What the HHT?

A blog for the HHT community

Front Page Announcements

Online Education: Research Roundtable

Join us as we delve into all of the exciting clinical research projects underway in HHT! Cassi Friday, PhD (Overview) will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial), and Brian Mangilog (Rare Genomes Project) will share more research projects and the potential impacts for patients…

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Patient & Physician Conferences Announced!

Join members of our HHT community – patients and physicians alike – as we come together for our both regional and national conferences to meet members of our local and extended HHT community, as well as learn more about HHT and share new scientific advancements. This year, medical professionals can now receive CME credits for participation!

Open registration dates will be released soon.

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Thank You for an Amazing Year

We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.

If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.

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Help Keep Us On the Cutting Edge

The turn of the calendar to December marks the kickoff of our year-end appeal, and this year we are asking for your continued support to help keep us #OnTheCuttingEdge. The milestones we have our sights set on next are the kinds of things we could have only dreamed about just a few short years ago. A future exists where therapies – not surgeries – treat the chronic aspects of this disease. And that future is closer than you might realize!

Cure HHT remains a driving force for medical and scientific advancements in HHT, and throughout the month, we will be highlighting the transformational work being done…

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