What the HHT?
A blog for the HHT community
The executive summary and abstracts from the 2019 HHT International Scientific Conference, including details of the clinical and basic science, are now available online in Angiogenesis. As a valuable part of our mission to find a cure, we hope you find these research articles both informative and inspiring.Read More
Cure HHT supports legislative bill H.R.4144 – “Ending the Diagnostic Odyssey Act.” “[N]early 80% of all rare diseases have a genetic cause, and half of rare disease cases impact children. The average diagnostic odyssey can last from anywhere from five to seven years. You can imagine the anguish of parents watching their children suffer, watching…Read More
Learn more about the progress made by Feinstein Institute for Medical Research, federal grant recipients for HHT scientific research. The Department of Defense grant awarded to the Feinstein Institute was advocated for and leveraged by Cure HHT. Cure HHT community support and donations made this possible!Read More
Diseases can only be cured when scientists understand them. This understanding, which comes from basic research, leads to new drugs and treatments. The evaluation of new drugs and treatments, or the creation of new assessment tools, require patient participation. Without you, the advancement of a cure for HHT is impossible. Dr. Jay Piccirillo, an Ear,…Read More