What the HHT?
A blog for the HHT community
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HHT One-liners
Annyeonghaseyo! Hello, from South Korea! I haven’t written a blog post in a few months because our lives have been uprooted by the Army once again. My husband graduated Captain’s Career Course in May and our whole family moved from Virginia to South Korea in June! We spent time getting both our children screened for…
Read MoreWhy Proper Screening and Treatment Can Save Your Life
It’s June—warm, spring days, flowers, playing outside—and HHT Awareness Month! If you’re reading this post, you probably know at least a little about HHT. But most people, including many doctors, have never heard of HHT. In fact, most people who have HHT don’t know that they have it! Which is precisely why awareness is so…
Read MoreWhy am I an HHT Warrior?
Some may ask why am I an HHT warrior? What is HHT*? Why are you so passionate about HHT? You don’t look sick, you seem healthy. These are just some of the comments and questions I hear often… often enough to drive me to write about it, especially now during HHT awareness month. The month…
Read MoreLiving with HHT Book
Have you read my new book, Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia? It’s designed to tell you everything you need to know about HHT to keep yourself and your family as healthy as possible and to cope with the stresses of having HHT. I’m happy to report that the book, released…
Read MoreJoin the 50 State Challenge Today! #50States4HHT
Are You Ready for a Challenge?
Right now, there is no cure for HHT.
We believe that finding a cure is possible in this lifetime.
And we need your help.
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