What the HHT?
A blog for the HHT community
Cure HHT Announcements
Magic in the Making: Finding a Cure for HHT
Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m. (EST) Cure HHT proudly presents “Magic in the Making – Finding a Cure for HHT.” This magical night to support patients with HHT begins with an Amateur Hour of magic, joke-telling and fun featuring participants from our very own HHT…
Read MoreThe HHT Clinical Guidelines Are Here!
The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical decisions related to HHT diagnosis, screening, treatment and overall patient care management. These guidelines are used to set the standard of care to be used internationally for the diagnosis and treatment of HHT. Here you will find the most up-to-date…
Read MoreFall Into Fitness
Fall Into Fitness November 22, 2020 | 9:30 a.m. (EST) Join Eve Bondareva for a 45-minute virtual total body burn workout to benefit Cure HHT. Eve has worked in the fitness industry for many years, and combines the elements of cardio, functional movement, strength and flexibility to each workout. You will feel amazing after this…
Read More11th Annual Stoner Open
11th Annual Stoner Open October 22, 2020 | 1:30 p.m. (EST) Farmstead Golf & Country Club Spend the day on the green to support Cure HHT! Join Steve Stoner and friends at the Farmstead Golf & Country Club for the 11th year in a row to support an important cause. Let’s make this year’s tournament…
Read MoreLindsay Vos Delivers Keynote Speech at the HFA Annual Symposium
Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to meet Lindsay or hear her speak, you’d undoubtedly have a hard time forgetting her infectious smile and positive attitude. After being diagnosed with HHT and undergoing a 14 hour surgery to remove a brain AVM in 2017, Lindsay has continued…
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