What the HHT?

A blog for the HHT community

Front Page Announcements

New Webinar! CHRN Survey Results

Bedside to Bench: How the HHT Community Drives Research Initiatives Wed., November 10th 7:00 p.m. (ET) Earlier this year, over 1,200 HHT patients, caregivers, clinicians and researchers alike all responded to surveys about their thoughts on all things HHT. Your voices were heard! Join Cassi Friday, Caregiver and Dr. Anthony Anzell as they present the survey…

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Shop for a cause. Shop for a cure. Shop Cure HHT! 

Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in time for the holidays! Shop from an assortment of items including t-shirts, notepads and masks. And the best part, 100% of the proceeds go to…

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Physician Webinar: The Role of Liver Imaging in HHT (Recorded)

Liver involvement occurs in approximately 75% of people with HHT. While many people are asymptomatic, the complications associated with liver involvement have historically been under diagnosed. These complications include arterioportal shunting leading to portal hypertension and arteriosystemic shunting leading to high output cardiac failure (HOCF). HOCF occurs much more frequently than has previously been considered.…

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WFMZ-TV 69 News reports on HHT-HTC Openings

There’s nothing we relish more than seeing news coverage about HHT. We were so excited to have WFMZ-TV Channel 69 report on our two newest HHT-HTC Treatment Centers that opened in Indiana and Michigan! Not only did the reporting share the good news about access to care but gave an overview of HHT and its…

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