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June is HHT Awareness Month

 

For individuals and families affected by Hereditary Hemorrhagic Telangiectasia (HHT), awareness and support are vital. June is our opportunity to come together, share our experiences, and educate others about this often-underdiagnosed condition. Explore resources, connect with the community, and find out how you can help amplify the voices of those living with HHT.

 

This campaign is about more than this moment. It is about helping build the next 35 years of progress in HHT care, research, and support. Thanks to a generous individual, a significant portion of gifts made during HHT Awareness Month will be matched.​

 

Are you a Canadian resident? Please use the donation form found here.

A gift of $35—one dollar for every year Cure HHT has been fighting for this community—can help ensure that no HHT patient faces this diagnosis alone.

A gift of $350 can help fund two hours of personal patient navigation support, giving patients and caregivers the guidance they need to navigate a complex, misunderstood disease.

With $1,350, you can help provide access to an HHT Center of Excellence for underinsured patients.

Your gift of $3,500 can help bridge the gap between a promising research idea and the funding it needs to move forward—supporting early‑stage seed grants that could unlock the next breakthrough.

Your gift of $35,000 could support several months of Cure HHT’s biobank, protecting critical patient samples that drive research progress and bring better treatments closer to families living with HHT.


Kate is a teacher, an avid swimmer, and addicted to green tea lattes. She loves traveling, dogs, and dreams of having a family.

Kate lives with HHT.

Imagine living with a disease that has no FDA-approved treatment or cure, day-in and day-out.

Kate plans her paid time off around infusion dates and specialty care appointments, often a year in advance. She has to take a lunchtime break in her car to catch up on rest due to low iron fatigue. Kate has a surgery scheduled to treat some of her pulmonary AVMs, but she’s worried about planning for a family with other AVMs that are not yet treated.

And while Kate may not be real, experiences like hers are. Cure HHT works every day to ensure doctors, researchers, lawmakers, and the general public can see beyond and understand HHT is so much more than a nosebleed.

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