What the HHT?
A blog for the HHT community
Awareness 2025 Events
Diagonal Therapeutics Open House & HHT Patient Forum
Open House and HHT Patient Forum at Diagonal Therapeutics Friday, June 26 | 9:30am-1:00pm ET Join patients, caregivers, clinicians, and researchers for a day of connection, learning, and community focused on hereditary hemorrhagic telangiectasia (HHT) in celebration of HHT Awareness Month at Diagonal Therapeutics (200 Arsenal Yards Boulevard #220, Watertown, Massachusetts, 02472). Register to…
Read MoreState of HHT: An Update from Cure HHT’s CEO
Upcoming Event: State of HHT: An Update from Cure HHT’s CEO Tuesday, June 23 | 6:00-7:00pm ET Join Cure HHT’s CEO for a comprehensive update on the state of the organization and the organization’s work on behalf of the community. This webinar will highlight key milestones from the past year, including progress in research,…
Read MoreWomen’s Health & HHT: Across the Lifespan
Upcoming Webinar: Women’s Health & HHT: Across the Lifespan Thursday, May 28 | 6:30 pm ET In recognition of Women’s Health Month, join us for a conversation on the unique ways HHT affects women across every stage of life. This presentation will explore the compounding impact of menstruation on iron deficiency and anemia, what…
Read MoreTown Hall: Cure HHT Centers of Excellence Program Updates
Upcoming Webinar: Town Hall: Cure HHT Center of Excellence Program Updates Tuesday, June 16 | 1:00-2:00pm ET Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the specialized expertise they need. Join our National Healthcare Programs Team for a crucial Town Hall about US and Canadian…
Read MoreFacebook Live: AMA with Dr. Miles Conrad, UCSF
Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2 | 7:00-8:00pm ET This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options, and managing life with this condition. Whether you’re a patient, family member, or caregiver, this interactive session will offer a supportive space to get the…
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