What the HHT?

A blog for the HHT community

Webinar Registration

WEBINAR: Living with HHT

Fiasco Rocks

January 16, 2020 6:00 p.m. (EDT) Join Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence as she explores the effects of HHT on your mental health and family relationships. Learn coping skills that can help you live better with HHT, get tips on how to educate your family about HHT and…

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WEBINAR: The Science Behind the 2019 Scientific Conference

SciCon Slide

December 4, 2019 6:00 p.m. (EDT) Join Philippe Marambaud, PhD and Andy White, MD as they discuss important advances in HHT research which were presented at the recent International HHT Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and treatments for PAVMs, and the latest basic science research! After…

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WEBINAR: Getting to Know Backpack Health – Live App Demo

November 19, 2019 7:00 p.m. (EDT) With 1 in 5000 people suffering from HHT, which presents with a multitude of symptoms, having a tool like Backpack Health is crucial to managing your health needs. Backpack Health provides a platform for your important medical data that is translatable and easy to share with your health care…

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