What the HHT?
A blog for the HHT community
Awareness
HHT One-liners
Annyeonghaseyo! Hello, from South Korea! I haven’t written a blog post in a few months because our lives have been uprooted by the Army once again. My husband graduated Captain’s Career Course in May and our whole family moved from Virginia to South Korea in June! We spent time getting both our children screened for…
Read MoreChair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a podcast on June 27, 2018 and learn how Dr. Raj Kasthuri talks about Hereditary Hemorrhagic Telangiectasia, also known as HHT, with Dr. Ron Falk. Dr. Kasthuri describes the symptoms, how it can affect internal organs, and…
Read MoreWhy Proper Screening and Treatment Can Save Your Life
It’s June—warm, spring days, flowers, playing outside—and HHT Awareness Month! If you’re reading this post, you probably know at least a little about HHT. But most people, including many doctors, have never heard of HHT. In fact, most people who have HHT don’t know that they have it! Which is precisely why awareness is so…
Read MoreWhy am I an HHT Warrior?
Some may ask why am I an HHT warrior? What is HHT*? Why are you so passionate about HHT? You don’t look sick, you seem healthy. These are just some of the comments and questions I hear often… often enough to drive me to write about it, especially now during HHT awareness month. The month…
Read MoreLiving with HHT Book
Have you read my new book, Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia? It’s designed to tell you everything you need to know about HHT to keep yourself and your family as healthy as possible and to cope with the stresses of having HHT. I’m happy to report that the book, released…
Read More