What the HHT?
A blog for the HHT community
Posts by Valaree Machen
Capitol Hill Day 2026
This is your moment. Join us in Washington, DC. Stand up for the HHT community. Help make HHT impossible to overlook — and impossible to delay. Let’s make 2026 the year lawmakers finally recognize the urgency we live with every day and commit to the progress we know is possible. Become an HHT advocate: curehht.org/advocacy26
Read MoreKnowledge is Power: The 5 Biggest Changes in HHT Care
Upcoming Webinar: Knowledge is Power: The 5 Biggest Changes in HHT Care Thurs., February 26th | 7:00 p.m. (ET) Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at a center of excellence – this…
Read More2025 Impact Report: A Year of Momentum, Milestones, and Measurable Progress
This year, the HHT community proved—again—that determination moves mountains. Our 2025 Impact Report highlights a year defined by scientific breakthroughs, expanded clinical access, and the relentless drive of patients, families, clinicians, and supporters who believe in a world where HHT is found early, treated effectively, and ultimately cured. From pushing new research forward to strengthening…
Read MoreComprehensive Guide to Managing Your Nosebleeds
Upcoming Webinar: Comprehensive Guide to Managing Your Nosebleeds Thurs., January 29th | 2:00 p.m. (ET) 90% of HHT patients deal with chronic and recurring nosebleeds –bleeds that can range in severity from killers of spontaneity, drive social anxiety or as severe as causing serious medical complications. However, many new treatment options are available to…
Read MoreCure HHT’s Registry Research Selected for Oral Presentation at American Society of Hematology 2025 Annual Meeting
Presentation will raise critical awareness of HHT among hematologists, expanding understanding and earlier recognition of this underdiagnosed genetic disease MONKTON, Md., October 20, 2025 — Cure HHT, the only organization in the world solely dedicated to finding a cure for hereditary hemorrhagic telangiectasia (HHT) and improving the lives of those affected, today announced that…
Read More