What the HHT?
A blog for the HHT community
Front Page Announcements
Rare Disease Day
The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. Rare Disease Day 2019 is an opportunity to be part of…
Read More#myHHTvalentine – Giving Blood for HHT
My HHT Tracker App – Download Now!
Make 2019 the year you take charge of your HHT! Improve your health and understanding of the disease with “My HHT Tracker” now available globally on iOS. The free app allows you to privately track your health daily, store your data, organize medical tests, track nosebleeds — and only share your information with your health…
Read MoreComprehensive HHT Resource: Living with HHT Book
By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…
Read More7th Annual Night of Hope to Benefit Cure HHT
When: Saturday, March 16, 2019 from 5:00-11:00pm EST Where: Plymouth Manor: Plymouth, MI Details: Join the Nissan Family for the 7th Annual Night of Hope, an event to raise money and awareness for HHT. There will be games, auctions, dinner, dancing, and more! To learn more about this special evening and to register as an individual attendee,…
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