What the HHT?

A blog for the HHT community

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Research Survey

Cure HHT needs your feedback


Stroke is a serious event that is all too common in HHT. Cure HHT needs your feedback to better understand how HHT presents itself and the impact a stroke can have on your health and diagnosis of HHT. If you or a family member have suffered from an HHT related stroke, please consider taking 2 minutes out of your day to participate in this important survey. Understanding your experiences helps move us closer to finding a cure!




Your participation in this survey is voluntary, you will not be asked for any identifiable data and all responses are confidential.

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WEBINAR: HHT Lung AVMs – A Tangled Web

Riggans Imaging Webinar

October 29, 2019

7:00 p.m. (EST)

Join Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center in Augusta, GA as he presents his talk, “HHT Lung AVMs – A Tangled Web” from the Florida HHT Patient Conference.  Dr. Riggans will focus on the importance of diagnostic imaging, as well as symptoms and therapeutic approaches to AVMs, a common complication from HHT. He will also offer a Q & A session at the end of his presentation.

Dr. Riggans graduated cum laude from Wake Forest University and received his medical degree from the Medical College of Georgia in Augusta. He subsequently completed an internship at the Atlanta Medical Center, a Radiology residency at the University of Kansas Medical Center and an Interventional Radiology fellowship at the MD Anderson Cancer Center in Houston, Texas. Dr. Riggans has been involved in the Augusta University HHT Center of Excellence since its inception in 2003 by providing consultation and treatment for pulmonary AVMs.

To participate in this FREE webinar, please register no later than October 29, 2019 at 5:00 p.m. (EST).



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Recorded WEBINAR: IVF and Pre-Implantation Genetic Testing for HHT

On July 16th, Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talked about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has HHT through genetic testing before and during pregnancy, as well as after birth were discussed.…

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