What the HHT?
A blog for the HHT community
Webinar Registration
Knowledge is Power: The 5 Biggest Changes in HHT Care
Upcoming Webinar: Knowledge is Power: The 5 Biggest Changes in HHT Care Thurs., February 26th | 7:00 p.m. (ET) Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at a center of excellence – this…
Read MoreComprehensive Guide to Managing Your Nosebleeds
Upcoming Webinar: Comprehensive Guide to Managing Your Nosebleeds Thurs., January 29th | 2:00 p.m. (ET) 90% of HHT patients deal with chronic and recurring nosebleeds –bleeds that can range in severity from killers of spontaneity, drive social anxiety or as severe as causing serious medical complications. However, many new treatment options are available to…
Read MoreYour Questions Answered: An Informative Session on an HHT Clinical Trial
Upcoming Webinar: An Informative Session on an HHT Clinical Trial Thurs., September 11th | 5:00 p.m. (ET) Join us for an informative webinar about hereditary hemorrhagic telangiectasia (HHT). The webinar is being run by Cure HHT and will introduce an upcoming clinical trial evaluating whether an investigational medication has the potential to treat HHT.…
Read MoreRecording Available: Empowering Patient Stories
Facebook Live: Empowering Patient Stories Thurs., June 19th | 1:00 p.m. (ET) Join us for an inspiring and informative webinar, “Empowering Patient Stories,” on June 19 at 1:00 PM ET. This session is designed to equip you with the tools and confidence to share your unique HHT journey effectively. We are honored to feature Jessica…
Read MoreWebinar: Mental Health & HHT
Webinar: Mental Health & HHT Tues., June 24th | 12:00 p.m. (ET) Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical challenges, and this webinar will address the often-overlooked impact on mental well-being. Join us for a supportive discussion exploring the emotional aspects of managing a chronic condition like HHT. Our expert speaker Abbey J.…
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