What the HHT?
A blog for the HHT community
Advocacy
State of HHT: An Update from Cure HHT’s CEO
Upcoming Event: State of HHT: An Update from Cure HHT’s CEO Tuesday, June 23 | 6:00-7:00pm ET Join Cure HHT’s CEO for a comprehensive update on the state of the organization and the organization’s work on behalf of the community. This webinar will highlight key milestones from the past year, including progress in research,…
Read MoreTown Hall: Cure HHT Centers of Excellence Program Updates
Upcoming Webinar: Town Hall: Cure HHT Center of Excellence Program Updates Tuesday, June 16 | 1:00-2:00pm ET Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the specialized expertise they need. Join our National Healthcare Programs Team for a crucial Town Hall about US and Canadian…
Read MoreFacebook Live: AMA with Dr. Miles Conrad, UCSF
Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2 | 7:00-8:00pm ET This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options, and managing life with this condition. Whether you’re a patient, family member, or caregiver, this interactive session will offer a supportive space to get the…
Read MoreNew Federal Momentum for HHT: $3M for Centers and Dedicated Research Eligibility
We are thrilled to share two major wins to celebrate today: the President has signed the FY26 funding agreement which includes $3,000,000 for HHT Treatment Centers and—huge for the research world—“Hereditary Hemorrhagic Telangiectasia (HHT)” is listed as its own eligible topic area under the Peer Reviewed Medical Research Program (PRMRP)! Next stop: the President’s signature…
Read MoreFacebook Live: The Power of Advocacy
Advocacy changes lives—and it changes policy. Join Cure HHT for a free 45-minute Facebook Live panel: The Power of Advocacy. What we’ll cover – What HHT Capitol Hill Day is (and what it’s not) – What to expect as a participant – What we’re advocating for and why it matters – Q&A: bring your questions—especially…
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