What the HHT?

A blog for the HHT community

Cure HHT Announcements

NAVBO Webinar Series Features HHT

March 14, 2019 1:00pm EST North American Vascular Biology Organization (NAVBO) is highlighting HHT research in its webinar series with Stryder Meadows, Ph.D., Assistant Professor, Stepping Stone Foundation Early Career Professor in the Department of Cell and Molecular Biology at Tulane University presenting “Angiopoietin-2 inhibition rescues arteriovenous malformation in a SMAD4 HHT mouse model”.   Dr. Meadows’ presentation…

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Robert I. White Award Nominations Now Being Accepted

  The Robert I. White, Jr., M.D. HHT Young Clinician of the Year Award was established in 2004, in recognition of Dr. Robert I. White Jr’s outstanding contribution to HHT care and to mentoring other clinicians to develop expertise in HHT care and research. Dr. White is recognized as the clinical pioneer who focused his…

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My HHT Tracker App – Download Now!

Make 2019 the year you take charge of your HHT!  Improve your health and understanding of the disease with “My HHT Tracker” now available globally on iOS. The free app allows you to privately track your health daily, store your data, organize medical tests, track nosebleeds — and only share your information with your health…

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Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

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