What the HHT?

A blog for the HHT community

Front Page Announcements

Stanford’s Avastin Study is Complete!

Cure HHT is excited to announce that “A Randomized Controlled Trial of Bevacizumab for HHT-Related Epistaxis” (aka “Avastin Trial”) conducted at Stanford University recruited its last patient on February 5, 2019! THANK YOU to the 40 HHT patients who participated in the Avastin trial, many of whom traveled across the country to Palo Alto, California,…

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Save The Date – Florida Conference 2019

HHT Patient & Physician Conference September 21-22, 2019 Marriott Pompano Beach Resort & Spa Pompano Beach, Florida   WE ARE COMING TO YOU!  Cure HHT is thrilled to announce that we will be hosting a conference this fall in Pompano Beach, Florida (near Fort Lauderdale). Florida is a large state and is underserved by knowledgeable specialists…

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My HHT Tracker App – Download Now!

Make 2019 the year you take charge of your HHT!  Improve your health and understanding of the disease with “My HHT Tracker” now available globally on iOS. The free app allows you to privately track your health daily, store your data, organize medical tests, track nosebleeds — and only share your information with your health…

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