What the HHT?
A blog for the HHT community
Children
Town Hall: Cure HHT Centers of Excellence Program Updates
Upcoming Webinar: Town Hall: Cure HHT Center of Excellence Program Updates Tuesday, June 16 | 1:00-2:00pm ET Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the specialized expertise they need. Join our National Healthcare Programs Team for a crucial Town Hall about US and Canadian…
Read MoreFacebook Live: AMA with Dr. Miles Conrad, UCSF
Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2 | 7:00-8:00pm ET This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options, and managing life with this condition. Whether you’re a patient, family member, or caregiver, this interactive session will offer a supportive space to get the…
Read MoreBrain AVMS – Recent Advances in Imaging and Management
Upcoming Webinar: Brain AVMS – Recent Advances in Imaging and Management Thursday, April 30 | 3:00-4:00 p.m. ET In this session Dr. Krings will describe recent advances in imaging, neurointervention and medical management in patients with Brain Arteriovenous Malformations. In particular he will discuss how Vessel Wall Imaging allows us to understand why certain…
Read MoreAsk the Nurse: A Conversation on Pediatric HHT
Ask the Nurse: A Conversation on Pediatric HHT Fri., April 10 | 12:00-1:00 p.m. ET When it comes to HHT, early recognition can make all the difference. Yet too many children remain vulnerable to late or missed diagnosis. In this educational session, Lynne Sekarski, MSN, RN, CPN, will discuss how to recognize symptoms of…
Read MoreMore Than A Nosebleed: In Loving Memory of Harper
Turning two-years old comes with many changes— from growth spurts to a surging vocabulary. But as her little Harper grew, Rebecca Newman noticed a concerning development: blue fingertips and lips. Immediately, Rebecca knew she had to seek medical care. Once referred to the New Orleans hospital PICU for testing in October of 2021, a cardiologist…
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