What the HHT?
A blog for the HHT community
Front Page Announcements
Strides for Strength: Virtual Walk
Our 2nd Annual Global Walk for a Cure—Strides for Strength—is back for another exciting year and we are doing things BIGGER and BETTER than before! Grab your walking shoes, round up your friends and family, and leash your furry friend to start clocking those miles for our largest show of strength this year. Register to…
Read MoreInternational HHT Guidelines: Pulmonary (Lung) AVMs
International HHT Guidelines Webinar Series Topic: Pulmonary (Lung) AVMs Tues., May 25th | 7:00 p.m. (ET) Join Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical Sciences HHT Center of Excellence as they discuss how to recognize the signs and symptoms…
Read MoreNEW Webinar: Nuts and Bolts of a Clinical Trial – PATH-HHT Study
Nuts and Bolts of a Clinical Trial PATH-HHT Study Wed., May 12th | 6:00 p.m. (ET) This discussion will introduce the audience to clinical trials, including the factors that are considered when a clinical trial is designed, the different types of clinical trials, and the importance of clinical trials in developing new treatments for…
Read MoreInternational HHT Guidelines: Pediatrics (Recorded)
International HHT Guidelines Webinar Series Topic: Pediatrics Join Dr. Andy White, Co-Director, St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Children’s Hospital HHT Center of Excellence as they discuss the new pediatric international HHT guidelines. While some manifestations of HHT, such as telangiectasia and nosebleeds, are age dependent and…
Read MorePATH – Now Recruiting!
The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across the United States. Find centers and check your eligibility.
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