What the HHT?

A blog for the HHT community

Advocacy

ACT NOW! HHT Federal Funding in Jeopardy!

Over the past few years, our HHT researchers have received significant funding for “Vascular Malformations,” a serious manifestation of HHT, through the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). We recently learned that VM’s were inadvertently left OUT of the PRMRP for 2021. Your help is urgently needed in getting VM’s back…

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HHT Scientific Advancement Through Federal Grants

Seed Money

Learn more about the progress made by Feinstein Institute for Medical Research, federal grant recipients for HHT scientific research. The Department of Defense grant awarded to the Feinstein Institute was advocated for and leveraged by Cure HHT. Cure HHT community support and donations made this possible!

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Legislative Activity Impacting HHT

Recently, I have taken a more active role in the HHT community as a member of the legislative committee. It is so important for lawmakers to pass legislation that promotes and supports research and development, especially for rare diseases like HHT. I have been pleasantly surprised at how passionate I am about advocating for legislation…

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