What the HHT?
A blog for the HHT community
Front Page Announcements
NOSE HHT (Nasal Outcome Score for Epistaxis in HHT)
Dr. Jay Piccirillo, an Ear, Nose, and Throat doctor at the Washington University School of Medicine Hereditary Hemorrhagic Telangiectasia (HHT) Center of Excellence, and his research team are developing a new patient-reported outcome measure for HHT-related nosebleeds. His team has received assistance from the Cure HHT Foundation to reach out to the HHT community for…
Read MoreGiving Tuesday 2019
Your donations automatically DOUBLED (up to $150,000)! Your participation this Giving Tuesday is helping us gain momentum in our efforts to not only improve the daily lives of those suffering with HHT but to erase HHT completely by finding a Cure! 93 cents of every dollar goes directly into awareness, education, research and medical programs, and we use your donation to its maximum impact!
Read MoreThe Clinical Guidelines Conference
Recorded WEBINAR: HHT Lung AVMs – A Tangled Web
Now available!
Read MoreHHT in the News – Wisconsin
KENOSHA — For most of his life, Mark Schnuck has had nosebleeds. Some have been minor, others severe, but they have just been something the Pleasant Prairie man says he has come to live with…
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