What the HHT?

A blog for the HHT community

Awareness

Sharing to make a difference

Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceutical as well as local medical professionals in the Salt Lake city area. It all started by saying yes to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…

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Cure HHT Helps Raise Awareness for Pulmonary Hypertension

Did you know that people living with HHT are at risk of developing Pulmonary Hypertension (PH)?  Cure HHT has partnered with the Pulmonary Hypertension Association (PHA) to raise awareness about the connection of these two diseases. To learn more about how HHT and PH are connected, check out our HHT and PH resources in the Cure…

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How to Fundraise for Cure HHT on Facebook

This small, but mighty community can help Cure HHT deliver results for new HHT treatments, new HHT Centers of Excellence and new options that can help people manage their HHT much more quickly than ever before.   How? By sharing stories about their journey with HHT, advocating for this case and becoming a fundraiser on…

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HHT One-liners

Annyeonghaseyo! Hello, from South Korea! I haven’t written a blog post in a few months because our lives have been uprooted by the Army once again. My husband graduated Captain’s Career Course in May and our whole family moved from Virginia to South Korea in June! We spent time getting both our children screened for…

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