What the HHT?
A blog for the HHT community
Awareness
Sharing to make a difference
Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceutical as well as local medical professionals in the Salt Lake city area. It all started by saying yes to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…
Read MoreCure HHT Helps Raise Awareness for Pulmonary Hypertension
Did you know that people living with HHT are at risk of developing Pulmonary Hypertension (PH)? Cure HHT has partnered with the Pulmonary Hypertension Association (PHA) to raise awareness about the connection of these two diseases. To learn more about how HHT and PH are connected, check out our HHT and PH resources in the Cure…
Read MoreHow to Fundraise for Cure HHT on Facebook
This small, but mighty community can help Cure HHT deliver results for new HHT treatments, new HHT Centers of Excellence and new options that can help people manage their HHT much more quickly than ever before. How? By sharing stories about their journey with HHT, advocating for this case and becoming a fundraiser on…
Read MoreHHT One-liners
Annyeonghaseyo! Hello, from South Korea! I haven’t written a blog post in a few months because our lives have been uprooted by the Army once again. My husband graduated Captain’s Career Course in May and our whole family moved from Virginia to South Korea in June! We spent time getting both our children screened for…
Read MoreChair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a podcast on June 27, 2018 and learn how Dr. Raj Kasthuri talks about Hereditary Hemorrhagic Telangiectasia, also known as HHT, with Dr. Ron Falk. Dr. Kasthuri describes the symptoms, how it can affect internal organs, and…
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