What the HHT?
A blog for the HHT community
HHT Patient & Physician Conference September 21-22, 2019 Marriott Pompano Beach Resort & Spa Pompano Beach, Florida Visit the conference website to learn more about the program, speakers, hotel accommodations and REGISTER ONLINE.Read More
On July 16th, Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talked about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has HHT through genetic testing before and during pregnancy, as well as after birth were discussed.…Read More
Cure HHT is excited to announce that “A Randomized Controlled Trial of Bevacizumab for HHT-Related Epistaxis” (aka “Avastin Trial”) conducted at Stanford University recruited its last patient on February 5, 2019! THANK YOU to the 40 HHT patients who participated in the Avastin trial, many of whom traveled across the country to Palo Alto, California,…Read More