What the HHT?

A blog for the HHT community

Advocacy

HHT Scientific Advancement Through Federal Grants

Seed Money

Learn more about the progress made by Feinstein Institute for Medical Research, federal grant recipients for HHT scientific research. The Department of Defense grant awarded to the Feinstein Institute was advocated for and leveraged by Cure HHT. Cure HHT community support and donations made this possible!

Read More

Legislative Activity Impacting HHT

Recently, I have taken a more active role in the HHT community as a member of the legislative committee. It is so important for lawmakers to pass legislation that promotes and supports research and development, especially for rare diseases like HHT. I have been pleasantly surprised at how passionate I am about advocating for legislation…

Read More