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What the HHT?

A blog for the HHT community

Facebook Live: AMA with Dr. Miles Conrad, UCSF

By Talia Lewis | May 11, 2026 |

Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2  |  7:00-8:00pm ET   This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options, and managing life with this condition. Whether you’re a patient, family member, or caregiver, this interactive session will offer a supportive space to get the…

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Town Hall: Cure HHT Centers of Excellence Program Updates

By Valaree Machen | April 28, 2026 |

Upcoming Webinar: Town Hall: Cure HHT Center of Excellence Program Updates Tuesday, June 16  |  1:00-2:00pm ET   Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the specialized expertise they need. Join our National Healthcare Programs Team for a crucial Town Hall about US and Canadian…

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Brain AVMS – Recent Advances in Imaging and Management

By Valaree Machen | April 14, 2026 |

Upcoming Webinar: Brain AVMS – Recent Advances in Imaging and Management Thursday, April 30  |  3:00-4:00 p.m. ET   In this session Dr. Krings will describe recent advances in imaging, neurointervention and medical management in patients with Brain Arteriovenous Malformations. In particular he will discuss how Vessel Wall Imaging allows us to understand why certain…

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Ask the Nurse: A Conversation on Pediatric HHT

By Valaree Machen | March 12, 2026 |

Ask the Nurse: A Conversation on Pediatric HHT Fri., April 10  |  12:00-1:00 p.m. ET   When it comes to HHT, early recognition can make all the difference. Yet too many children remain vulnerable to late or missed diagnosis. In this educational session, Lynne Sekarski, MSN, RN, CPN, will discuss how to recognize symptoms of…

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