HHT.” This magical night to support patients with HHT begins with an Amateur Hour of magic, joke-telling and fun featuring participants from our very own HHT…

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